ImproveCareNow Community_conference


IGNITE - Creating a Family

Do you need an IBD family? Martha knew instinctively that she did, from the moment her family first started their journey with Crohn's disease. So, she volunteered to start a pediatric family support group at her local care center. It took some time for the group to gain traction - nine months, in fact. But thanks to Martha's "pleasant persistence" and the active involvement of their pediatric GI provider, the group is now thriving - supporting and encouraging each other (both the parents and the kids), working side-by-side with patients and providers to better care, and offering newly diagnosed families a safe and welcoming place to find their footing surrounded by people who truly understand. As Martha puts it, "I had no idea who I would meet or how we would all interact, but I knew that if I needed an IBD family, others did, too."

Be inspired by Martha's #IgniteTalk 🔥 


IGNITE - I don't have to be healthy to be happy.

When Shira joined the Patient Advisory Council - in October 2020 - she wrote that she was looking for a place where she could use her voice to influence the quality of care other people receive - to change someone else's life for the better. Since then, she has set about doing just that - co-chairing the PAC's Advocacy Taskforce and joining the imPACt podcast where she has contributed to patient-led discussions on topics ranging from Parent-Patient Relationships to Arthritis to Queerness & IBD. In her Fall 2021 Live Online Community Conference Ignite Talk, Shira brought us deeper into her IBD journey by sharing a raw and beautiful account of her own self-inquiry and discovery, of learning to lean in during the dark moments and hold space for the hard feelings IBD brings. She challenged us, as she has challenged herself, to acknowledge that, yes, IBD is a burden and it brings a certain loss of control, but it does not mean the loss of one's happiness or identity.

Be inspired by Shira's #IgniteTalk 🔥 


IGNITE - Building a Legacy

Dr. John Grunow was one of the first pediatric gastroenterologists to join the ImproveCareNow Network - 15 years ago. He's been a dedicated improver ever since. Recently, John retired from active clinical practice but continues his work with ImproveCareNow. We are so grateful that he agreed to share his story in our very first clinician ignite talk - at the Fall 2021 Live Online Community Conference. Thank you, John.

Be inspired by John's #IgniteTalk 🔥 


Episode 15 of the imPACt Podcast - Conference Preview

This week's imPACt podcast episode is all about the upcoming Fall 2021 ImproveCareNow Live Online Community Conference!


Fall 2021 Live Online Community Conference - Stronger Together: Cultivating Our Shared Future

On Thursday, September 30 and Friday, October 1, ImproveCareNow will host their fourth Live Online Community Conference (LOCC). Sessions begin on September 30 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:30 PM ET when a casual Post Conference Exhibitor Time begins. Sessions resume again on October 1 at 10:00 AM ET and continue through the early part of the day, with a wrap up scheduled at 3:40 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including: IBD, identity and intersectionality; building community and co-producing during physical distancing; fatigue and sleep difficulties; body image & disordered eating; and cultivating safe and successful patient-provider relationships.


Fatigue, Sleep, and IBD - A Patient Perspective

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.


Taking Care to the Next Level - How Patients are Making a Difference

Mahalakshmi (Maha) Parakala is an active member of the Patient Advisory Council and currently serves a co-leader of their recruitment taskforce. She is a LOOP contributor, has presented during ICN Community Conferences, has co-developed IBD resources, and recently co-hosted an episode of the new imPACt podcast. At our Spring Live Online Community Conference, Maha shared her story about discovering patient advocacy and the role it has played in her life during our Engagement Plenary Better Together: Growing our CIRCLE Community to Take Care to the Next Level.

Please enjoy Maha's presentation, which we have shared both as a video and in transcript form, below:


Spring 2021 Live Online Community Conference - Stronger Together: Reflection, Resilience, and Recovery

On Thursday, March 25 and Friday, March 26, ImproveCareNow will host their third LIVE Online Community Conference (LOCC). Sessions begin on March 25 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:00 PM ET when a causal Engagement and Social Hour begins. Sessions resume again on March 26 at 10:00 AM ET and continue through the first half of the day, with a wrap up scheduled at 1:20 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including advocacy for patients, families, and the community; managing mental health and IBD during the COVID-19 pandemic; recovering from flares; and food insecurity.


Dr. Richard B. Colletti Honored with Clinical Plenary Naming

ImproveCareNow Executive Leadership and the Community Conference Planning Team have announced their intention to honor former President and Executive Network Director, Dr. Richard B. Colletti, by naming the Community Conference clinical plenary after him, beginning with the Spring 2021 Live Online Community Conference:   

The Richard B. Colletti Clinical Plenary: Understanding Disparities in Gastrointestinal Disorders: Where They Stem from and Strategies to Overcome Them 


IGNITE – It starts with us.

Christian is co-chair of the Patient Advisory Council and a young black man living with Crohn's disease. He delivered a powerful #IgniteTalk at our Fall 2020 Live Online Community Conference. Read a written version of Christian’s Ignite Talk below:


1  2  3  4  5  6  7  8  9  Next →

Built by Veracity Media on NationBuilder