ImproveCareNow PAC_moments
PAC Moment - New patient-developed one-page resources
Patient Advisory Council members have been crowdsourcing their wisdom, tips, and tricks about IBD topics that are timely and important to them. Using their insights, they have been developing brief, helpful one-pagers that are then reviewed by various members of the ICN community such as dietitians and psychosocial providers. Take a PAC Moment to check out new patient-developed resources!
PAC Moment - Acing Injections!
Injections are a common way to receive medication for IBD patients. It can be a nerve-wracking experience, so PAC experts have compiled a list of tips and tricks - for patients, by patients - that can help make your injections go as smoothly as possible!
PAC Moment - Patient Perspectives in IBD Care
The Patient Advisory Council (PAC) is continuously focused on advocating for IBD patients and promoting the patient perspective in IBD care. PAC Projects (like toolkits and podcasts) are one way we do this. Here are some of the things we've been working on lately:
PAC Moment: IBD, College & Routines
It’s back to school time! For Fionna accommodations and communicating with her professors has been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.
PAC Moment: IBD & Sun Safety
Sun safety is important for everyone, but if you are living with IBD (and taking certain medications) it may be even more important for you to protect your skin from the sun.
PAC Moment: A Positive Spin on Feeding Tubes
In honor of Feeding Tube Awareness Week (February 8-12, 2021), Makenna shared a little about her experience with a feeding tube and how she views it in a positive light!
PAC Moment: Holiday Stress & Eating
Last December, @ICNPatients shared how holiday stress and eating can affect IBD and their wellbeing. We are re-sharing today, because we are coming into the summer holiday season. With more gatherings and food offerings on the horizon, we hope you'll take a PAC moment to learn how patients with IBD might experience these celebrations:
PAC Moment: Listening, Validation & Understanding
PAC members weigh in on how friends and family can best support them when they share about their IBD or are having a hard time. Here's what they say:
PAC Moment: Stress, self-care & school
PAC members weigh in on how they like to manage stress and take care of themselves leading up to school exams or the end of a semester. Here is what they said: