ImproveCareNow Pac


Lifestyle and IBD - A New Web-Based Toolkit for Patients by Patients

Lifestyle and IBD is a new web-based toolkit that the Patient Advisory Council (PAC) began working on in early 2020. As COVID-19 impacted the lives of many across the country and the world, discussions about how IBD impacts how patients live became especially important to members of the PAC and the greater IBD community. Seeing a need, we decided to co-produce a resource - for patients, by patients - that could help others by sharing direct patient experiences, patient-developed information, resource links, and professional information and insights.


Episode 22 of the imPACt Podcast - Patient-Centered Care

Join me (Fionna), Shira and Caitlyn as we talk with special podcast guests - Dr. Hilary Michel and Dr. Ashish Patel - about patient-centered care from both the provider and patient perspectives. 

"Knowing what a patient's goals are, what their values are, what's important to them and trying to shape how we take care of that person with those things in mind." - Dr. Michel

"All coming to an agreement on how we want to move forward in that patient and family's care." - Dr. Patel

"It's important that we also know that as owners of our bodies we are also the experts, and I think patient-centered care does a really important job of integrating that." - Shira


A Thank You Letter

During a recent consultation with a colorectal surgeon, I found myself being heard. My feelings and my goals were shared and validated. It had been so long since I felt this way after meeting with a new provider. After the visit, I sat in my car for a moment, completely taken aback by how well the encounter had gone (especially when I have also experienced having both myself and my concerns written off without even so much as an examination). After this visit, I found myself reflecting on all the healthcare providers who have treated me over the past 13 years. And I just have to say…thank you.


Episode 21 of the imPACt Podcast - J-Pouches

Hi all, it's Hannah. I've written about ostomies and j-pouches here on LOOP before. Last June, I shared What I Wish I Knew About J-Pouch/Ostomy Takedown Surgery and it ended up being the second most-read post of 2021. So, this topic is pretty important to our community. And that's why we decided to make a podcast episode about it.


I never liked avocados until after my UC diagnosis

I never liked them, but when my doctor told me avocados are filled with good fats and that they are a wholesome food loaded with nutrients, I decided to give them a chance. I was surprised by how good they tasted!


Episode 20 of the imPACt Podcast - PAC Toolkits Recap

One of the opportunities that active PAC members have is to work on the creation of PAC toolkits. These resources cover many different topics related to life with IBD, but they all share one important thing in common - they are for patients, by patients


PAC Moment: IBD Support Systems

❓ What is the best way someone can support you and make you feel cared for ❓


Episode 19 of the imPACt Podcast - Crohn's & Colitis Awareness Week 2021

Each year, December 1-7 is set aside as Crohn's and Colitis Awareness Week - a time to talk about IBD and raise awareness and understanding of Crohn's disease and ulcerative colitis. 


Gluten free pasta and vegan pesto are part of my UC diet

I've been sharing my experience with foods that I eat as a vegetarian living with ulcerative colitis. Today, I'm writing about my favorite way to eat pasta (hint: it's green). 


Episode 18 of the imPACt Podcast - IBD & Support Systems

Since we're in the month of gratitude, the PAC wanted to take time to recognize and say thanks for the amazing support we've received.


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