ImproveCareNow Pac


Episode 16 of the imPACt Podcast - Infusions, Injections, School & Life

Hi, it's Vanessa from the PAC! School is busy right now, but fellow-PAC-member, Fionna and I made time to sit down and record a podcast episode where we chat about personal experiences we've each had changing our IBD treatment plans and how this fits into school and life for us.


IGNITE - I don't have to be healthy to be happy.

When Shira joined the Patient Advisory Council - in October 2020 - she wrote that she was looking for a place where she could use her voice to influence the quality of care other people receive - to change someone else's life for the better. Since then, she has set about doing just that - co-chairing the PAC's Advocacy Taskforce and joining the imPACt podcast where she has contributed to patient-led discussions on topics ranging from Parent-Patient Relationships to Arthritis to Queerness & IBD. In her Fall 2021 Live Online Community Conference Ignite Talk, Shira brought us deeper into her IBD journey by sharing a raw and beautiful account of her own self-inquiry and discovery, of learning to lean in during the dark moments and hold space for the hard feelings IBD brings. She challenged us, as she has challenged herself, to acknowledge that, yes, IBD is a burden and it brings a certain loss of control, but it does not mean the loss of one's happiness or identity.

Be inspired by Shira's #IgniteTalk 🔥 


I've Learned that I am Stronger than I Thought

My name is Lordis, I am a 16 year old senior in High School and I have Crohn’s disease. I work at TJ Maxx part time, as well as with children at my local community center. A lot of people don’t know that I like to paint and make bracelets.


Exercise goes hand-in-hand with a healthy, balanced diet

In my first post I said that I wanted to write about my experience with foods that I eat as a vegetarian living with ulcerative colitis. For this post I felt like writing about something that's not food-related, but that I think goes hand-in-hand with a healthy, balanced diet. Today, I'm writing about exercise.


Episode 15 of the imPACt Podcast - Conference Preview

This week's imPACt podcast episode is all about the upcoming Fall 2021 ImproveCareNow Live Online Community Conference!


Episode 14 of the imPACt podcast - IBD & Patient-Parent Relationships

Check out this episode of imPACt, where PAC and Parent Working Group members chat about how they've experienced the evolution of the patient-parent relationships and what this looks like in the context of IBD care.


Fatigue, Sleep, and IBD - A Patient Perspective

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.


PAC Moment: IBD, College & Routines

It’s back to school time! For me (Fionna), accommodations and communicating with my professors have been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.


Episode 13 of the imPACt podcast - IBD and Arthritis

I’m Shira, one of the Advocacy Co-Leads for the PAC. Listen in as fellow PAC member, Caitlyn, and I talk with Pediatric Gastroenterologist Dr. Rachel Bensen and Pediatric Rheumatology Fellow Dr. Sara Patrizi about IBD Associated Arthritis.

 


No bones about it - Vitamin D & IBD

Getting enough vitamin D is especially important for growing kids, because it is involved in bone growth, bone density and bone strength, and in growth itself. Vitamin D also appears to have other health benefits.


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