Primary Investigator:  Nicole Davidson - Nationwide Children's Hospital

Purpose:

Inflammatory bowel disease (IBD) is a chronic immune mediated condition that impacts not only the physical health of patients but also their psychosocial wellbeing and quality of life. Multidisciplinary care is advised in the care of children and adolescents with IBD. Models of multidisciplinary care for pediatric IBD have been described in the literature but real-world access to multidisciplinary care as well as provider attitudes and perceived barriers and facilitators to it remain largely unknown. Michel et al described the described the approach to the pediatric IBD medical home at our IBD center (Nationwide Children's Hospital) in a study published in 2022 (Michel et al. 2022).

Our center has access to several resources given the size and scope of our institution but we recognize that these resources are not available at all centers. In a survey study by Winnick et al, ICN centers were surveyed to assess their access to psychosocial support services for IBD patients. The study found that the majority of centers had access to psychosocial support, however most of these providers were not dedicated exclusively to IBD and they were often only available during limited hours (Winnick et al. 2023). This study would be helpful to assess what common barriers in access to this type of care across ICN centers in the US, while acknowledging that ICN centers do not encompass all centers providing pediatric IBD care. Analyzing this data will allow pediatric IBD centers to assess care gaps and advocate for improved care.

Aims & Hypothesis: This study aims to understand availability and access to multidisciplinary care for children with IBD across US ICN centers. It also aims to explore provider attitudes, barriers, and facilitators of care. We hypothesize that access to multidisciplinary care will vary widely across US ICN centers. Providers will feel positively toward multidisciplinary care for children with IBD, but identify multiple personnel, local, and system-level barriers to care access and delivery.

Funding Source: N/A

Study Period: January 2024

Recruitment Status: Currently recruiting participants 

Contact: [email protected] 

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