ImproveCareNow Pac


Top Ten LOOP Posts of 2018

LOOP is making an impression on the IBD community!

We enter December 2018 with 60 new posts, shared by 40 ImproveCareNow community members! And 27 people posted for the very first time in 2018. Posts covered topics like: IBD research, mental health, new PAC member intros, ICN event updates, what I wish you knew, and many honest accounts of life with IBD.

We are thankful for each and every one of these stories. Here are the top 10, most viewed, posts of 2018!


Being an advocate when I don’t feel like one

Sometimes I feel like people expect me to always act a certain way because I have Crohn’s. Maybe you’re thinking I mean people understand and expect me to always be tired or running to the bathroom. But that’s not it; it’s that I feel like they expect me to be happy, bubbly, positive – like I am when I’m advocating.


PAC Body Image Toolkit

Body image is a topic that Inflammatory Bowel Disease patients don’t often talk about due to the embarrassment and fear associated with opening up about their experiences with their Crohn’s disease or ulcerative colitis.

It can be incredibly frustrating to feel like you have no control over how your body works or looks, especially given all the messages we receive from the media about how a body ‘should’ look and behave. We wanted to create the Body Image Toolkit as a way to express our experiences, provide tips, and start conversations about body image & IBD. It’s important to know that we’re not alone in our feelings, and that there are so many people who understand what we’re going through! 


PAC Social Media Week Recap - CC18F

ICYMI – PAC hosted another Social Media Week leading up to the Fall 2018 ImproveCareNow Community Conference. Social Media Week is one way we get excited for the Community Conference! It consists of PAC members putting together a series of personal and highly-focused quotes, pictures and stories, which we share widely to raise awareness of ImproveCareNow and IBD. In the past, we’ve answered questions like: "What is your IBD story?" "What or who motivates you to keep on fighting?" and "How do you/or the PAC raise awareness for IBD?" and in the Spring members shared what the ICN Core Values meant to them. For the Fall CC we wanted to share stories and examples of how we are Better Together.

These are our stories:


Triumph Cords

Hi everyone, my name is Natalie and I just graduated from the University of Cincinnati (UC) this August with a degree in Environmental Studies and minors in Psychology and Biology. On my own time I am a health & environmental advocate and enjoy fighting for awareness & understanding of things people may not be educated on (like Crohn’s disease, which I also have).

Thanks to the UC journalism department, I was prompted to write a short piece for a video and article I was featured in for my school. It was about overcoming adversity and making it to graduation, and I wanted to share it with you.


Sustenance, for a healthy life

My name is Maddie. I am 16 years old and I have Crohn’s disease (CD). I have used nutritional therapy as a primary treatment for my Crohn’s disease since my diagnosis at the age of 13. Nutritional therapy has changed my life – both my health and my relationship with food.


Dealing with a chronic illness can really make a person grow up!

My name is Salma and I am 16 years old. I am a senior in High School. I was diagnosed with Crohn's disease when I was six years old, after being in and out of the hospital for two years. I was actually born in Casablanca, Morocco, but my family and I moved to the U.S. when I was three.

“You feel your strength in the experience of pain.”

This quote by Jim Morrison is one I can relate to when I think about my experience with a chronic illness, even with all the struggles I write about in this post.


Patient's Intuition

Last month, I had the most entertaining ileoscopy in history (which is saying a lot since I was sedated for most of it). Let me give you the background on this:


The #AerieREAL Campaign

As a young woman who has had an ostomy for nearly five years, I know the struggle of not feeling completely confident and beautiful. Ostomy or not, a majority of teenagers and young adults struggle with confidence and body image. That’s why I was so excited to see Aerie, a company that has a reputation for not touching up their photos and for representing women of all shapes, sizes, and skin colors, take their #AerieREAL campaign to the next level. In their latest set of images, Aerie is representing women with various disabilities and illnesses, including a beautiful woman with an insulin pump, a stunning woman in a wheelchair, a graceful woman with Down Syndrome, and many many more wonderful ladies.


Personal experience with nutritional interventions

On June 5, 2017, my single, overweight suitcase and I boarded a plane flying from Miami to London Heathrow. Over the course of the next six months, I shadowed and worked with the IBD Team at Great Ormond Street Hospital, a tertiary children’s hospital in the center of London. As a Political Science major who intends to go into medicine, the opportunity to study how IBD patients were being cared for under the UK’s health system was too enticing.


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