ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Spring 2023 Live Online Community Conference
Join us on Thursday, April 27 and Friday, April 28 for virtual conference activities!
Register for the Live Online Community Conference
Download the Draft Agenda to plan your time with us!
Highlights from the Agenda
Thurs., April 27: Community Conference
10 a.m. - 4:45p.m. ET / 7 a.m. -1:45 p.m. PT
- Clinical Plenary: Is Diet the Cause of IBD and Where are We with Therapy?
- Innovation Plenary: Bedside Intestinal Ultrasound: The ABCs of IUS
Fri., April 28: Community Conference
10 a.m. - 2:45 p.m. ET / 7 a.m. - 11:45 a.m. PT
- Quality Improvement Plenary: Driving Improvement Through Data
Plus, community proposed breakout sessions, inspiring patient & caregiver ignite talks, and a chance to connect with the ImproveCareNow community.
Cost: There will be a small registration fee for select community members to attend the LOCC:
- ALL Patients, Parents/Caregivers: No Charge
- ICN Physician, Advanced Practice Clinicians (Physician Assistants, & Nurse Practitioners): $250
- ICN QI Team Members (Coordinator, Nurse, Dietitian, Psycho-Social, Fellow/Trainee): $100
- Non-ICN Physician, Advanced Practice Clinicians (Physician Assistants & Nurse Practitioners): $300
- Non-ICN Coordinator, Nurse, Dietitian, Psycho-Social, Fellow/Trainee: $150
- Other: $400
- Non-profits please contact Jen for rates.
Register for the Live Online Community Conference
ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including all ten of the U.S. News and World Reports 2022/2023 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Fall 2023 Community Conference
Save the Date for the Fall 2023 Community Conference in Louisville, Kentucky!
Planning to join us in Louisville, KY? Book your room at the Louisville Marriott Downtown.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
--
By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
--
By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Examination of the perceived impact, utility, and effectiveness of a shared decision-making tool for surgery in pediatric Inflammatory Bowel Disease
The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).
The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.
Click here if you are a provider or advanced practice practitioner
Click here if you are a patient or parent
PI: Kelly Sandberg, MD, MSc
The Contraception in Colitis and Crohn's Disease (CCC) Study
Young Women with IBD: Share your experiences with birth control and reproductive health.
We are studying how having IBD impacts young women’s birth control choices and preferences.
You may be able to participate if you:
- Have Inflammatory Bowel Disease
- Are between the ages of 18 to 30
- Are a woman
- Use or previously used contraception or are thinking about starting to use
contraception
You will complete a 5-minute survey about your medical and
reproductive health history. You will participate in a 60-minute one-on-one
confidential interview with a clinical researcher (remote or in-person).
You will receive a $35 gift card for your participation.
See the flyer below for more information or to download as a PDF to share.
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Health Care Professional Survey
Health Care Professional Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Health care professionals (including GIs, APN/NP/PAs, nurses, psychologists, social workers, and dietitians) who care for pediatric IBD patients are eligible to participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes long to complete. There is no follow-up to this study.
Health care professionals can learn more and complete the survey by clicking the blue link below:
Complete Survey
An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Patient Survey
Pediatric IBD Patient Survey
Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.
This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.
Patients who have been diagnosed with IBD and are between 8 to 17 years old can participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes to finish. There is no follow-up to this study.
Patients can learn more and complete the survey by clicking the blue link below:
Complete Survey
