Sleep disturbance, pain, anxiety, depression, and fatigue are prevalent in adolescents and young adults with inflammatory bowel disease (IBD). These symptoms often present in co-occurring sets, known as symptom clusters. We aimed to identify distinct symptom clusters and factors associated with symptom profiles in adolescents with IBD.

On May 19 the ImproveCareNow community celebrates World IBD Day as a dedicated time for #TalkingAboutIBD to raise awareness for invisible illnesses like Crohn’s disease and ulcerative colitis, break down isolation, and advocate for improvements in care and outcomes. Empowering those in our community who speak up, ask questions, and share their powerful personal narratives and lived experiences helps us all move toward a fuller understanding of how IBD shows up and affects the lives of people living with it. Today we would like to highlight how deeply this collaborative sharing drives our research, by highlighting a selection of our recent ICN Research Explained blog posts, which have been coproduced by parents and researchers. By making clinical research accessible to all, we reinforce the vital connection between community insights and medical advancements. Ultimately, World IBD Day is an active invitation for patients, families, clinicians, and researchers to work side-by-side to co-design the best standard of care and improve outcomes for kids with IBD.

These highlights provide a glimpse into the research, if you find a study that interests you, be sure to click on "Get #InTheLOOP" to read the full summary and insights.

Pediatric patients with active and quiescent inflammatory bowel disease (IBD) have known fatigue, but there is limited understanding of how fatigue is clinically assessed. This study explored perspectives of pediatric IBD patients and healthcare professionals (HCPs) regarding fatigue assessments.

Little is known about how young women with IBD make decisions about reproductive health topics, including birth control, pregnancy, and period symptoms, and about how they prefer to learn about these topics.

Delayed diagnosis of inflammatory bowel disease (IBD) leads to prolonged symptoms and worse long-term outcomes. We sought to evaluate whether race, ethnicity, disease type, and social factors are associated with delayed diagnosis of pediatric IBD.

The objectives of this study are to estimate rates and identify factors associated with erythema nodosum (EN) and pyoderma gangrenosum (PG) in pediatric patients with inflammatory bowel disease (IBD).

Obesity is common among patients with pediatric Crohn's disease (PCD). Some adult studies suggest obese patients respond less well to anti-tumor necrosis factor (TNF) treatment. This study compares anti-TNF response and anti-TNF levels between pediatric patients with normal and high body mass index (BMI).

This study aims to characterize pediatric inflammatory bowel disease (IBD) patients who change diagnosis and describe the characteristics of that change.

This study characterized the explanatory models used by pediatric gastroenterologists when explaining inflammatory bowel disease (IBD) to children.

Pediatric inflammatory bowel disease (IBD) is a chronic illness with various treatments, including ostomy surgery. Ostomy‐related medical decision‐making (MDM) is complex for multidisciplinary healthcare professionals (HCPs). This study sought to understand national multidisciplinary HCPs' perceptions about pediatric IBD ostomy surgery in the United States.