Posted by Carrie Ward on July 02, 2019
The first question new parent partners often ask is: What should I do first? One of the first projects I worked on with my team was to create “CHOC’s Guide for your IBD Road to Wellness” – a handbook for newly diagnosed families.
From start to finish, the entire project took about six months to complete. Now, the handbook is one of the first things a newly diagnosed family receives when they reach out to me.
To create this resource, a multi-disciplinary team of care providers and I worked together. The handbook is designed for parents and children living with IBD. Its purpose is to help them fully understand Crohn's disease and/or ulcerative colitis, and how to manage it. Topics include:
- Meet your team; What to expect from your IBD team; About my condition; ImproveCareNow
- IBD Overview; Crohn's: disease & Treatments; Ulcerative Colitis & Treatments; Diagnosis & Testing
- Common IBD Medications
- IBD Diet & Nutrition
- Psychosocial Issues: School & Activities; Transition Reliable websites, apps, FAQ's
I am proud of the completed handbook and am honored I had the opportunity to help create it. If you are a new parent partner, and you find yourself asking ‘what should I do first’ – consider creating a handbook that can help newly diagnosed families learn more about IBD and feel supported.
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