It can be tempting to use a chronic illness as a shield, but what happens when you choose participation over avoidance? For a long time, Justin found himself caught in the "blame game," using Crohn's disease as a "get out of jail free card" to excuse everyday challenges like oversleeping or missing college deadlines. This avoidance ultimately led to a mindset where he felt less capable in school, life, and his relationships because of his IBD. At our Spring 2026 Live Online Community Conference, Justin spoke about his realization that to move forward, he needed to stop blaming a part of himself he couldn't change. Instead, he chose to get involved with ImproveCareNow and the Patient Advisory Council (PAC), who helped Justin transform into a motivated and outgoing advocate. Through this active participation and his choice to help others, he discovered just how capable he truly is, finding success both as a PAC Co-Chair and in his collegiate endeavors. His #IgniteTalk is a powerful reminder that while we cannot change an IBD diagnosis, choosing to put away the blame game can help us realize our true potential.

Be inspired by Justin's #IgniteTalk 🔥

My name is Leah, and I am a parent on the ImproveCareNow Parent/Family Advisory Council (PFAC) with two children diagnosed with Crohn’s disease. In 2016, our world turned upside down when both our children were diagnosed with IBD. We were nervous, scared, and overwhelmed facing not one but two Crohn’s diagnoses. Our wonderful GI, Dr. Suskind, discussed various treatment options, one of which included a dietary therapy approach that he had been newly researching called the Specific Carbohydrate Diet (SCD). I went home from the hospital armed with food lists and determination and got started right away on a new way of cooking.

On Rhys' very first day home from the hospital, his Mom and Dad knew something wasn't right. This is Rhys' story in his Mom, Colby's words.

Meet Antonio and read his story about growing up with Crohn's and how it has evolved from a burden into something that is inspiring a future career in medicine.

Hi! My name is Isabella, and I was diagnosed in October of 2023 with Crohn's disease. I began my treatment with Remicade infusions which helped bring my inflammation levels down. Unfortunately, I was still experiencing symptoms caused by a stricture in my ileocecal valve. This led me to visit a dietitian who recommended a dietary therapy called the Specific Carbohydrate Diet (SCD). With the SCD, I saw extreme symptom improvement and began to live a life free from the daily struggle of sickness and stomach aches. In June of 2024, I also underwent an ileocecal resection to remove all stricturing. Since then, I have been in total remission, and living a happy and healthy life, enjoying hobbies such as cooking, volunteering in my community, working at a local children's salon, and spending time with friends!

Hi everyone. My name is Elizabeth and I've been a member of the Patient Advisory Council (PAC) for about a year now. I'm excited that I will soon be serving the ICN community as PAC Co-Chair! Here's a bit about me and what I hope to work on during my time co-leading the PAC, and what I see as my main challenge. 

Before joining ImproveCareNow in June 2025, Becky Johnson Rescola served as Senior Vice President of Education and Community Engagement at the Crohn's & Colitis Foundation. Throughout her 15-year tenure with the Foundation, she has led community-based patient and professional education, patient/caregiver support groups, healthcare professional engagement, community-based equity programs, and Camp Oasis. She has worked with many institutions, clinical professionals, and families across the pediatric IBD community throughout her career.

Get #InTheLOOP with ICN's new Executive Director 💫

For families navigating the complexities of chronic illness, Maggie's story offers a powerful reflection. Before her Crohn's diagnosis at sixteen, Maggie, a vibrant "theater kid," found solace and strength in the Hamilton lyric: "I am the one thing in life I can control." This deeply personal belief in her independence was profoundly challenged when her own body became unpredictable. What happens when the very foundation of self-reliance is shaken by an illness that defies control? At our Spring 2025 Live Online Community Conference, Maggie bravely shared her journey, offering insights into adapting to a new normal, redefining strength, and discovering that true resilience often lies not in control itself, but in the courageous choice of how to respond when life takes an unexpected turn. Her story is a testament to the power and resiliency of the human spirit within our shared chronic illness community.

Be inspired by Maggie's #IgniteTalk 🔥

My name is Adrian, and I was diagnosed with Crohn’s disease when I was 9 years old. For several months before I was diagnosed, I was slowly losing weight, growing paler, and having intermittent stomach aches. I would be in terrible pain, fall to the floor, and then it would pass almost as quickly as it came on. Neither my parents nor I thought it was anything serious at first. Initially my mom thought maybe I was lactose intolerant, so we cut dairy out for a while, which was a disappointment because my favorite foods were cereal and yogurt. Removing dairy, however, did not help.

Hi, I am Samantha and I have ulcerative colitis. I was diagnosed a little over a year ago and since then I have been trying to find a way to manage my symptoms and live a healthy life. I am looking forward to starting college where I will be studying aviation, which is a huge passion of mine.

My greatest struggle related to my UC is finding ways to not let it affect my daily life.