ImproveCareNow supports care centers in creating more reliable and proactive systems of care for pediatric patients with Crohn's disease and ulcerative colitis. In addition to receiving robust quality improvement (QI) training, physicians, other care providers and parent and patient partners benefit from active collaboration with other centers. This collaborative approach to medicine allows new ideas and best practices to be identified and introduced into the care delivery process much faster—improving care for patients quickly. ImproveCareNow registry data enables these teams to analyze care and outcomes across their entire patient population and to target group of patients and individuals with tailored interventions. Below is a listing of some of our current quality improvement projects.

Click on a project name to view additional information.

QI Fundamentals is a semi-annual training series, consisting of seven, hour-long webinars over a four-month period, which provides new care centers or new staff at established care centers an introduction to quality improvement methods and interventions used by ImproveCareNow.  Each new series culminates with attendance at the following Community Conference.  To find out when the next QI Fundamentals series is taking place or to have a team member added to the next QI Fundamentals series roster, contact ImproveCareNow.

ImproveCareNow Learning Labs are small groups of care centers that are assembed because they have something in common (eg. the amount of time they’ve been in the Network) or are working on similar issues. Our Learning Lab structure enables centers to work more closely together to catalyze improvement and to maintain personal connections as the Network grows.  These groups meet bi-monthly via webinar to share ideas and experiences, collaborate around new topics, and work through any barriers they face. They also meet in person at ImproveCareNow Community Conferences.  Each group is led by a Quality Improvement Coach (QIC) who provides support, feedback, and new QI tools and helps catalyze peer mentoring within the group


The Medication Adherence Innovation Community was formed in 2014, with the goal to improve the identification and screening of patients for medication adherence.  Medication adherence is a cornerstone of effective care for patients with IBD.

Center Team Members:

  • Beth Williams (ICN QIC Lead)
  • The University of Vermont Children's Hospital
  • Helen DeVos Children's Hospital 
  • Children’s Mercy
  • Stanford Children’s Hospital
  • Children's Hospital of Illinois | University of Illinois at Peoria
  • Arnold Palmer Children’s Hospital              


  • Testing and implementing medication adherence assessment tools at every clinic visit
  • Testing and implementing self-management strategies to improve medication adherence


The ImproveCareNow Transition Task force, formed in 2015, aims to apply quality improvement methodology to testing, implementing, and spreading innovations related to the transition and transfer of care processes.  The Task force aims to develop a structure and plan for identifying, testing, and measuring the impact of tools and strategies related to improving transition to adulthood and transfer to adult care within the Network.  The task force will continue to work toward standardizing transfer content as well as collaborating with others on useful educational information and practical tools for a successful transition process.

Team Members

  • Diane Eskra - ICN QIC Lead
  • Theresa Todd - Nicklaus Children's Hospital
  • Sandra Kim - Children's Hospital of Pittsburgh
  • Jeanne Tung - Mayo Clinic
  • Marc Schaefer - Penn State Hershey Children's Hospital
  • Marc Tsou - Children's Hospital of the King's Daughters
  • Howard Baron - Pediatric Gastroenterology & Nutrition Associates
  • Michele Maddux - Children's Mercy
  • Sami Kennedy - Patient Partner / Medical Student


  • Standardized Transfer form content with pertinent clinical information from the pediatric specialist for adult providers.
  • In collaboration with the Patient Advisory Council, the Psychosocial community and the CCFA, currently working on a Transition Tool Kit.


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