ImproveCareNow LOCC


Fall 2021 Live Online Community Conference - Stronger Together: Cultivating Our Shared Future

On Thursday, September 30 and Friday, October 1, ImproveCareNow will host their fourth Live Online Community Conference (LOCC). Sessions begin on September 30 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:30 PM ET when a casual Post Conference Exhibitor Time begins. Sessions resume again on October 1 at 10:00 AM ET and continue through the early part of the day, with a wrap up scheduled at 3:40 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including: IBD, identity and intersectionality; building community and co-producing during physical distancing; fatigue and sleep difficulties; body image & disordered eating; and cultivating safe and successful patient-provider relationships.


Fatigue, Sleep, and IBD - A Patient Perspective

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.


IGNITE - Taking the journey together.

Heidi's #IgniteTalk is a powerful reminder that while IBD may be part of your life, you don't have to do it alone. There is value in connecting with others to give and receive support, in #TalkingAboutIBD because every story matters and has the power to change someone else's story, in offering what you have learned on your journey in the hope that it can help another person outsmart IBD.

Be inspired by Heidi's #IgniteTalk 🔥 


IGNITE - Learning to give myself grace.

Fionna is an active member of the Patient Advisory Council, and is currently co-leading their communications taskforce. In this role, she is collaborating with other PAC members and ImproveCareNow to bring the stories and voices of the PAC to even more people in new and exciting ways. This spring she helped to launch the imPACt podcast, which is a new way to connect with and listen to young people talking about life with IBD. It is through the PAC that Fionna was recently able to tap into support, understanding and validation as she coped with a UC flare. She credits the PAC and this experience with helping her shift her mindset about healthy resilience, exploring the benefits of opening up and being vulnerable, and learning how to be flexible and give herself grace during tough times.

Be inspired by Fionna's #IgniteTalk 🔥


Taking Care to the Next Level - How Patients are Making a Difference

Mahalakshmi (Maha) Parakala is an active member of the Patient Advisory Council and currently serves a co-leader of their recruitment taskforce. She is a LOOP contributor, has presented during ICN Community Conferences, has co-developed IBD resources, and recently co-hosted an episode of the new imPACt podcast. At our Spring Live Online Community Conference, Maha shared her story about discovering patient advocacy and the role it has played in her life during our Engagement Plenary Better Together: Growing our CIRCLE Community to Take Care to the Next Level.

Please enjoy Maha's presentation, which we have shared both as a video and in transcript form, below:


Episode 4 of the imPACt podcast - Self-Advocacy & Transition

At the Spring ICN Community Conference, PAC members led breakout sessions on the important topics of self-advocacy and pediatric-to-adult transition. In this episode of the imPACt podcast we continue the conversation about these topics with special guest, and PAC alumna, Sami Kennedy. 


Spring 2021 Live Online Community Conference - Stronger Together: Reflection, Resilience, and Recovery

On Thursday, March 25 and Friday, March 26, ImproveCareNow will host their third LIVE Online Community Conference (LOCC). Sessions begin on March 25 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:00 PM ET when a causal Engagement and Social Hour begins. Sessions resume again on March 26 at 10:00 AM ET and continue through the first half of the day, with a wrap up scheduled at 1:20 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including advocacy for patients, families, and the community; managing mental health and IBD during the COVID-19 pandemic; recovering from flares; and food insecurity.


Reflections, Resilience, Re-Energizing and Re-Chartering

We are well past the first month of the new year, which has me reflecting on some of the challenges and transitions that ImproveCareNow faced as a network and community over the past year. Twenty-twenty is like no other year that I can remember. And while it presented us with many new obstacles as we struggled together to navigate a global pandemic, it also shone a light on inherent disparities and highlighted some of the opportunities waiting to be addressed in our systems. 


IGNITE – It starts with us.

Christian is co-chair of the Patient Advisory Council and a young black man living with Crohn's disease. He delivered a powerful #IgniteTalk at our Fall 2020 Live Online Community Conference. Read a written version of Christian’s Ignite Talk below:


Fall 2020 Live Online Community Conference: 2020 Vision - Better Together

On Thursday, September 24 & Friday, September 25, ImproveCareNow will host their second LIVE Online Community Conference (LOCC). Sessions begin on September 24 at 12:30 PM ET (11:30 AM CT, 10:30 AM MT, 9:30 AM PT) and continue through 5:00 PM ET when a causal Engagement and Social Hour begins. Sessions resume again on September 25 at 10:30 AM ET and continue throughout the day, with a wrap up scheduled for 4:35 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including diversity & equity, patient & family engagement, the effects of COVID-19 on health and care, and our path forward with new ICN leadership.


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