ImproveCareNow supports care centers in creating more reliable and proactive systems of care for pediatric patients with Crohn's disease and ulcerative colitis. In addition to receiving robust quality improvement (QI) training, physicians, other care providers and parent and patient partners benefit from active collaboration with other centers. This collaborative approach to medicine allows new ideas and best practices to be identified and introduced into the care delivery process much faster—improving care for patients quickly. ImproveCareNow registry data enables these teams to analyze care and outcomes across their entire patient population and to target group of patients and individuals with tailored interventions. Below is a listing of some of our current quality improvement projects.

Click on a project name to view additional information.

QI Fundamentals is a semi-annual training series, consisting of seven, hour-long webinars over several months, which provides new care centers, or new staff at established care centers, an introduction to quality improvement methods, ImproveCareNow operations and interventions, and an opportunity to begin the community building that is a hallmark of how we work together. Each new series culminates with attendance at the next ImproveCareNow Community Conference. 

ImproveCareNow Learning Labs are small groups of care centers with key characteristics in common or who are working on similar issues. Our Learning Lab structure enables centers to work more closely together to catalyze improvement and to maintain personal connections as the Network grows.  With the Pathway to Mastery initiative, Learning Labs are assigned to a designated pathway (Foundations, Achieving Remission, Achieving Sustained Remission) to drive improvement with a similar area of interest. Aims for each Learning Lab are listed below. 

Foundations

Fundamentals - Focus on becoming an active participant in ImproveCareNow, achieving site activation in less than 90 days (with Institutional Review Board reliance, and participation and data use agreement executed) and successfully enrolling 75 percent of IBD population into registry

Reinforcing Foundations - Register more than 75% of IBD population in less than 9 months of site activation

Achieving Remission

Population Management - Increase the percentage of centers reliably implementing established population management process

Multidisciplinary Pre-Visit Planning - Increase the percentage of centers reliably implementing an established pre-visit planning process

Achieving Sustained Remission

Adherence - By addressing barriers, participating centers will optimize therapy and treatment adherence to increase the percentage of IBD patients in sustained clinical remission

Clinical Standardization / Personalized Care - Participating centers will develop and standardize care pathways to increase the percentage of IBD patients in sustained clinical remission

 

These groups meet monthly via webinar to share ideas and experiences, collaborate around new topics to support their Pathway, and work through any barriers they face. They also meet in person at ImproveCareNow Community Conferences.  Each group is led by a Quality Improvement Coach (QIC) who provides support, feedback, and new QI tools and helps nurture peer mentoring within the group.

Additional Links

The ImproveCareNow Transition & Transfer workgroups, formed in 2015, aim to apply quality improvement methodology to testing, implementing, and spreading innovations related to the transition and transfer of care processes.  The work groups aim to develop a structure and plan for identifying, testing, and measuring the impact of tools and strategies related to improving transition to adulthood and transfer to adult care within the Network.  The work groups will continue to work toward standardizing transfer content as well as collaborating with others on useful educational information and practical tools for a successful transition process.

Transition Projects

  • Developing a survey for transition barriers

More Info

Transfer Projects

  • Doc4me App
  • Develop a template to compile a patient’s medical history & handoff

Completed Transfer Projects


Contact us for more information about the Transition & Transfer Workgroups. 

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