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PAC Moment - New patient-developed one-page resources

Patient Advisory Council members have been crowdsourcing their wisdom, tips, and tricks about IBD topics that are timely and important to them. Using their insights, they have been developing brief, helpful one-pagers that are then reviewed by various members of the ICN community such as dietitians and psychosocial providers. Take a PAC Moment to check out new patient-developed resources!

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Crohn's Disease Exclusion Diet: An Overview

The Crohn’s Disease Exclusion Diet (CDED) is a dietary therapy that may be utilized to help manage some forms of Crohn’s disease. In this post ICN Registered Dietitians give an overview of the CDED, when and how it may be used as part of IBD care, how the diet is structured, and what CDED users can expect to eat and drink when following the diet.

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Never Say Never - Changing My Crohn's Treatment

by Autumn

When I received a MyChart message from my GI, suggesting we consider changing my Crohn's treatment, it hit me like a bullet straight to the gut. I wasn't expecting it. I did not have any symptoms of a flare yet, but labs and scope biopsies said otherwise. I received that message while waiting for an appointment, just one minute before my doctor came out to get me.

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Fall 2024 Community Conference - Together We Can: Collaborate, Coproduce, Catalyze

We are excited to be hosting our Fall 2024 Community Conference in Baltimore, Maryland from September 25 to September 27. We look forward to engaging with healthcare providers, patients, parents/caregivers, researchers and improvers from across ImproveCareNow to all teach and all learn, to share and develop new and innovative approaches to improve pediatric IBD care and outcomes, to further our research, and to build our community. Download our draft agenda to check out topics and sessions for this event ⬇⬇

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Fiber and IBD

The American Heart Association recommends 25 to 38 grams of dietary fiber from food sources each day to help achieve a healthful diet pattern1. However, the most recently publicly available National Health and Nutrition Examination Survey (NHANES) data suggests Americans consume an average of 16 grams of fiber daily2.

Not long ago, a low fiber diet was often recommended for patients with Inflammatory Bowel Disease (IBD). It was once thought that consuming foods high in fiber could worsen IBD symptoms such as diarrhea and abdominal pain; for this reason patients were told to avoid high fiber foods. However, recent investigation into the role of fiber in IBD has provided evidence that dietary fiber is beneficial for patients with IBD and should be consumed in adequate amounts.

🍌 What does the evidence say about the role of fiber in IBD?

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Camp Oasis gave us back our daughter

Camp Oasis transformed our daughter and became an "oasis" in her IBD journey. I am honored to share my experiences as a parent and provide tips and takeaways to providers and parents about sending your child or teen to a safe and transformative place.

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Trends in ICN and IBD Research - Notes from the Field

ImproveCareNow Research Committee member and pediatric IBD psychologist, Jennie David PhD, recently shared her answers to some questions about the state of IBD research, emerging trends in ICN Research, significant recent discoveries, and the value of being involved for psychosocial professionals.

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