ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Spring 2024 Live Online Community Conference
Join us Thursday, April 18 starting with the Nestlé Health Science Satellite Symposium at 9:30 a.m. ET (6:30 a.m. PT)
Then the Live Online Community Conference kicks off at 11 a.m. ET (8 a.m. PT).
LOCC Event Platform
- You will need to log-in to access live sessions & all conference resources. If you have registered and have not received an invitation to set up your account, please contact [email protected].
Download the Agenda
Breakout and Plenaries are categorized by tracks to help you plan your time with us. Learn more about each track.
Highlights from the Agenda
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Nestlé Health Science Satellite Symposium
- Science and Practice of Nutritional Intervention in Crohn’s Disease - David Suskind, MD
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Community Conference
- Richard B. Colletti Clinical Plenary: Revolutionizing Pediatric IBD Care: The Inspiring Journey of ImproveCareNow
- Engagement Plenary: Building Confidence and a Sense of Belonging Through Camp Oasis Participation
Cost: There will be a small registration fee for select community members to attend the LOCC
- ALL Patients, Parents/Caregivers: No Charge
- ICN Physician, Advanced Practice Clinicians (Physician Assistants, & Nurse Practitioners): $200
- ICN QI Team Members (Coordinator, Nurse, Dietitian, Psychosocial, Fellow/Trainee): $75
- Non-ICN Physician, Advanced Practice Clinicians (Physician Assistants & Nurse Practitioners): $300
- Non-ICN Coordinator, Nurse, Dietitian, Psychosocial, Fellow/Trainee: $150
- Other: $400
- Non-profits please contact us for rates.
⭐ NEW in 2024 for Live Online Conferences: We are offering GROUP RATES to ICN Care Centers who have more than one person attending virtually. Please read these instructions if you plan to register as a group.
- 2-4 people from one ICN Care Center: $450
- 5-10 people from one ICN Care Center: $700
- More than 10 people from one ICN Care Center: Contact us for rates.
We recognize that for some, individual registration may still be more cost beneficial, but encourage multi-disciplinary Care Center teams to take the time to plan on who can attend the LOCC to make the most out of the group rates. We encourage teams to book conference rooms and create watch parties! Please note that anyone who wants to claim CME credit must be registered for the conference and log-in as an individual to attend live and track attendance.
Supported by:
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
If you would like to support ImproveCareNow and these efforts, please download our Spring 2024 Live Online Community Conference Supporter & Exhibitor Prospectus.
Parent / Family Advisory Council - May 2024
We invite Parents & Caregivers of kids living with IBD to the May Parent / Family Advisory Council meeting on Monday, May 13, 7 - 8 p.m. ET (4 - 5 p.m. PT).
We will be joined this meeting by the Crohn’s and Colitis Foundation who will share and answer questions about Camp Oasis.
Camp Oasis is a supportive environment where children living with IBD make friends, learn more about their disease, and have lots of fun. You can read more about the impact of Camp Oasis for kids and families here.
Click here to sign up for the webinar (choose the May 13 call) receive the webinar information to join the call on May 13. If you already receive emails from the PFAC, you can register and join the May call as you normally would do.
Fall 2024 Community Conference
Save the Date for the Fall 2024 Community Conference on September 25 - 27 in Baltimore, MD.
The hotel block at the Marriott Baltimore Waterfront is now open. Book your reservation by September 6, 2024.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
If you would like to support ImproveCareNow and these efforts, please download our Fall 2024 Live Online Community Conference Supporter & Exhibitor Prospectus.
Spring 2025 Live Online Community Conference
Save the Date for the Spring 2025 Live Online Community Conference on April 24, 2025. Exact time of event TBD and subject to change.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
MyIBD Learning: New Haven
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: New Haven
ImproveCareNow representatives & speakers
Dinesh Pashankar, MD, MBA - Yale School of Medicine
MyIBD Learning: San Francisco Bay Area
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: San Francisco Bay Area
ImproveCareNow representatives & speakers
Sabina Ali, MD - UCSF Benioff Children's Hospital
Jon Moses, MD - Stanford Health
Perseus Patel, MD - Stanford Health
Examination of the perceived impact, utility, and effectiveness of a shared decision-making tool for surgery in pediatric Inflammatory Bowel Disease
The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).
The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.
Click here if you are a provider or advanced practice practitioner
Click here if you are a patient or parent
PI: Kelly Sandberg, MD, MSc
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Health Care Professional Survey
Health Care Professional Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Health care professionals (including GIs, APN/NP/PAs, nurses, psychologists, social workers, and dietitians) who care for pediatric IBD patients are eligible to participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes long to complete. There is no follow-up to this study.
Health care professionals can learn more and complete the survey by clicking the blue link below:
Complete Survey
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Patient Survey
Pediatric IBD Patient Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Patients who have been diagnosed with IBD and are between 8 to 17 years old can participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes to finish. There is no follow-up to this study.
Patients can learn more and complete the survey by clicking the blue link below:
Complete Survey
Assessing Attitudes, Access, Barriers, and Facilitators to Multidisciplinary Care in Pediatric Inflammatory Bowel Disease
The below Research Opportunity is open to Healthcare Professionals at ImproveCareNow Care Centers in the United States, and is a Research Committee Approved study.
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We would like to invite you to participate in a research study that involves completing a brief online survey. This invitation is being sent to all pediatric GI medical providers at ICN centers in the United States. We would like to the explore the availability and facilitation of multidisciplinary pediatric IBD care across the United States. Understanding disparities in access could help to identify areas for improvement and improve care moving forward.
You can fill out the survey by clicking on the link below. On the first page of the survey, you will find an information sheet with more information on the study. By continuing to fill out the survey, you will give consent to participate in our research study.
https://redcap.nchri.org/surveys/?s=CTFACLH3YAJKNNTP
Thank you for participating in our study!
Nicole Davidson, MD
Hilary Michel, MD
Jennifer Dotson, MD
Jennie David, PhD
