ImproveCareNow is transforming care, health and costs for all children and youth with IBD through continuous improvement, innovation and discovery. Here are some of the events and opportunities happening in ImproveCareNow
Fall 2019 Community Conference
Please note: Thursday September 19 is reserved for the QI Bootcamp and Engagement Fair.
Get ready to pack your bags and hit the road for the Fall 2019 ImproveCareNow Community Conference in Chicago!
We are planning an agenda packed full of skill-building and community proposed breakout sessions as well as inspirational and engaging plenary sessions. Join us as we continue to co-develop our three pathways to work towards our common mission: to transform the health, care and costs for all children and adolescents with Inflammatory Bowel Disease
Additional Info
Book your room at the Chicago Marriott O’Hare by Wednesday, August 21 to get the ICN discounted rate. Reserve here.
Connect with us on Twitter, Instagram & Facebook & join the Community Conference conversation no matter where you are! We will, once again, be broadcasting several of our session on Facebook Live, and encourage you to join us.
Conference Justification Template: To support clinicians in making the case for local funding to participate in the Community Conference, we have created a conference justification template letter. Please consider customizing the template, should you need to request funding to senior leaders at your care center.
Registration is now open!
Spring 2020 Community Conference
Please note: Thursday, April 2 is reserved for the QI Bootcamp and Engagement Fair.
Care Center Events
Let us know about IBD events that your ImproveCareNow Center is hosting! From IBD education days, to walk-a-thons, or other community and volunteer events. Contact us to learn more about how to submit. ImproveCareNow will review and, if approved, share with the community.
Vermont - IBD Family Meet and Greet Day
Please join us for a fun event organized by the UVM Pediatric IBD Family Advisory Council. Patients with IBD and their families will have an opportunity to meet one another. The event will have information about ImproveCareNow, activities and games, and YOGA, plus, an opportunity to meet our new pediatric GI social worker. Please RSVP to let us know if you can join us!
Download St. Michael's Campus Map
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By RSVPing to attend this event, you also sign up to join ImproveCareNow's CIRCLE community and receive the latest updates on ImproveCareNow. You can unsubscribe at any time.
Opportunity - PRODUCE Study at Participating ImproveCareNow Centers
(this opportunity is available through October 2019)
Are you Interested in nutrition in IBD? We are excited to tell you about a new research study called the PRODUCE study - Personalized Research On Diet in Ulcerative colitis and Crohn’s diseasE. The PRODUCE study will examine how nutrition impacts symptoms and inflammation in pediatric patients with IBD. It will ask whether a wholesome diet - the Specific Carbohydrate Diet (SCD) - can be used as a treatment therapy. The SCD is a nutritionally complete, grain free diet that is low in sugar and dairy with a focus on fresh, whole and unprocessed foods. If you would like to find out more information, please contact: PRODUCE.help@cchmc.org. You can also visit the PRODUCE website at: https://www.nimbal.org/education/produce-study.
Opportunity - Healthy Mind, Healthy You
(This opportunity is available through July 2019)
Got stress?
Most people experience stress at some point in their lives. Stress can make you feel bad. Stress can also make your health problems worse. This includes heart disease, type 2 diabetes, obesity, high blood pressure, depression, and more. Even cancer!
Here's how you can help! Join a nationwide study that looks at how to use mindfulness to cope with stress. This could help people with more than 100 different medical conditions, including Inflammatory Bowel Disease (IBD).
The study is called Healthy Mind Healthy You. The goal is to learn more about how mindfulness can reduce stress. In the study, you are randomly assigned to one of two online mindfulness programs, a three-session program or an eight-session program.
This study is for members of ImproveCareNow. It includes patients, caregivers, and family members.
SIGN ME UP!
What is mindfulness?
Mindfulness focuses on being in the present moment. At the same time, you observe your thoughts and feelings in an accepting, non-judgmental way. When you do mindfulness, you usually start by paying attention to your breathing and your body. Then you move to your thoughts and feelings
Mindfulness comes from a tradition that goes back hundreds of years. This study is not related to any religion.
What do I have to do to join?
- Have access to the internet with a computer or mobile device.
- Be at least 18 years old.
- Review information about the study and agree (consent) to join the study.
- Answer a few questions about yourself.
- Complete the three-session or eight-session online mindfulness program.
- Fill out questionnaires during the study so we can see how you are doing.
SIGN ME UP!
Opportunity - Proteomic Analysis of Multiplex Families
This study opportunity is available through November 1, 2019.
The goal of the study is to study the proteome, biomarkers of disease, in 10 members of a family who have at least four members who have ulcerative colitis or Crohn’s disease. About one teaspoon of blood is required for the test. Individuals who are interested in participating in or learning more about the study should contact the Principal Investigator, Harland Winter, MD directly at hwinter@mgh.harvard.edu or leave a message at 617-724-2004.
Opportunity - Surgical Inflammatory Bowel Disease Research Questions: Pediatric Surgeon & Gastroenterologist’s Priorities
For patients with Inflammatory Bowel Disease (IBD), which includes diagnoses such as ulcerative colitis, Crohn’s disease, and indeterminate colitis, and their parent(s)/family members:
On Wednesday July 24 from 7-8PM EST Nationwide Children’s Hospital is hosting a final conference call with IBD patients and parents to discuss important research topics with surgeons and GI physicians around the country. We are especially interested in hearing from patients and family members with ulcerative colitis in order to complete this research study.
What participating entails: It consists of a 60-minute teleconference and a brief online survey a week later. There will unfortunately be no financial compensation for this study, but there is an opportunity to have your name included in the publication.
Interested? Contact: Dr. Jordan Apfeld (jordan.apfeld@nationwidechildrens.org) or by phone (216-704-3208)
To enroll in the study, you will need to provide an email address and a best contact number.