ImproveCareNow PAC_moments
PAC Moment - Patient Perspectives in IBD Care
The Patient Advisory Council (PAC) is continuously focused on advocating for IBD patients and promoting the patient perspective in IBD care. PAC Projects (like toolkits and podcasts) are one way we do this. Here are some of the things we've been working on lately:
PAC Moment: IBD & Sun Safety
Sun safety is important for everyone, but if you are living with IBD (and taking certain medications) it may be even more important for you to protect your skin from the sun.
PAC Moment: A Positive Spin on Feeding Tubes
In honor of Feeding Tube Awareness Week (February 8-12, 2021), Makenna shared a little about her experience with a feeding tube and how she views it in a positive light!
PAC Moment: Holiday Stress & Eating
Last December, @ICNPatients shared how holiday stress and eating can affect IBD and their wellbeing. We are re-sharing today, because we are coming into the summer holiday season. With more gatherings and food offerings on the horizon, we hope you'll take a PAC moment to learn how patients with IBD might experience these celebrations:
PAC Moment: Listening, Validation & Understanding
PAC members weigh in on how friends and family can best support them when they share about their IBD or are having a hard time. Here's what they say:
PAC Moment: Stress, self-care & school
PAC members weigh in on how they like to manage stress and take care of themselves leading up to school exams or the end of a semester. Here is what they said:
PAC Moment: What the PAC Means to Me
IBD can feel lonely and isolating. It can really help to connect with and talk to other people who understand because they live with IBD too. Fionna shares what being part of the Patient Advisory Council (PAC) means to her and how it has influenced her IBD journey:
PAC Moment: IBD & How Treatments Impact Daily Life
IBD treatment plans are as varied as the patients who live with and follow them. Vanessa shares her experience with IBD and how her treatments impact her daily life: