ImproveCareNow Ulcerative_colitis


Episode 30 of the imPACt podcast - High School, College, Grad School & IBD

Join me (Vanessa), Hannah and Fionna for our conversation about IBD during different stages of schooling. Between the three of us, we have lived experiences with both Crohn's disease and ulcerative colitis, with being diagnosed at different life stages (during early education and in high school) and with balancing high school, college and grad school with IBD.


Exploring Fatigue in Pediatric IBD

Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.

A new research project aims to learn more about Sleep & Fatigue in Pediatric IBD.


Episode 25 of the imPACt podcast - IBD, Meds, Biologics...Oh My!

Medications and biologic drugs are often a big part of managing IBD. Shira and I (Fionna) were texting about our personal experiences with meds and biologics when we realized others in the IBD community might benefit from being able to listen in on our conversation. So, we decided to make a podcast episode about it! 



The story of "Up and Adam" - my picture book for kids with IBD

Hi, my name is Adam, and I am a 24-year-old medical student. I was diagnosed with ulcerative colitis when I was two years old and had my colon removed when I was 12. Recently, I published a children's picture book, Up and Adam, about my childhood experiences facing IBD with a positive attitude. This is the story of how and why I created Up and Adam and how I hope my book can help young kids by offering a tangible connection to someone who knows what they're going through and can remind them they are not alone. 


Top 4 Things to Know When You're Diagnosed with IBD

When I was diagnosed with ulcerative colitis at 14 years old, I was shocked. I was lucky enough to already have some familiarity with the disease, but I never thought it would happen to me. I had every single textbook symptom, but I still felt so numb and so distant from the new reality I had to face. This isn’t an uncommon feeling, and it can be really hard to know where to start. IBD is a complex disease, so here are some things I found helpful while learning to navigate those first few months after my diagnosis.


Episode 21 of the imPACt Podcast - J-Pouches

Hi all, it's Hannah. I've written about ostomies and j-pouches here on LOOP before. Last June, I shared What I Wish I Knew About J-Pouch/Ostomy Takedown Surgery and it ended up being the second most-read post of 2021. So, this topic is pretty important to our community. And that's why we decided to make a podcast episode about it.


I never liked avocados until after my UC diagnosis

I never liked them, but when my doctor told me avocados are filled with good fats and that they are a wholesome food loaded with nutrients, I decided to give them a chance. I was surprised by how good they tasted!


Gluten free pasta and vegan pesto are part of my UC diet

I've been sharing my experience with foods that I eat as a vegetarian living with ulcerative colitis. Today, I'm writing about my favorite way to eat pasta (hint: it's green). 


"The Sudden Obliteration of Expectation": Adjusting to My "New Normal" with IBD

It happens in a series of moments. Sleepless nights. Weight loss. Pain that gets worse with every day. Seeing test results of climbing inflammation numbers. I describe it distilled into one single moment: waking up from my first colonoscopy and hearing the words “ulcerative colitis.”


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