ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Spring 2025 Live Online Community Conference
Save the Date for the Spring 2025 Live Online Community Conference on April 24, 2025. Exact time of event TBD and subject to change as the agenda takes shape.
Registration & Cost
Registration will open end of January 2025.
As in years past, there will be a registration fee for most community members to attend the LOCC. Patients, caregivers and families will continue to be able to attend at no charge.
Individual Cost
- ALL Patients, Parents/Caregivers: No Charge
- ICN Participating Center Physician and Advanced Practice Clinician - $200
- ICN Participating Center QI Team Member (Coordinator, Dietitian, Psychosocial, etc.) - $75
- Student or Trainee - $75
- Commercial/Industry, Non-participating Center Physician/QI, Other: $400
- Non-profits please contact us for rates.
⭐ Group rates for Live Online Conferences: We again are offering group rates for ICN Care Centers who may have more than one person attending. We encourage multi-disciplinary Care Center teams to schedule conference rooms and create watch parties with those who can attend to make the most out of the group rates. There will be a separate attendance collection and CME process for those attending live that wish to claim credit. Instructions to register for the group rate will be available once we open registration.
- 2-4 people from one ICN Care Center: $475
- 5-10 people from one ICN Care Center: $800
- More than 10 people from one ICN Care Center: Contact us for rates.
ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2024/2025 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and more than 30,500 active IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Fall 2025 Community Conference
Save the Date for the Fall 2025 Community Conference on September 17 - 19, 2025 in Orlando, FL. Exact time of event TBD and subject to change.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2024/2025 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and more than 30,500 active IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Assessing Weight Stigma in Pediatric IBD Medical Providers
This study is to learn about medical providers’ perceptions of weight in pediatric IBD. Participating in the study would be completing a one-time secure online survey that we expect will take 15-20 minutes that can be completed on your own device. Participants can enter in a raffle to win one of two gift cards.
Participate in the Survey
SHINE-2 Study
What is the SHINE-2 study?
Ulcerative colitis (often referred to as “UC”) is a chronic condition that may recur at various times over a lifetime and requires long-term medical care. UC causes inflammation in the lining of the colon (also called the “large intestine”). The main symptoms of UC are pain and recurring diarrhea (loose, watery stools with more movement of the bowel), which may contain blood and/or mucus.
Children with UC may experience emotional, physical, and social difficulties because of this condition. The effects can be experienced by the whole family. There is a need to provide more effective medical therapy for children with UC.
The SHINE-2 clinical research study (also called a “clinical trial”) is looking to see if an investigational medication works in children who are 2–17 years of age and diagnosed with UC. This study will also look at how safe the investigational medication (referred to as the “study drug”) is and how it acts in the body.
If your child takes part, they will be in the SHINE-2 study for about 1.5 years.
Learn more at the SHINE-2 Study website
