ImproveCareNow Pac


PAC Moment: Stress, self-care & school

PAC members weigh in on how they like to manage stress and take care of themselves leading up to school exams or the end of a semester. Here is what they said:


My niche will be to write about my experiences with different foods and UC

My name is Nikhil and I am 17 years old. I am currently a junior in high school, and I was diagnosed with ulcerative colitis in September 2016, when I was 12. One thing most of my friends don't know about me is that I absolutely love going to school. There is just something about learning new information that makes me feel great. 


Episode 3 of the imPACt Podcast

I had the pleasure of presenting at the Spring 2021 Live Online Community Conference last week on the topic of “Recovering from Flares”. Myself and other PAC members discussed things like: what a flare looks like, how a patient can anticipate a flare and what steps they can take in communicating with their providers and family to avoid serious health repercussions. Our goal was to really emphasize proactivity and empower patients to take charge of their health. 

I'm really excited about this topic and have shared a bit more about it below, including how you can listen as we continue the conversation in Episode 3 of the imPACt podcast this Friday.


Shaping the way I view Crohn's

Hello! My name is Jennifer and I am a 16 year old high school student who also works part time at a pizza restaurant. I love meeting new people and enjoy engaging in activities outside of my comfort zone.


Feeding tubes are something more people should know about

Hi, I’m Makenna and I’m here to talk to you about Feeding Tubes. In my experience, they are something not a lot of people know about and I want to change that.


Episode 2 of the imPACt Podcast

Hi, I’m Maha, one of the PAC members you’ll hear talking about IBD in the second episode of our imPACt podcast! 


I've always admired other people’s strength they display when faced with difficult circumstances.

Hi everyone! My name is Ryleigh, I'm 17, and I have Crohn's disease. I'm currently a senior in high school and plan to attend college in the fall. Something that most people don't know about me is that I used to be able to name over one hundred dog breeds when I was little, but I've forgotten a lot of them now.


PAC Moment: What the PAC Means to Me

IBD can feel lonely and isolating. It can really help to connect with and talk to other people who understand because they live with IBD too. Fionna shares what being part of the Patient Advisory Council (PAC) means to her and how it has influenced her IBD journey:


For so long I hid my IBD

Makenna Martin is my name and I am looking forward to attending technical school in the fall of 2021. I love researching just about anything and everything when I have the time. Lately I have spent a lot of time researching the difference between TPN (Total Parenteral Nutrition) and Enteral feedings. They both give you what you need, just one goes through a vein and the other straight to the stomach. 


Episode 1 of the imPACt Podcast

Hey, it’s Robbie! I’m a member of the Patient Advisory Council (PAC) and your host for Episode 1 of the imPACt podcast today. The PAC and I are beyond excited to share our first full episode of the imPACt podcast with you! Sharing the perspectives of patients and caregivers is our goal, and imPACt truly brings a new, modern twist on allowing others to listen to perspectives of those within the ICN community.


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