Posted by Sami Kennedy on August 14, 2012
My college roomie does not have Inflammatory Bowel Disease. Yet, I’m convinced that if anyone stole my phone and read our daily text message exchanges, they would wholeheartedly believe that we both have a strange obsession with poop. We talk about poop a lot. More specifically, we make poop jokes a lot. Usually inappropriate poop jokes that I wouldn’t even repeat here. That’s not too much of a tragedy for you, since like most inside jokes between friends, you probably wouldn’t find them funny. Really, our sense of poop-humor is akin to the average six year old’s, but I wouldn’t have it any other way. It’s an incredible feeling to receive support from a friend without IBD. It’s even more incredible to laugh about poop with that friend. That’s the sign of a true ally, and it’s rare to find those outside of the IBD community. To get back to the recurring theme here, I’m crazy lucky.
Anyway, I started using the stool softener Miralax today to help with some IBD-related constipation. I texted from the parking lot outside the CVS: “Some have a closet full of beer at college. We’ll have a closet full of Miralax.”
A year ago, I sat at home crying and desperately searching the Internet for advice as I packed for my freshman year of college. I had a flare that wouldn’t let up and would need to use nightly enemas in my dorm room. I was convinced my roommate would think me a freak. What eighteen year old admits to using an enema? Who even uses an enema every night? For someone who claimed to be okay with her IBD, I really let my fear of rejection kick my rationality out the window. I practiced holding in an enema while sprinting from my bathroom to my bed. I bought a huge box to hide the prescription boxes. If I had known that over a year later, I’d still be using enemas nightly, I would have absolutely freaked.
Then, I got to college. I met my incredible friends. I realized I had blown the whole situation way out of proportion over the summer. When I first confided to my best friend that I use enemas, she barely blinked an eyelash. I was shocked. After all that panic, it turned out to be not a huge deal at all. A few weeks later, we watched “Dracula: Dead and Loving It” - which is a terribly funny movie I totally recommend that also happens to poke lots of fun at enemas (as a supposed cure for vampirism) - and I can guarantee that movie would not have been nearly as funny for us if I hadn’t (quite literally) let my enemas out of the box.
A year ago, I couldn’t have sent that text from outside CVS. I would have been terrified to bring packets of Miralax into my college dining hall. This year, I’m not even phased. I know it won’t be a big deal to her or any of my friends. In fact, I know there’s a greater chance of someone at the table making a joke over the white powder than anyone giving me a funny look for it. It’s just the way it is. My friends know me, know I have IBD, and know that it’s a serious disease that I’m okay with taking lightly sometimes. I am in a wonderful place that I wish was available to every IBD patient.
UC and Crohn’s are serious diseases. Chronic illness sucks and shouldn’t be taken lightly. That said, I think humor can make a world of difference in how a patient copes with their disease. I know I find it liberating to have a go at the disease that makes me go. I think nocolon33’s hilarious Alcatraz bathroom series is a great example of this. Humor is just another way I fight back against my disease. It may have my colon, but it’s got nothing on my spirit.