ImproveCareNow Talking_about_ibd


Episode 29 of the imPACt podcast - Why Storytelling Matters

“If you just sit and give folks a list of facts, they can debate those facts or try to refute them. They can't debate your story. Because it's your story." - Chris Keck on the imPACt Podcast 

Join me (Vanessa), Becky and Fionna for our conversation with Chris Keck from ImproveCareNow. We discuss storytelling - particularly personal narratives - and why stories matter.


Episode 28 of the imPACt podcast - IBS in IBD

IBS (irritable bowel syndrome) and IBD (inflammatory bowel disease) are different disorders that intersect sometimes. Join Shira and I (Maddie) as we share our experiences and talk with Carlo Di Lorenzo, MD about IBS, IBD, and the complex and fascinating interactions between the brain and the gut.


Episode 27 of the imPACt podcast - Mental Health and IBD Flares

Welcome to the second episode in a 3-podcast series we're doing in collaboration with the ICN SWAP group (SWAP stands for Social Workers & Psychologists). In this episode, you'll hear me (Ryleigh) and my fellow PAC member Avery talking with Lauren Potthoff, PhD - an IBD psychologist at Lurie Children's in Chicago - about mental health during IBD flares.


Episode 26 of the imPACt podcast - IBD and Medical Trauma

Join me (Autumn), Henry & Samantha for a conversation about medical trauma in IBD with ICN SWAP (Social Workers & Psychologists) group members Dr. Jennie David (licensed clinical pediatric IBD psychologist) and Dr. Alexandra Fuss. We are honored to have them join us to discuss this important topic.


Crohn's disease has ultimately, and endlessly, reminded me to nurture and love the body I have been given and led me to my passion for healthcare

I was diagnosed with Crohn's disease at six years old, a year after I started experiencing symptoms. I have now been managing this chronic illness for 16 years! In addition to being diagnosed young, I was living in the Netherlands at the time -- while I wasn't born here, all of my family is from here and Dutch was my first language.


Episode 25 of the imPACt podcast - IBD, Meds, Biologics...Oh My!

Medications and biologic drugs are often a big part of managing IBD. Shira and I (Fionna) were texting about our personal experiences with meds and biologics when we realized others in the IBD community might benefit from being able to listen in on our conversation. So, we decided to make a podcast episode about it! 


The story of "Up and Adam" - my picture book for kids with IBD

Hi, my name is Adam, and I am a 24-year-old medical student. I was diagnosed with ulcerative colitis when I was two years old and had my colon removed when I was 12. Recently, I published a children's picture book, Up and Adam, about my childhood experiences facing IBD with a positive attitude. This is the story of how and why I created Up and Adam and how I hope my book can help young kids by offering a tangible connection to someone who knows what they're going through and can remind them they are not alone. 


Episode 24 of the imPACt podcast - Drs. Sunseri & Crawford talk Exclusive Enteral Nutrition with the PAC

Hello everyone - it's Fionna from the Patient Advisory Council communications team. I'm excited to share that after a bit of a break the PAC is back with an exciting new episode of our imPACt podcast where we chat about a commonly used, but often not discussed, IBD nutritional therapy.


Crohn’s disease taught me not to be so quick to blame myself without knowing the whole story!

Hi! My name is Sanjana and I was recently diagnosed with Crohn’s disease in April 2021. A fun fact about me is that I love doing art!


Top 4 Things to Know When You're Diagnosed with IBD

When I was diagnosed with ulcerative colitis at 14 years old, I was shocked. I was lucky enough to already have some familiarity with the disease, but I never thought it would happen to me. I had every single textbook symptom, but I still felt so numb and so distant from the new reality I had to face. This isn’t an uncommon feeling, and it can be really hard to know where to start. IBD is a complex disease, so here are some things I found helpful while learning to navigate those first few months after my diagnosis.


← Previous  1  2  3  4  5  6  7  8  9    23  24  Next →

Built by Veracity Media on NationBuilder