LOOP

My son was diagnosed with ulcerative colitis in 2014, at the age of 13. Fast forward to 2018, and I am thrilled that he is in remission and a thriving 11th grader juggling AP classes, SATs, extra-curricular activities, college tours, and yes, medication adherence. However, I’m also here to tell you, it has been a journey to achieve and sustain remission. Like so many of you, my mind raced with a litany of questions for days, weeks, and months after his diagnosis…IBD? Ulcerative colitis? What? No cure? How did my son get this? Next, guilt set in and then more questions…Why had I not heard about IBD before his diagnosis? Is this genetic? Was it the foods I prepared? Could I have prevented it? I was so distraught. I could not fix this, not this time.

The past few months, I’ve been working with my ICN center to create a series of ‘College with IBD’ handbooks. These handbooks are meant to help guide patients who are beginning the transition to college, or to provide additional support those already in school. I wanted to take the difficulties I experienced (and subsequent knowledge I gained) and create a resource that would support others in areas where I wish I’d had more guidance.

Hi, I’m Linden. I’m 14, love Broadway music and being part of the show choir at my high school, and I have Crohn’s disease.

I’m Dr. Ashish Patel, Director of the Southwestern Pediatric IBD Center at Children’s Health^SM and Associate Professor of Pediatrics at UT Southwestern. As a physician, I’ve seen firsthand how important it is for patients and their families to have a positive, supportive partnership with their care providers.

ImproveCareNow Community Conferences happen twice a year. While our community works together across the miles throughout the year, these in-person conferences provide an opportunity to work on developing and spreading QI and research skills and approaches; fueling our Network's use of data to drive and evaluate QI efforts; and developing partnerships that will lead to improved care processes and outcomes in pediatric IBD.

April 26-28 we will welcome patients, parents, clinicians, researchers, improvers, collaborators, and friends to the Spring 2018 Community Conference in Dallas, Texas and we hope you’ll join us too.

A while ago I wrote an article where I explained who I am, how I was diagnosed with Crohn’s disease, how I got to know ImproveCareNow and the plans of my master thesis. In early January I officially started my master thesis at the Umeå Institute of Design and in the last two and a half months I have gotten the opportunity to connect with experts and patients all across the world. I have organised a workshop at Shire’s office in Zug, Switzerland, where we tried to identify areas where a paediatric patients, caretakers or caregivers can be supported along their experience with IBD. A week later I attended the annual European Crohn’s and Colitis Organisation’s Congress in Vienna, Austria where I had the opportunity to meet Dr. Richard Colletti (President & Executive Network Director of ImproveCareNow) in person, along with other leading experts in the field of paediatric IBD.

In this post I would like to reveal two ideas I have developed here at the Umeå Institute of Design and ask for your thoughtful feedback to improve them. These ideas are concepts for products, which are not yet fully developed or widely available. 

One of the greatest gifts I have ever received is a small pin that’s likely worth about $5. I imagine that most people who look at the pin, proudly affixed to the collar of the lab coat I wear during clinical placements, assume it’s a red flower. But it’s not a pin of a red flower. It’s a pin of a stoma.

What do you fit into your average day? Meals, school, sports, work, music, time with friends, gaming, talking on your phone? Have I left out 5 or 20 other things on your list? If you’re like many teens I have met, the idea of adding even one more thing to an already jam-packed day isn’t necessarily a happy thought. In fact, you’re probably hoping for a few less things to do, and maybe simply looking forward to getting some extra sleep this coming weekend!

When parents watch their first child head off to their first job - out of state - understandably there will be hugs, tears, and teachable moments. The night before I left home and traveled 477 miles away to start a job in Atlanta was Christmas. As my girlfriend, Emma, and I were saying goodbye to each other - there were definitely tears. And it was during this emotional moment that my Dad came over and wrapped both of us up in a hug and said, “it’s not going to be easy, but it’ll be okay.” Just another of life’s hard moments, made a little better with the sharing of a little parental wisdom.

In ImproveCareNow we believe in "sharing seamlessly and stealing shamelessly," which essentially means if someone has an idea and develops something useful, it is shared widely so others across the network can benefit from their work. Our culture of generosity and sharing allows us to spread new ideas and innovations quickly, so they can impact many more lives.

We maintain a selection of tools & resources on our website, which can be accessed at any time. Here are a few highlights and recent updates.