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I'm a fighter.

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My name is Chloe and I’m 18 years old. I graduated high school in June, and currently work as a cashier. I was diagnosed with UC at age 13.


Tools To Get Through A Flare

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My name is Lexa, and I'm 17 years old. I'm currently in high school and I love to travel. I was diagnosed with Ulcerative Colitis (pancolitis) in April this past year.


Asking lots of questions helps me cope with UC

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My name is Mia and I’m 14. I was just diagnosed with ulcerative colitis right as my first year of high school began. One interesting fact that most people don’t know about me is that I love simply spending a day in the city!


I chose resilience

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Watching my mother in tears through the glass window panel, I felt pain. Feeling the wires stuck to my chest, I felt cold. Hearing the heart rate monitor race rapidly, I felt scared. Listening to the anesthesiologist who told me to close my eyes, I felt my worries drift away. I awoke in confusion as I was rolled back to the children’s ward of the hospital in a stretcher. The white walls, patients, and doctors blurred into one as I tried to fight off sleep, but it easily won. After hours of sleeping, I awoke to the sound of the doctor’s knocking. He took a seat at the end of my bed and stared into my eyes with a mixture of compassion and sadness. I anxiously waited for him to speak the words that would change my life forever.


Turning Ulcerative Colitis Into A Positive

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Hi, I’m Luke. I'm 16 years old and attend Providence Day in Charlotte, NC. I have ulcerative colitis. This year, I’m looking forward to traveling to China to play basketball with my school team. Dealing with chronic illness has presented me with two main obstacles: managing stress and being aware of what my body needs (like how much sleep I’m getting and how much I can eat).


Not Letting Crohn’s Take Control

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Hi, my name is Natalie and I’m a high school sophomore from Columbia, MD. I was diagnosed with Crohn’s disease at 10 years old. I’m passionate about music – I play the trumpet in my school’s marching band, as well as the piano and ukulele.


Ulcerative colitis helped me discover my love of medicine

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Hello! My name is Taylor Heppner. I am 22 years old (23 on September 25th) and I’m secretly a Harry Potter fan (but shhhhh, I don’t want anyone to know!) I go to the University of Dubuque in Dubuque, Iowa. I'll graduate with my Bachelors of Science in May 2018. I am studying Human Health Science with the hope of being accepted into a Physician Assistant Graduate Program! I love medicine and would love to help others in any way I can.


The effect Crohn’s has had on my social life

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Hi, I'm Ceilidh (pronounced KAY-lee). I'm 15 years old and attend school at Mount Mansfield Union High School. I was diagnosed with Crohn’s disease in August of 2016. One thing most people don't know about me is that other than Crohn’s, I used to have a decently large strawberry hemangioma (basically a collection of fat and tissue). It was harmless, but it made me bite my lip a lot, so I had it removed when I was nine.


Crohn’s is hard to accept

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My name is Sydney, and I'm 17 years old. I go to St. Pius X Catholic High School in Atlanta, Georgia. I was diagnosed with Crohn's disease just this March. I am a triplet, with two triplet sisters, and I also have a younger brother.


PAC Welcomes Six New Members

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Let's give a warm welcome to - and get to know - six new members of the Patient Advisory Council (PAC). Grady, Nick, Natalie, Shawntel, Emily and Laci are ready to #imPACt the lives of kids with Crohn's disease and ulcerative colitis, by raising awareness about the realities of life with Inflammatory Bowel Disease (IBD) and building connections and tools to support each other and all young patients with IBD. They're also using their voices and experiences to actively represent over 27,400 patients with IBD across the ImproveCareNow Network and are committed to collaborating and continuously improving outcomes as part of our Learning Health System. Let's meet them.


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