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Not Letting Crohn’s Take Control

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Hi, my name is Natalie and I’m a high school sophomore from Columbia, MD. I was diagnosed with Crohn’s disease at 10 years old. I’m passionate about music – I play the trumpet in my school’s marching band, as well as the piano and ukulele.


Ulcerative colitis helped me discover my love of medicine

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Hello! My name is Taylor Heppner. I am 22 years old (23 on September 25th) and I’m secretly a Harry Potter fan (but shhhhh, I don’t want anyone to know!) I go to the University of Dubuque in Dubuque, Iowa. I'll graduate with my Bachelors of Science in May 2018. I am studying Human Health Science with the hope of being accepted into a Physician Assistant Graduate Program! I love medicine and would love to help others in any way I can.


The effect Crohn’s has had on my social life

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Hi, I'm Ceilidh (pronounced KAY-lee). I'm 15 years old and attend school at Mount Mansfield Union High School. I was diagnosed with Crohn’s disease in August of 2016. One thing most people don't know about me is that other than Crohn’s, I used to have a decently large strawberry hemangioma (basically a collection of fat and tissue). It was harmless, but it made me bite my lip a lot, so I had it removed when I was nine.


Crohn’s is hard to accept

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My name is Sydney, and I'm 17 years old. I go to St. Pius X Catholic High School in Atlanta, Georgia. I was diagnosed with Crohn's disease just this March. I am a triplet, with two triplet sisters, and I also have a younger brother.


PAC Welcomes Six New Members

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Let's give a warm welcome to - and get to know - six new members of the Patient Advisory Council (PAC). Grady, Nick, Natalie, Shawntel, Emily and Laci are ready to #imPACt the lives of kids with Crohn's disease and ulcerative colitis, by raising awareness about the realities of life with Inflammatory Bowel Disease (IBD) and building connections and tools to support each other and all young patients with IBD. They're also using their voices and experiences to actively represent over 27,400 patients with IBD across the ImproveCareNow Network and are committed to collaborating and continuously improving outcomes as part of our Learning Health System. Let's meet them.


PAC Welcomes Five New Members

Let's give a warm welcome to - and get to know - five new members of the Patient Advisory Council (PAC). Nicki, Rebecca, Becky, Sarah and Abigail are imPACting the lives of kids with Crohn's disease and ulcerative colitis, by raising awareness about the realities of life with Inflammatory Bowel Disease (IBD) and building connections and tools to support each other and all young patients with IBD. They are also using their voices and experiences to actively represent over 27,000 patients with IBD across the ImproveCareNow Network and are committed to collaborating and continuously improving outcomes. Let's meet them.


PAC Welcomes Six New Patient Advocates

Let's give a warm welcome to - and get to know - six incredible new PAC members & patient advocates. Christian, Emma, Hindy, Julia, Natalie & Marisa are imPACting the lives of kids with Crohn's disease and ulcerative colitis, by raising awareness about the realities of life with Inflammatory Bowel Disease (IBD) and building connections and tools to support each other and all young patients with IBD. They are also using their voices and experiences to actively represent 26,000 patients with IBD across the ImproveCareNow Network and are committed to collaborating and continuously improving outcomes. Let's meet them.


How I joined the PAC and ImproveCareNow

I spent many years thinking I was the only kid with Crohn’s Disease in my area. 

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Say Hello to Four New PACers

Welcome! – the Patient Advisory Council has been using that word a lot so far in 2016.

The PAC is growing quickly, illustrating the enthusiasm for the council. We’re proud to welcome four new members (with 3 joining in one week)! I’ve had the opportunity to get to know them and it’s my pleasure to introduce them to you here on LOOP.

Before we meet our new members let me just say a word or two about myself – in case we haven’t met yet. My name is Tyler Moon and I am the Recruitment Lead for the PAC. I’m a 19-year-old sophomore studying finance at Saint Louis University. I have Crohn’s disease and have since I was 9 years old. I’ve been a member of the PAC since its early days and am grateful to have experienced its growth and evolution firsthand. I’m passionate about making a difference in the IBD community as we make our way closer to a cure, and I won’t quit until one is found. In my (rare) free time, I enjoy Netflix binges, hanging out with friends, working out, snowboarding, and a newfound hobby – skydiving.

Now, without further ado, let’s say hello to our newest PACers!


Running with Crohn’s: Drake's Story

I had always been a sick child. I can remember constantly calling my parents from the nurse’s office. While sitting in the nurse’s office I found myself wondering what was wrong with me, and why everyone in the school office knew me by my first name. I was that kid.

Drakerunning


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