ImproveCareNow Feeding_tubes


Living with IBD and a feeding tube doesn't define you!

Quote about Feeding Tube Awareness. "Your feeding tube doesn't define who you are, it doesn't make you any less beautiful. You are still the same person you were before the feeding tube."

February 6-10, 2023 is Feeding Tube Awareness Week! I think it’s very clever to have something like this because it seems like most people are ashamed or feel insecure when having a feeding tube; it shouldn’t be like that. A feeding tube isn’t an embarrassing thing to have. We should be grateful to have such a thing when we need it, so we don’t get even more sick.


Top Ten LOOP posts of 2021

LOOP is an important venue for our community to keep #TalkingAboutIBD. It’s a place where #StoriesMatter - where they connect us, grow our confidence, validate our experiences, remind us we are not alone, and motivate us to continue improving together.

So far, in 2021, 70 stories have been shared #InTheLOOP. Patients, clinicians, parents, dietitians, researchers, and staff & leaders from across the ICN Community have written about IBD from their unique perspectives. They have covered topics ranging from support and advocacy to the importance of sharing openly and talking about IBD, from research and innovative projects to personal struggles, triumphs and hopes for the future.

Without further ado, here are the stories you read the most in 2021!


PAC Moment: A Positive Spin on Feeding Tubes

In honor of Feeding Tube Awareness Week (February 8-12, 2021), Makenna shared a little about her experience with a feeding tube and how she views it in a positive light!


PAC Moment: Holiday Stress & Eating

Last December, @ICNPatients shared how holiday stress and eating can affect IBD and their wellbeing. We are re-sharing today, because we are coming into the summer holiday season. With more gatherings and food offerings on the horizon, we hope you'll take a PAC moment to learn how patients with IBD might experience these celebrations:


Taking Care to the Next Level - How Patients are Making a Difference

Mahalakshmi (Maha) Parakala is an active member of the Patient Advisory Council and currently serves a co-leader of their recruitment taskforce. She is a LOOP contributor, has presented during ICN Community Conferences, has co-developed IBD resources, and recently co-hosted an episode of the new imPACt podcast. At our Spring Live Online Community Conference, Maha shared her story about discovering patient advocacy and the role it has played in her life during our Engagement Plenary Better Together: Growing our CIRCLE Community to Take Care to the Next Level.

Please enjoy Maha's presentation, which we have shared both as a video and in transcript form, below:


Feeding tubes are something more people should know about

Hi, I’m Makenna and I’m here to talk to you about Feeding Tubes. In my experience, they are something not a lot of people know about and I want to change that.


Just ask, don't stare

It is human nature to want to learn and question the world around us. It is natural for us to seek innovation, invent new things and express new theories. This is how we improve and how we have achieved the advances we have today. Nothing is wrong with this innate desire to learn and be curious, except when you’re the one that’s being questioned and or are the object of someone’s curiosity.


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