ImproveCareNow Community_conference


Spring 2020 LIVE Online Community Conference - Pathway to the Future

On Friday, April 3, ImproveCareNow will host a LIVE Online Community Conference (LOCC). The LOCC will be preceded by a late breaking session on Telemedicine in Response to COVID-19 at 9:30am ET (8:30am CT, 7:30am MT, 6:30am PT) and the main event will begin at 10:30am ET (9:30am CT, 8:30am MT, 7:30am PT). 

All are welcome to join this free online event where we will be exploring ImproveCareNow's Pathway to the Future and how we can all continue to work together to transform health, care and costs for all children and adolescents with Inflammatory Bowel Disease.


The PAC wants to connect with you and have some fun together

Hi, it’s Christian – co-chair of the PAC! I’m really excited to let you know that the PAC is once again offering ICN gear in our online shop. This year, we’ve added some new hoodies and sweaters in gray, black and white. And you’ll find some other fan favorites: t-shirts, coffee mugs, pillows, and more! To get your ICN gear, please visit: https://teespring.com/stores/2020-icn-store


ImproveCareNow Moves to Live Online Community Conference Amid Rising COVID-19 Concerns

On Friday, March 6, 2020 ImproveCareNow Executive Directors, Dr. Richard Colletti and Dr. Peter Margolis, announced the decision to move the in-person Community Conference scheduled for April 2-4, to a Live Online Community Conference on April 3.


I was torn between needing to rest, and not wanting to miss out

I had the pleasure of attending the ImproveCareNow Fall Community Conference in Chicago in September. I had a great time meeting my fellow PAC (Patient Advisory Council) peers in person! They helped guide me through the various panels and workshops. I do admit that there were times when I felt overwhelmed. Not necessarily in a ‘negative stimulus’ overload, but overwhelmed with information, discussion, and flow of support from my own peers, parents and families, administrators and providers. There was one point during the conference, quite early in the morning, perhaps no later than 10:00am, where I was struggling to keep my eyes open – my old friend fatigue was back. I had to excuse myself to go back to my room to take a nap. Guilt, another familiar friend, greeted me. I was torn between needing to rest and not wanting to miss out on learning.


Our involvement with ICN has been a family affair

Hello Fellow Improvers! I am Nicole and I have been part of the ICN Community for four years. During this time, I’ve been grateful to enjoy several Community Conferences and have been an active participant in improving care both at the national level with the ICN Parent Working Group (PWG) and locally as the Co-Lead of the Parent/Patient Advisory Team (PPAT) at my care center in Massachusetts. I'm pleased to introduce my family to you!


IGNITE - I choose to ask the hard questions

"Everyone's story matters, and is important, and can change someone else's story!" - Sami Kennedy

Stories matter! They connect us; build awareness, understanding and empathy; they unite us in our pursuit of a common goal and sometimes they even ignite (or reignite) our passion for the work that lies ahead. When PAC member Maddie shared her story – her #IGNITETALK – at our Fall Community Conference the energy in the room was palpable. Here’s the transcript of her talk.


IGNITE - Find your purpose and help others

NO ONE can prepare a parent to hear that their child has to live with a lifelong medical condition and that there is NO CURE.- Maria Lester

Maria has lived through this twice. The first time was when her oldest daughter was diagnosed with Type 1 Diabetes at 4-years-old. Then, nine years later her youngest was diagnosed with Crohn’s disease, Celiac disease, and Primary Sclerosing Cholangitis at 6-years-old. After each heartbreaking diagnosis, Maria remembers reassuring her children that everything would be OK. And in those moments, she found her purpose – she was going to do everything in her power to make sure it would be OK. She dove in headfirst, connecting with disease communities to get support and learn all she could about these diagnoses. She said yes to opportunities to partner - to contribute her time and talent to improve the lives of not only her children, but other families walking the same path she has walked. Through this she has learned a powerful lesson – “that when you find your purpose, you realize there is a cause bigger than yourself and shows you the strength you never thought you had.”

Below is Maria’s full #IGNITETALK from our Fall 2019 Community Conference. As you read her words, ask yourself: what is my purpose?


Fall 2019 Community Conference - Three Pathways, One Mission

ImproveCareNow Community Conferences happen twice a year. While our community works together across the miles throughout the year, these in-person meetings provide an opportunity to work on developing and spreading QI and research skills and approaches; fueling our Network's use of data to drive and evaluate QI efforts; and developing partnerships that will lead to improved care processes and outcomes in pediatric IBD. Join us as we continue to co-develop our three pathways to work towards our common missionto transform the health, care and costs for all children and adolescents with Inflammatory Bowel Disease.


Spring 2019 Community Conference - Mastery and Innovation

ImproveCareNow Community Conferences happen twice a year. While our community works together across the miles throughout the year, these in-person conferences provide an opportunity to work on developing and spreading QI and research skills and approaches; fueling our Network's use of data to drive and evaluate QI efforts; and developing partnerships that will lead to improved care processes and outcomes in pediatric IBD.

March 29-31 we will welcome more than 200 patients, parents, clinicians, researchers, improvers, collaborators, and friends to the Spring 2019 Community Conference in Dallas, Texas and we hope you’ll join us too.


We call it the "My ICN Home" shirt.

Dear Improvers,

Hi, it’s Christian – co-chair of the PAC! I’m super excited to share that the PAC has selected a design for a new t-shirt, inspired by our work with ImproveCareNow. We call it the "My ICN Home" shirt. The concept for this shirt actually came from Spring 2018 Community Conference, and I can remember flying home after the conference, visualizing a design in my head. Here we are, one year later, and I finally brought that design to life and my fellow PAC members selected it as the design for our 2019 t-shirt! 


← Previous  1  2  3  4  5  6  7  8  9  Next →

Built by Veracity Media on NationBuilder