In February 2019 our Engagement Team asked the ICN Community to share what information, knowledge and know-how could help others living with IBD, and how best to get those resources into the hands of people who need them. Two weeks ago we shared feedback and resources related to “Information and resources to support psychosocial health.” Today, we're sharing about "Information on financial and insurance coverage issues."

We know there is more work to do, and this is the start of identifying resources that can help our community. If you know of any resources that address the topics shared in this post, please contact us so we can share seamlessly.

Excerpt from Enough is Enough on LOOP

Information on financial and insurance coverage issues

One parent noted the importance of “information/assistance navigating insurance company regulations so that I could receive my child’s medicines timely and without having to go to a pharmacy every week or so.” Another parent responded about “help with insurance -- how to find the best contact person/advocate for your insurance company. How to fight for a medication when insurance drops or won’t pay.” One parent described the need for “insurance that is constantly accessible and medication that is not delayed,” while others highlighted the importance of “financial assistance programs” and “funds to pay for all of the testing.” Another person described the importance of “transition of insurance from parents to self.”

We are sharing ICN resources that touch on insurance perspectives and considerations during transitioning to adult care: Transitioning in IBD – A Challenging Step; Enough is Enough; The Transfer Toolkit

* Financial and insurance coverage issues are areas of interest in our community! Help us develop resources that directly address these topics. Contact us to let us know you're interested.

This post was written by David Hartley, with input from Mary Havens, Chris Keck and Sarah Nocito. It is the third in a multi-post series where the ICN Engagement Team explores the results of their "Content Prioritization Survey" - better known as ImproveCareNow's effort to get the right information into the right people's hands at the right time(s) so they have What is Needed, When it's Needed (#WINWIN). All posts in this series will be tagged with #WINWIN so you can find the series by visiting: 💚💙

Show your support for WINWIN! Here's how:

  • Do you have a resource(s) that addresses the topic(s) discussed in this post? Email us to share: [email protected]
  • Collaborate to create resources that could help fill resource gaps! Email us to get involved: [email protected]



Read more posts about Engagement on LOOP >>

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