Posted by Sarah Nocito on December 15, 2016
In August funding was announced for a study examining the effectiveness of the specific carbohydrate diet (SCD) in reducing symptoms in pediatric patients with Crohn’s disease and ulcerative colitis using a combination of “N of 1” methods and mHealth technology. This study has been named by the ImproveCareNow community.
Members of the ImproveCareNow community collaborated to design the study (to address a need for more information about the role of diet in the treatment and management of IBD) and have now named the study together. In total, 11 potential names were proposed by community. Voting was then opened and more than 100 people cast a vote for the new study name.
Here are the top three finalists:
The community has spoken and the winning name is:
- Research Updates: Community members interested in staying up to date on ImproveCareNow Research, including the PRODUCE Study, should sign up to receive Research Updates >>
- ImproveCareNow Site Selection: By mid-December, ImproveCareNow centers will be able to apply to participate in the PRODUCE Study. We plan to select 10 centers that will each recruit approximately 12 patients with IBD.
The Cincinnati Children’s Hospital Medical Center is sponsoring the study. This research study is funded through a Patient-Centered Outcomes Research Institute (PCORI) Award. The study is also being supported by ImproveCareNow, an organization working to improve care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis.
Parent and patient partners from the ImproveCareNow Network are a part of the study team. Parent and patient input for the PRODUCE Study has been instrumental in making the study better for children and families.