Join our CIRCLE
Thank you for joining the ImproveCareNow Community! Fill out this form to sign up for additional emails, including updates on research or notifications when we post to our blog, LOOP.
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>>Share your myICN story to LOOP
We all have a voice - patients, parents, clinicians and researchers. Answer the following prompt in the feedback form, or tell us your own story about living or caring for someone with IBD.
What is one thing you want people to know about Crohn's disease or ulcerative colitis?
By submitting this form, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
Parent/Family Advisory Council
As parents and guardians of children with Crohn’s disease and ulcerative colitis, the Parent/Family Advisory Council (PFAC) (formally known as the Parent Working Group (PWG)) is committed to enhancing the quality of life for the young people and their families who live with IBD. In partnership with the ImproveCareNow Network and the local Care Center teams, the PFAC empowers patients and their families to thrive in their lives by improving the quality and outcomes of IBD care. 
You can make a difference - sign up to receive emails from the Parent/Family Advisory Council and learn more! We'll be in touch!
Help the PFAC grow! Print out and share our brochure!
The PFAC recognizes the value of connecting parents across ImproveCareNow to enable shared progress and involvement of parent partners. With this end in mind, The PFAC Membership Team created the PWG Directory. Parents who would like to receive and/or be included in the directory should sign up for the PFAC. Once an active member (having attended one or more PFAC meetings), you are eligible to receive and be added to the directory. Once eligible, please email [email protected] to request your copy and/or let us know you'd like to be included in the directory.
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By signing up, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
Patient Advisory Council
The Patient Advisory Council (PAC) is a group of young (14 years and up), passionate and motivated patients with IBD. Together, the PAC is a voice for all patients that receive care at an ImproveCareNow Center. They contribute to research studies and the development of health care innovations; they share valuable experiences with healthcare professionals, researchers and others; and they raise awareness of IBD and ImproveCareNow by writing stories on LOOP and other social media channels.
Follow the PAC on these channels!
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Support the PAC - Buy ImproveCareNow & PAC Merchandise
Check out IBD Resources created by the PAC
Frequently Asked Questions about the PAC
Meet some of our newest members of the PAC!
You can make a difference - learn how by signing up today. We'll be in touch!
By clicking "save your info" you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
Engage With Patients & Parents
Engage with the Patient Advisory Council and Parent/Family Advisory Council for Research
Interested in involving patients or parents in your study as advisors or co-investigators? Would you like to have a consultation on your study proposal’s engagement plan? Engagement can help a study be more patient-centered, trustworthy and ultimately lead to wider dissemination of results to the broader IBD community. Complete the form to connect with an engagement group and learn more about engagement opportunities.
Learn more about the PAC/PFAC.
Parents and patients can be involved in a variety of ways throughout the design and implementation of a study. Our Research Co-Production Guide offers ideas about how you can involve parents and patients in your study, and provides examples of past research coproduction in the ImproveCareNow network.
Download the Research Co-Production Guide presentation.
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By submitting this form, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
Join the ImproveCareNow Network
Currently about 55% of children and youth with Crohn's disease and ulcerative colitis who are cared for by pediatric gastroenterologists in the US are at participating ImproveCareNow centers. ImproveCareNow centers range from small private practices to the largest and best children’s hospitals.
We invite all centers regularly caring for pediatric patients with Crohn’s disease and ulcerative colitis to join the ImproveCareNow Network. Check our Care Center map to see if your hospital or clinic is already part of ImproveCareNow.
Why Join?
Get access to:
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Proven quality improvement training & tools
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Performance, population management & pre-visit planning reports
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Community conferences & monthly webinars
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Collaborative Improvement Community
Fill out the form on this page to request a telephone appointment and learn more about how your center can join!
Are you an individual looking for ways to improve care for kids with IBD? Get Involved & find the opportunity that is right for you!
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By submitting this form, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
Want to make a difference?
Join the ImproveCareNow Community and help even more children and youth with Crohn's disease and ulcerative colitis get better right now.
There are many ways you can make a difference!
First, enter your name & email to join our CIRCLE. Then we'll share other opportunities to get involved!
By clicking submit, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.
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