ImproveCareNow Patients
Episode 14 of the imPACt podcast - IBD & Patient-Parent Relationships
Check out this episode of imPACt, where PAC and Parent Working Group members chat about how they've experienced the evolution of the patient-parent relationships and what this looks like in the context of IBD care.
Fatigue, Sleep, and IBD - A Patient Perspective
In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.
PAC Moment: IBD, College & Routines
It’s back to school time! For Fionna accommodations and communicating with her professors has been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.
No bones about it - Vitamin D & IBD
Getting enough vitamin D is especially important for growing kids, because it is involved in bone growth, bone density and bone strength, and in growth itself. Vitamin D also appears to have other health benefits.
Episode 11 of the imPACt podcast - Transitioning to Adult Care
Episode 11 of the imPACt podcast brings together young adult PAC members and Dr. Michele Maddux, a clinical psychologist at Children’s Mercy Hospital, for a candid discussion about the many aspects of transitioning from pediatric to adult IBD care.
My goal is to eventually help other teens cope with IBD while also coping with mental issues
I'm Rachel, but go by Rach. I'm a 17-year-old rising senior in high school, and about to start a job at Panera Bread. I was diagnosed with Crohn’s in 2016 at age 13. Most people don't know that I love unicorns!! ♥
Energy bars have been vital on my IBD journey.
Today, I am writing about another food that I think has been vital along my IBD journey: energy bars. Whether you believe these bars truly give you instant energy or not, they have been extremely helpful (and tasty) to me at many different points in time.
PAC Moment: IBD & Sun Safety
Sun safety is important for everyone, but if you are living with IBD (and taking certain medications) it may be even more important for you to protect your skin from the sun.