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Crohn’s made it hard to participate in simple things

My name is Robbie. I’m 18 and a college student. I was 15 when diagnosed with Crohn's disease; luckily I am in remission now. An interesting fact that people don't know about me is that I captained my school's Trivia team and we went on TV for competitions!

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It's OK for IBD to take up space in my life

My name is Shira and I'm currently a junior in high school. I was diagnosed with ulcerative colitis in the fall of 2018 but I am being reevaluated for Crohn's disease at the moment. Something interesting about me is that my mom and a few other family members of mine also have IBD!

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With IBD, I’ve gained a lot of empathy and perspective and learned a lot about privilege

My name is Seth. I am 17 years old and a rising high school senior.  I was diagnosed with Crohn’s disease in sixth grade. I had a relatively typical path to my diagnosis. After a few years of worsening symptoms (stomach pain, constipation, and vomiting), I went into the hospital, where I had a gastric emptying scan and upper endoscopy, and then labs, a CT Enterography, and finally a colonoscopy. After a few weeks on Prednisone, I started IV Remicade, which I have been on ever since. Outside of Crohn’s, I play trombone and tennis. I’m also very involved in politics, and I was recently an intern for two congressional candidates in Ohio.

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Fall 2020 Live Online Community Conference: 2020 Vision - Better Together

On Thursday, September 24 & Friday, September 25, ImproveCareNow will host their second LIVE Online Community Conference (LOCC). Sessions begin on September 24 at 12:30 PM ET (11:30 AM CT, 10:30 AM MT, 9:30 AM PT) and continue through 5:00 PM ET when a causal Engagement and Social Hour begins. Sessions resume again on September 25 at 10:30 AM ET and continue throughout the day, with a wrap up scheduled for 4:35 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including diversity & equity, patient & family engagement, the effects of COVID-19 on health and care, and our path forward with new ICN leadership.

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Patient Perspectives on Telehealth and In-Person Care in the Time of COVID-19

COVID-19 – the illness caused by the novel coronavirus (SARS-CoV-2) – has brought unprecedented challenges for both patients with IBD and their care providers. In this post, members of the Patient Advisory Council share perspectives on accessing telehealth and in-person care in the time of COVID-19, and recommendations for improving together.

We believe these perspectives are important for individuals with IBD to review and consider, because the quality of our care is directly tied to our long-term health and wellbeing. If we possibly have less effective care during a pandemic, it can have downstream effects on our health and our lives.

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I can overcome obstacles

Hi, I am a 16-year-old high school student diagnosed with Crohn's disease. I am a part of the varsity tennis team, Model UN, French Club, National French Honors Society, and High Pride. The most interesting thing people don't know about me is that I was the champion child of the year for the Children’s Miracle Network at my local hospital.

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ImproveCareNow Executive Director – Kristin Howe, DC, MHA – in her own words

Health is not just the absence of disease but a state of overall wellbeing.” - World Health Organization

I started my career in health care nearly 20 years ago as a chiropractor specializing in orthopedic rehabilitation and sports injuries. With a background in physical therapy, I spent about nine years focused on post-acute therapy and rehabilitation. Throughout my career, the view of health as described above by the World Health Organization framed my approach to care.

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