Two New Projects Funded in Year 3 of ImproveCareNow Patient and Parent Innovation Fund

We believe that many of the most innovative and potentially high-impact ideas for improving pediatric IBD care are likely to come from those living with the condition daily. Because of this, ImproveCareNow has continued to support innovative project ideas through the ImproveCareNow Patient and Parent Innovation Fund. The awardees for year three of this program have now been announced!

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ImproveCareNow Scientific Director, Dr. Peter Margolis, Elected to National Academy of Medicine

On October 21, 2019, the National Academy of Medicine announced the election of 90 regular members and 10 international members. Peter Margolis, MD, PhD, Scientific Director for ImproveCareNow, was among those elected. 

Dr. Margolis is the Co-Director of the James M. Anderson Center for Health Systems Excellence at Cincinnati Children’s Hospital Medical Center and Professor of Pediatrics at the University of Cincinnati. His work encompasses the application and study of quality improvement methods in a broad range of areas including primary and sub-specialty care, communities and public health settings to improve the health outcomes of children, families and communities.

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Research demonstrates need for greater support for the IBD caregiving community

The National Alliance for Caregiving (NAC) has released a report on caregiving of individuals with Inflammatory Bowel Disease (IBD). Riding the Roller Coaster of Inflammatory Bowel Disease: A National Study of Caregivers of Individuals with Crohn’s Disease or Ulcerative Colitis focuses on caregiving for the more than three million Americans affected by the two most common forms of IBD – Crohn’s disease and ulcerative colitis.

The full results of the survey can be viewed online at http://www.caregiving.org/ibd

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ImproveCareNow highlighted by Harvard Kennedy School

ImproveCareNow was chosen as one of eight comparative case studies by the Project on Transparency and Technology for Better Health at the Harvard Kennedy School Ash Center for Democratic Governance and Innovation. In Exchanging Information to Create a Learning Health System: The ImproveCareNow Approach to Engagement, author Elena Fagotto elaborates on the power of learning networks, such as ImproveCareNow, to “enable different groups to exchange knowledge and co-create a learning health system to improve pediatric IBD Care.”

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ImproveCareNow Announces Round Three of Innovation Fund to Support Patient and Parent Projects

We know that many of the most innovative and high impact ideas for improving pediatric IBD care are likely to come from those living with the condition on a daily basis—ImproveCareNow (ICN) parent and patient partners. Previously, there was not a formal mechanism to encourage and provide support for projects proposed by these partners. While many successful projects have been carried out by dedicated parent and patient members of the ICN community, many more are not able to be advanced without funding and assistance.

In 2017, we decided to address these needs and advance projects that will make a difference in the lives of our community members. With support from the David R. Clare and Margaret C. Clare Foundation, we launched the ImproveCareNow Patient and Parent Innovation Fund. In the first two years, the Innovation Fund has supported three projects, and we are excited to announce that funding will continue with Round Three of the ImproveCareNow Patient and Parent Innovation Fund in 2019. 

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Healthy Mind Healthy You: A Study of Mindfulness - Now Open

Most people experience stress at some point in their lives. Stress, especially when severe, can not only make you feel bad, it can also worsen existing health problems like heart disease, type 2 diabetes, obesity, high blood pressure, depression, and even cancer.

Healthy Mind Healthy You is a new study about how mindfulness can help people cope with stress. Funded by the Patient Centered Outcome Research Institute (PCORI) and involving 19 Patient Powered Research Networks (PPRNs), Healthy Mind Healthy You will be able to study the effects of mindfulness on a wide variety of populations and conditions.

This study is for members of ImproveCareNow. It includes patients, caregivers, and family members.

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2018 Annual Update

ImproveCareNow has had enormous success since it began 12 years ago, including increasing remission rates for thousands of youth with IBD, transforming how care is being provided, enlightening and exciting clinicians and other care providers, and engaging patients and parents in a common mission and work. We are pleased to share our ImproveCareNow Annual Update, which includes highlights and achievements from 2018 and plans for our continued work to improve health, care and costs for kids with IBD in 2019 and beyond.

In 2018 ImproveCareNow:

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