đź”— Links for Caregiver Coping Resource Section 10 - Special Considerations
10a - Very Early-Onset IBD (VEO-IBD)
- excellent 9-minute video with Tori and her brave son sharing his infusion clinic experience
- The Meg Foundation’s Poke Plan
- Comfort Ability website
- The Meg Foundation resources for supporting pain management
10b - Surgery for IBD
- Shared Decision-Making tool for surgery in pediatric IBD from ImproveCareNow
- Ostomy Toolkit from ImproveCareNow
- United Ostomy Association of America’s Pediatric Ostomy Support Group
- The Meg Foundation
- Finding a Mental Health Professional resource from ImproveCareNow
10c - Special Considerations in Autoimmune Liver Disease (AILD)
- Autoimmune Liver Disease Network for Kids (A-LiNK)
- consider joining A-LiNK Connections (AILD) by visiting the "How To Get Involved" sign-up section
- The A-LiNK Manual (this is an excellent and lengthy resource) under the Tools and Resources section
- Autoimmune Hepatitis Association
- PSC Partners Seeking A Cure
- Pediatric Psychology Caregiver Wellbeing Special Interest Group