ImproveCareNow Ibd


Coronavirus Perspectives: Stay safe and reach out when you need it

We believe everyone’s story matters and is important and can change someone else’s story. In the midst of the current global coronavirus pandemic it feels more important than ever to share our stories, experiences, knowledge and know-how widely, to stay connected virtually and to continue reminding each other - we are not alone!

Thank you so much to PAC (Patient Advisory Council) member, Becky who shared her perspective on life with IBD in the time of coronavirus and the disease it causes – called COVID 19.


Information about the novel coronavirus (COVID -19) for IBD patients and families

SARS-CoV-2

image credit: NIAID-RML

Many IBD patients and their families are concerned about the novel coronavirus (COVID-19) and the impact it may have on their lives, their care and their wellbeing. Please note: IBD patients and families seeking specific information about the novel coronavirus and their medical care are advised to communicate directly with their care team. While ImproveCareNow is not in the business of providing direct medical advice, we are in the business of connecting people, learning together and sharing information seamlessly. We'd like to share some information that may be useful to you:


PAC members discuss wellness, creativity, self-care and community

Wellness means different things to different people at different times. And while no single path leads us definitively toward or away from wellness, investing time in the things we love, making supportive connections with friends and family, and caring for ourselves can have an impact. PAC members – Becky, Linden and Quint – share their thoughts on wellness, creativity, self-care and community in this post.


My Biggest Struggle is Dealing with an Invisible Disease

Hello, my name is Allison. I was diagnosed with Crohn's disease at the age of seven. Currently, I’m a first-year college student. Something interesting about me is that I have two older sisters and two brothers-in-law.


Chronic illness can't be solved like an equation.

I’ve been watching a show called New Amsterdam. As a person who lives with Crohn's disease, I really appreciate the way the writers try to incorporate healthcare in such a patient-focused way. There’s a quote I really like from the show about importance of patients being the experts:

“...Leave the quantifiable behind and rely instead on experience.”



Having support keeps you grounded.

Lately, I’ve been reflecting on the importance of having a support system. Whether it be friends, family, or even strangers…in that Facebook group you joined a few weeks ago. Having support keeps you grounded, and I find it can have beneficial effects on both my mental and physical well-being.


I will never forget the day my son’s symptoms began

My name is Ann, and I will never forget the day my son's symptoms began. There were six of us. We had all gone out to enjoy a Chinese dinner. The time was the summer of 2009. Later that night, Richard who was 8 years old, started vomiting. We thought he probably was reacting to something in the restaurant food, but none of the rest of us had a problem. This was the start of Richard’s trouble with Crohn’s disease.


Creating an ICN-like learning network for autoimmune liver disease

Hi, I’m Jane, “Mom” to beautiful 20-year-old Nicole. I serve as a parent representative at CCHMC for ImproveCareNow (ICN) and our local network called: IBDevoted. I am also a Board member of the local chapter of the Crohn’s & Colitis Foundation. In my professional career, I work for a large Catholic healthcare system handling medical malpractice cases. While I’m not technically a healthcare professional, I joke that “I play one on TV”!


I decided it was time to own my disease

My name is Talia; I am a high school student. I was diagnosed with ulcerative colitis (UC) in May of 2016. Many people don't know that I have a creative side, and that I draw and paint for fun.  


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