ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Patient & Caregiver ImproveCareNow Immersion
Would you like a better understanding of how ImproveCareNow works to transform the health, care and costs for those living with IBD? Join the Parent/Family Advisory Council and Patient Advisory Council on Monday, October 9 from 7-8 p.m. ET (4 - 5 p.m. PT) for their next Immersion event. During this virtual webinar, ImproveCareNow leaders will help new patient & parent/caregiver partners orient to the culture of ICN and learn more about how we improve care. Attendees will leave Immersion with a greater understanding of how ICN makes a difference; how their efforts matter; and develop relationships within the ImproveCareNow Community. There is no cost to attend Patient & Caregiver Immersion.
Register here for ICN Immersion
Fall 2023 Community Conference
Please join us in Louisville, Kentucky for the Fall 2023 Community Conference on October 25 - 27. Our theme for this event is "Building Our Shared Future." The standard cost for an in-person conference is $825.
Register to attend
Louisville & Hotel
- Book your room at the Louisville Marriott Downtown by September 29 to get the discounted rate.
- Know Before You Go! Check out this guide of Louisville's Top Travel Tips.
- Flying to Louisville - Check out the available non-stop flight options to Louisville's International Airport.
Highlights from Agenda
Download the Draft Agenda
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Wed., October 25: Networking
- Patient Advisory Council Mocktail Hour - For Patients & Providers
- Pre-Conference Welcome Reception / Engagement Fair
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Thurs., October 26: Pre-Conference
- Symposium sponsored by Nestlé Health Science: Advances in Dietary Therapy For Crohn's Disease
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Thurs., October 26: Community Conference
- Clinical Plenary: The Value of Observational Research in IBD
- Engagement Plenary: Creation and Benefit of a Patient-Led IBD Junior Board
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Fri., October 27: Special Breakfast Gatherings
- Coordinators, PFAC/Physicians, Community
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Fri., October 27: Community Conference
- Research Plenary: COMBINE Results: What Does it Mean for Practice?
- Psychosocial Plenary: Depression Screening: Impact on Care, Setting up for Success and Beyond
Conference Justification Letter
- To support clinicians in making the case for local funding to participate in the Community Conference, we have created a Conference Justification Letter. Please consider customizing this template, should you need to request funding from senior leadership at your care center.
Supported by:
ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Fall 2023 Virtual Community Conference
On Wednesday December 6, 2023 from 6:30 - 8 p.m. ET (3:30 - 5 p.m. PT) the ImproveCareNow Community is hosting a Virtual Community Conference!
Join us for updates about ImproveCareNow and the Patient Advisory Council and Parent / Family Advisory Council, along with an educational IBD session (to be decided). This is a great opportunity to learn more about what ImproveCareNow does and how you can get involved! Time of event is in Eastern Time.
RSVP on the form on this page to receive the webinar details in your inbox.
>> Check out videos from past Virtual Community Conferences
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Spring 2024 Live Online Community Conference
Save the Date for the Spring 2024 Live Online Community Conference on April 18, 2024. Exact time of event TBD.
Fall 2024 Community Conference
Save the Date for the Fall 2024 Community Conference on September 25 - 27 in Baltimore, MD.
MyIBD Learning: Orlando
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: Orlando
ImproveCareNow representatives on the Regional Planning Committee
Benjamin Gold, MD - GI Care for Kids
Nancy McGreal, MD - Duke Health
Joanna Barbara Niklinksa-Schritz, MD - Emory School of Medicine
Lybil Mendoza Alvarez, MD - Le Bonheur Children's Hospital
Angela Pham, MD - University of Florida Health
ImproveCareNow Speakers
Angela Pham, MD - University of Florida Health
Pablo Palomo, MD - Nemours Children's Health
Morning of Community
Maria Lester - Nemours Children's Health
MyIBD Learning: Los Angeles
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: Los Angeles
ImproveCareNow representatives & speakers
Keren Appel, MD - Children's Hospital Orange County
Sabina Ali, MD - UCSF Benioff Children's Hospital
Teresa Carroll, NP - Pediatric GI & Nutrition Associates
Jon Moses, MD - Stanford Health
Brad Pasternack, MD - Phoenix Children’s Hospital
MyIBD Learning: Dallas
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: Dallas
ImproveCareNow representatives
Jacobo Santolaya, MD - UT Southwestern Medical Center
MyIBD Learning: Chicago
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: Chicago
ImproveCareNow representatives & speakers
Jonathan Cordova, DO - Northshore University HealthSystem
Rebecca Casini, DO - NorthShore University HealthSystem
Joseph Runde, DO - Ann & Robert H. Lurie Children's Hospital of Chicago
MyIBD Learning: Detroit
ImproveCareNow is pleased to collaborate with the Crohn's & Colitis Foundation on a series of educational events.
Learn more about the MyIBD Learning event and register at the Crohn's & Colitis Foundations' website.
MyIBD Learning: Detroit
ImproveCareNow representatives
Jeremy Adler, MD, MSc - University of Michigan
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Examination of the perceived impact, utility, and effectiveness of a shared decision-making tool for surgery in pediatric Inflammatory Bowel Disease
The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).
The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.
Click here if you are a provider or advanced practice practitioner
Click here if you are a patient or parent
PI: Kelly Sandberg, MD, MSc
Evaluation of the Experience of Patients with Inflammatory Bowel Diseases (IBD) with Switching of Infusion Locations
The purpose of this study is to evaluate the experience of patients with Inflammatory Bowel Diseases (IBD) following their switch from one infusion site to another using an online survey. Based on their experience, we will assess the need for intervention to improve the switch of infusion sites.
Learn more about how to participate in this survey.
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Health Care Professional Survey
Health Care Professional Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Health care professionals (including GIs, APN/NP/PAs, nurses, psychologists, social workers, and dietitians) who care for pediatric IBD patients are eligible to participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes long to complete. There is no follow-up to this study.
Health care professionals can learn more and complete the survey by clicking the blue link below:
Complete Survey
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Patient Survey
Pediatric IBD Patient Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Patients who have been diagnosed with IBD and are between 8 to 17 years old can participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes to finish. There is no follow-up to this study.
Patients can learn more and complete the survey by clicking the blue link below:
Complete Survey
The Experiences of Teens Living with IBD Study
This study will explore the experiences of teens aged 13-17 living with ulcerative colitis and Crohn’s disease in the US. For this study, teens will be asked to complete two (2) online surveys – one immediately after joining the study and a second survey 6 months later. Survey questions will focus on social life, family, school, symptoms, and the challenges of living with IBD.
In addition, they may be invited to use a mobile app, the SMART-IBD app, to log their IBD medications and symptoms for one (1) week after joining the study. Choosing to use this mobile app is an optional part of the study; teens can decline this part of the study and can still participate in this study.
Learn more about this study
Contact Caeli Malloy if interested in participating!
