At the parents’ request, ImproveCareNow patients co-authored a list of What We Wish Our Parents Knew navigating IBD through our teenage years.

What We Wish our Parent Knew

Having your body at the center of ongoing medical scrutiny is not the ideal situation in which to develop an individual and autonomous body image.

*NEW* Body Image Toolkit 

A resource created by members of Patient Advisory Council of ImproveCareNow. The
purpose of this toolkit is to share personal experiences of body image issues from teens
and young adults living with IBD. This toolkit includes stories from PAC members, in
which they talk about the ways in which IBD treatments/medication, surgeries, and
comments from others have impacted how they perceive their own body.

Read more about Body Image & IBD on LOOP

Members of the Patient Advisory Council (PAC) have shared their stories and together with ImproveCareNow the PAC has created resources to help others talk about their experience with IBD.

Crohn’s and Colitis Storybook 

Why It’s Important to talk about IBD  - Video Series 

PAC Stories on LOOP

OPPORTUNITY: Share your story on LOOP!

As healthcare providers, we want our young adults to successfully navigate the health care system as independent individuals. The process of transitioning from pediatric to adult-centered health care should be seamless, and should occur when the adolescent or young adult is in a stable place, both physically and emotionally.

Transitioning to Adult Care Provider

To Nudge or to Push

Preparing for college testing during high school may take some extra planning. If you have a 504 plan, you still need to apply for accommodations. Test requirements vary, so make sure you have detailed information about accommodations for the test, restroom access, food /drink availability and more.  

College Testing Accommodations

This sample letter is an example of how a parent and physician worked to make sure a patient was accommodated in a residence hall

Dorm Room Request Example

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