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Surgery & IBD - a PAC Twitter Chat


While surgery may not be a fit for all IBD patients, it’s certainly a topic to discuss. I invite you to join us on Twitter on Wednesday, January 24, 2018 @ 1PM EST as we @ICNPatients talk about surgery and IBD.

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Mental health is just as important as physical health


My name is Andi and I’m a freshman at Indiana University-Bloomington where I study Biotechnology, Chemistry, Spanish and Pre-Med. I was diagnosed with Crohn's disease in April of 2008. I currently take Methotrexate, which has kept me in remission for about nine years now. A fun fact about me is that I collect snow globes.

One of my greatest struggles in dealing with a chronic illness, is the mental side effects that come along with it. I can be moody or withdrawn and I find it affects those around me.

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Research should benefit patients


I'm Joshua – a 21-year-old Stanford senior. I was diagnosed with Crohn's in the 7th grade and have been, for the most part, in remission since then (I've been on Remicade pretty much continuously). Most people don't know that I can roll my stomach – I'm a pretty open book, so that's all I got!

Since I've only experienced Crohn's-related symptoms 2-3 times in my life, whenever I have any GI symptoms or problems, I always get anxious that "the Crohn's has come back." It can be mentally exhausting at times, but luckily school keeps me busy and distracted.

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PAC 2017 Year in Review


As the Patient Advisory Council says hello to 2018, we want to take time to reflect on all we accomplished in 2017. From new members to new toolkits, retreats to a redesigned logo – we have so much to celebrate!

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I May Struggle At Times


Like most people, I’ve had my share of challenges in life. However, in March 2017 I was met with my biggest challenge to date. I started to feel sick with bad stomach pain. As time went on I noticed the pain was getting worse. I started to lose my appetite and was vomiting multiple times a day. My parents called the doctor, and they said it was probably a stomach bug. They recommended waiting two weeks to let the virus run its course.

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It's Okay to be Different


A few years ago, I gave one of my older brothers a children’s book called “It’s Okay to be Different.” The book was downright hilarious. It contained colorful pictures of people “being different” and being okay with it. Didn’t you know that “it’s okay to come in last?” Or, my favorite, “it’s okay to eat macaroni and cheese in the bathtub.” As you might guess, I gave this book to my brother to poke fun at him, not on a serious note. However, the book had a good point. IT IS okay to be different. In fact, it’s pretty flippin’ awesome.

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Frequently Asked Questions About the PAC


The Patient Advisory Council (PAC) is a group of young (14 +), passionate and motivated patients with Crohn’s disease and ulcerative colitis (also known as Inflammatory Bowel Disease, or IBD). Together, the PAC is a voice for all patients receiving care at ImproveCareNow Centers. PAC members contribute to research studies and the development of health care innovations; they share valuable experience and insights with healthcare professionals, researchers and others; and they raise awareness of IBD and ImproveCareNow. In this post, PAC members have answered questions they are frequently asked, about what the PAC is, how to connect patients with the PAC and how to support the PAC in reaching their goals. (If you’re a member of an ICN center – pay close attention to the last four questions & answers - they're directed at you!)

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As the holidays come and go


Holidays are a special time for all. The hustle-and-bustle is paid back in spades as you watch a child’s joy when they unwrap a special gift or when you spend time with extended family. A few years ago, I was given a very special gift at Christmas – one which I will never forget.

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Crohn’s & Colitis Awareness Week 2017


Thanks for joining us during Crohn’s & Colitis Awareness Week (December 1-7). Each year we are excited to do our part to raise awareness of Inflammatory Bowel Disease. This year, we decided to debut a collection of our Care Cards, which have hand-written messages of hope and support from members of our community to patients with IBD and their families. We invited everyone to show their love for these cards by liking and sharing them with others – to reinforce the message: You Are Not Alone!

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