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Episode 29 of the imPACt podcast - Why Storytelling Matters

“If you just sit and give folks a list of facts, they can debate those facts or try to refute them. They can't debate your story. Because it's your story." - Chris Keck on the imPACt Podcast 

Join me (Vanessa), Becky and Fionna for our conversation with Chris Keck from ImproveCareNow. We discuss storytelling - particularly personal narratives - and why stories matter.


Lifestyle and IBD - A New Web-Based Toolkit for Patients by Patients

Lifestyle and IBD is a new web-based toolkit that the Patient Advisory Council (PAC) began working on in early 2020. As COVID-19 impacted the lives of many across the country and the world, discussions about how IBD impacts how patients live became especially important to members of the PAC and the greater IBD community. Seeing a need, we decided to co-produce a resource - for patients, by patients - that could help others by sharing direct patient experiences, patient-developed information, resource links, and professional information and insights.


Episode 20 of the imPACt Podcast - PAC Toolkits Recap

One of the opportunities that active PAC members have is to work on the creation of PAC toolkits. These resources cover many different topics related to life with IBD, but they all share one important thing in common - they are for patients, by patients


Episode 17 of the imPACt Podcast - Halloween with an IBD spin

Would you rather be unable to use school bathrooms or have to have bi-weekly colonoscopies?

We (Becky & Shira) are going to be answering some "Would you Rather" questions and telling spooky stories from Halloweens past, where we have had some close calls and moments that can only be considered entertaining in hindsight. 


Episode 7 of the imPACt podcast - IBD & Identity

Did you miss us? We briefly interrupted our regular, every-other-Friday podcast release schedule. It was for a really good cause though - we released a special episode of imPACt to celebrate World IBD Day (May 19) and talk about the importance of Advocacy! Now we're back and hope you'll join us today for our chat about IBD & Identity.


Episode 1 of the imPACt Podcast

Hey, it’s Robbie! I’m a member of the Patient Advisory Council (PAC) and your host for Episode 1 of the imPACt podcast today. The PAC and I are beyond excited to share our first full episode of the imPACt podcast with you! Sharing the perspectives of patients and caregivers is our goal, and imPACt truly brings a new, modern twist on allowing others to listen to perspectives of those within the ICN community.


Patient Advisory Council launches new "imPACt" podcast to connect and talk IBD

Here #InTheLOOP we have been honored to share hundreds of stories from people across our community. We believe strongly in the power of #TalkingAboutIBD and of stories to highlight the real voices, experiences, joys, frustrations, triumphs and struggles of patients who live with IBD every single day. Today, we are very excited to be able to share a whole new way for you to engage with the patient voice - to really hear their stories - by tuning into a brand new podcast by the Patient Advisory Council (PAC) called imPACt! In this podcast PAC members will be talking openly about IBD with a goal of raising awareness and inclusivity, and connecting with listeners, each other and podcast guests.


It feels like we've really come full circle

Something that I don’t think a lot of people know is that I recruited Catalina Berenblum (Cat) to join the Patient Advisory Council (PAC), years ago. And now that she’s on-boarded me as the PAC's new Co-Chair, it feels like we’ve really come full circle. If I had known then, what I know now, it would have been an interesting sight to see: a high school freshman leading an orientation call to onboard a future PAC Co-Chair and eventual med student. Obviously, I didn’t know that Cat would become either of those things when I first picked up the phone, but I did expect great things from her right away. From our first conversation, I was sure Cat was going to do something amazing: she became an instant role model to me. That awe I felt was well-founded.


Coronavirus Perspectives: Stay safe and reach out when you need it

We believe everyone’s story matters and is important and can change someone else’s story. In the midst of the current global coronavirus pandemic it feels more important than ever to share our stories, experiences, knowledge and know-how widely, to stay connected virtually and to continue reminding each other - we are not alone!

Thank you so much to PAC (Patient Advisory Council) member, Becky who shared her perspective on life with IBD in the time of coronavirus and the disease it causes – called COVID 19.


PAC members discuss wellness, creativity, self-care and community

Wellness means different things to different people at different times. And while no single path leads us definitively toward or away from wellness, investing time in the things we love, making supportive connections with friends and family, and caring for ourselves can have an impact. PAC members – Becky, Linden and Quint – share their thoughts on wellness, creativity, self-care and community in this post.


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