ImproveCareNow Talking_about_ibd


Fatigue, Sleep, and IBD - A Patient Perspective

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.


PAC Moment: IBD, College & Routines

It’s back to school time! For me (Fionna), accommodations and communicating with my professors have been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.


Episode 13 of the imPACt podcast - IBD and Arthritis

I’m Shira, one of the Advocacy Co-Leads for the PAC. Listen in as fellow PAC member, Caitlyn, and I talk with Pediatric Gastroenterologist Dr. Rachel Bensen and Pediatric Rheumatology Fellow Dr. Sara Patrizi about IBD Associated Arthritis.

 


No bones about it - Vitamin D & IBD

Getting enough vitamin D is especially important for growing kids, because it is involved in bone growth, bone density and bone strength, and in growth itself. Vitamin D also appears to have other health benefits.


Episode 11 of the imPACt podcast - Transitioning to Adult Care

Episode 11 of the imPACt podcast brings together young adult PAC members and Dr. Michele Maddux, a clinical psychologist at Children’s Mercy Hospital, for a candid discussion about the many aspects of transitioning from pediatric to adult IBD care.


Episode 12 of the imPACt Podcast - Back to School with IBD

Listen in as I (Vanessa) join PAC members Elise, Leela and Madeline for a chat about heading back to school with IBD.


My goal is to eventually help other teens cope with IBD while also coping with mental issues

I'm Rachel, but go by Rach. I'm a 17-year-old rising senior in high school, and about to start a job at Panera Bread. I was diagnosed with Crohn’s in 2016 at age 13. Most people don't know that I love unicorns!! ♥


Energy bars have been vital on my IBD journey.

Today, I am writing about another food that I think has been vital along my IBD journey: energy bars. Whether you believe these bars truly give you instant energy or not, they have been extremely helpful (and tasty) to me at many different points in time.


PAC Moment: IBD & Sun Safety

Sun safety is important for everyone, but if you are living with IBD (and taking certain medications) it may be even more important for you to protect your skin from the sun.


Episode 10 of the imPACt podcast - Body Image & Relationships with Food

Join us (Maddie, Fionna & Maha) as we build on a discussion we stated in Episode 2 of the podcast about IBD, Body Image and Relationships with Food


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