ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Fall 2024 Community Conference
Save the Date for the Fall 2024 Community Conference on September 25 - 27 in Baltimore, MD. Wednesday activities include the Engagement Fair/Reception in the evening.
The theme of the Fall 2024 Community Conference is Together We Can: Collaborate, Coproduce, Catalyze
Registration Open for the Community Conference
- Register for the conference here.
- The standard cost for an in-person conference for ICN care center team members is $850.
Book your Hotel
- The Fall 2024 Community Conference will take place at the Marriott Baltimore Waterfront. The room block has ended, but you may still be able to book a room at the regular room price (subject to hotel availability).
- Other hotels that are within walking distance include
- The Marriott Baltimore Waterfront is sold out for Tuesday 9/24.
Plan Your Time With Us! Check out the Draft Agenda
Wednesday, September 25
5 - 6 p.m. Patient Advisory Council (PAC) & All Provider Mocktail Hour
6 - 8 p.m. Welcome Reception/Community Engagement Fair
Thursday, September 26
7 - 8 a.m. Community Breakfast
7:15 - 8:15 a.m. Pre-Conference Breakfast: Nestlé Health Science Symposium
8 a.m. - 6 p.m. Community Conference
12:15 - 1:15 p.m. Nestlé Health Science Lunch
Friday, September 27
7 - 7:45 a.m. Parent/Family Advisory Council (PFAC) & Provider Breakfast
7 - 7:45 a.m. Community Breakfast
8 a.m. - 3 p.m. Community Conference
Agenda is subject to change and should not be considered final. All times listed are ET.
Conference Justification Letter
To support clinicians in making the case for local funding to participate in the Community Conference, we have created a Conference Justification Letter. Please consider customizing this template, should you need to request funding from senior leadership at your care center.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
If you would like to support ImproveCareNow and these efforts, please download our Fall 2024 Community Conference Supporter & Exhibitor Prospectus.
Spring 2025 Live Online Community Conference
Save the Date for the Spring 2025 Live Online Community Conference on April 24, 2025. Exact time of event TBD and subject to change.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Fall 2025 Community Conference
Save the Date for the Fall 2025 Community Conference on September 17 - 19, 2025 in Orlando, FL. Exact time of event TBD and subject to change.
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ImproveCareNow is made up of more than 100 care centers and has a presence on three continents, with 90% of the highest ranked pediatric gastroenterology programs in the U.S., including many U.S. News and World Reports 2023/2024 Honor Roll Children’s Hospitals as members. With 950 pediatric gastroenterologists and 30,000 IBD patients, ImproveCareNow reaches approximately 55% of IBD patients in the U.S. cared for by pediatric gastroenterologists. ImproveCareNow Community Conferences present the ideal opportunity to engage with these committed healthcare providers, patients and parents, and to learn about recent results in our research and improvement efforts.
Atlanta's New Patient Webinar
Recently diagnosed with Crohn's Disease or Ulcerative Colitis? Or just want to learn more about IBD treatment options?
Join us for an informational webinar sponsored by Atlanta’s Family Advisory Council. Speakers are pediatric specialists from the Atlanta area with rich experience treating IBD patients just like you. You’ll have the opportunity to hear about the disease process, treatment options; IBD and mental health; nutrition; and parent and patient testimonies.
RSVP to receive webinar log-in information.
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Examination of the perceived impact, utility, and effectiveness of a shared decision-making tool for surgery in pediatric Inflammatory Bowel Disease
The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).
The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.
Click here if you are a provider or advanced practice practitioner
Click here if you are a patient or parent
PI: Kelly Sandberg, MD, MSc
SHINE-2 Study
What is the SHINE-2 study?
Ulcerative colitis (often referred to as “UC”) is a chronic condition that may recur at various times over a lifetime and requires long-term medical care. UC causes inflammation in the lining of the colon (also called the “large intestine”). The main symptoms of UC are pain and recurring diarrhea (loose, watery stools with more movement of the bowel), which may contain blood and/or mucus.
Children with UC may experience emotional, physical, and social difficulties because of this condition. The effects can be experienced by the whole family. There is a need to provide more effective medical therapy for children with UC.
The SHINE-2 clinical research study (also called a “clinical trial”) is looking to see if an investigational medication works in children who are 2–17 years of age and diagnosed with UC. This study will also look at how safe the investigational medication (referred to as the “study drug”) is and how it acts in the body.
If your child takes part, they will be in the SHINE-2 study for about 1.5 years.
Learn more at the SHINE-2 Study website
Assessing Weight Stigma in Pediatric IBD Medical Providers
This study is to learn about medical providers’ perceptions of weight in pediatric IBD. Participating in the study would be completing a one-time secure online survey that we expect will take 15-20 minutes that can be completed on your own device. Participants can enter in a raffle to win one of two gift cards.
Participate in the Survey
