Current Research Opportunities:
Current Approaches to Screening for, Diagnosing, and Managing Primary Sclerosing Cholangitis in Pediatric Patients with Inflammatory Bowel Disease Among Pediatric Gastroenterologists
We invite you to participate in a brief survey exploring current practices in the care of pediatric patients with inflammatory bowel disease (IBD) who also have primary sclerosing cholangitis (PSC). This population presents unique challenges, and there is limited literature guiding optimal management.
The goal of this survey is to better understand how providers approach diagnosis, surveillance, and treatment in this subgroup, and to identify areas where consensus or guidance may be needed. Your input will be invaluable in shaping future discussions and research priorities.
The survey should take approximately 5 mins to complete, and responses will be kept anonymous. Your participation in this survey is voluntary. You will receive no direct benefits from participating in this survey research study.
Participate in the Survey
Community Learning About Results of Engagement Study - CLARE Study
This study is to test the effect of engagement (e.g., accessing or using information and resources from ImproveCareNow) and self-management (e.g., taking your prescribed medications, awareness of symptoms) on health outcomes in adolescents and young adults with Inflammatory Bowel Disease (IBD).
Please click the link below to watch a brief informational video.
If interested in participating in this study, please fill out this form
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