Refer to the following list of options as you decide which breakout sessions to attend at the ImproveCareNow Fall 2021 Live Online Community Conference. Consult with colleagues attending from your center (including parent and patient partners) to maximize your team’s exposure to these sessions—plan to divide and conquer! Please contact [email protected] with any questions about these breakouts.
Thursday, September 30
12:40pm EDT Community Proposed Breakouts I
Clinical: IBD-Qorus- Is There High Quality Care After ICN?
Diversity, Equity, and Inclusion (DEI): IBD, Identity and Intersectionality
- Gain a better understanding of how various identities can intersect with IBD
- Patients: Be able to self-reflect on their own personal experience with IBD and identity, and gain confidence in communicating with their IBD care providers about this
- Parents/caregivers: Be able to better support patients with IBD in understanding their IBD identities, and how this relates to other parts of their identity
- Providers: Expand upon broader outlook of patients’ intersecting identities to improve care outcomes and relation-ships with patients and families (understanding intersectionality from patient perspective)
Engagement (2 presentations):
(1) IBD Success Stories.
- Identify, plan and conduct a virtual engagement event (IBD Success Stories) using the checklist provided by the speakers
(2) Together While Apart - Building Community Remotely - A Success Story of Local Center Co-Production
- Understand the process of use to create the ongoing programming and community building throughout the pandemic
- Demonstrate the importance of co-production to address the educational and psychosocial needs of patients and families
- Local centers will have a roadmap tool to create their own remote community programming
Psychosocial: Improving Fatigue and Sleep Difficulties in Pediatric IBD: What is known and future directions
- Understand the prevalence of fatigue in IBD and the psychosocial and medical factors relevant to fatigue in IBD
- Review how to evaluate underlying causes of fatigue in IBD patients
- Understand the importance of assessing and intervening on fatigue in IBD, and how a multidisciplinary team can support this
Thursday, September 30
3:15pm EDT Community Proposed Breakouts II
Clinical: Using QI to Assess Mucosal Healing in Children with IBD
- Overview of mucosal healing and effect on short and long term outcomes
- Overview of monitoring strategies to assess for mucosal healing
- Review the use of quality improvement methods to assess for mucosal healing
Engagement: Patient Centered Care: Cultivating Safe and Successful Patient-Provider Relationships
- Discuss ways to foster safe and transparent patient-provider relationships
- Utilizing language to support productive discussions with patients about symptoms, treatment plans, and quality-of-life goals
- Learn how to empower patients to lead their healthcare team
Psychosocial: A Complex Relationship with Body, Weight and Food: Body Image and Disordered Eating Behaviors in
Pediatric IBD
Research: Development and Integration of a Precision Infliximab Dosing Dashboard within the Electronic Medical Records
- It is our hope that by the end of the session, all stakeholders (physicians, nurses, patients/families, and industry partners) are aware of this novel technology and can find ways to integrate precision dosing in their own institution
- Make stakeholders aware of the clinical trials that have been developed to test this technology
- Finally, we would like feedback on the product and ways to move this forward across the network (design, functionality) so that all patients can benefit from this resource
Friday, October 1
12:00pm EDT Community Proposed Breakouts III
Clinical: Patient Perspectives: Optimizing Stool Collection Methods
- Destigmatize and improve comfort around discussing IBD
- Discuss benefits and disadvantages of various stool collection methods and associated patient perspectives
- Improve understanding of stool collection challenges and identify optimal design elements for collection kits
Nutrition: New and Improved ICN Nutrition Care Manual: Impact on the Model Care Guidelines
- Utilize the ICN Nutrition Care Manual as a trusted resource in clinical practice
- Apply revised Nutrition and Growth Risk algorithms to clinical practice
- Prepare center clinicians to use revised criteria to document patient’s Nutrition and Growth Risk status
Research: Publishing your QI work: Applying the SQUIRE Guidelines
- Become familiar with the SQUIRE guidelines
- Focus on practical application and considerations when starting the process to publish QI
Technology: Collaborative Tools to Drive Outcomes: ICN Hub and New Registry—Bring Us Your Questions
- Participants will be able to identify three features of the ICN Hub which they wish to explore further and three ways to get help or
give feedback on the ICN Hub - Participants will see an overview/demo of the new ICN Registry interface and some features. At the conclusion of this activity,
the participants will be able to describe how to access the new ICN Registry, explain improvements compared to the current registry,
and know where to ask questions or give feedback in the ICN New Registry Feedback group on the ICN Hub.
Friday, October 1
2:00pm EDT Community Proposed Breakouts IV
Clinical: Standardizing the Approach to VEO-IBD
- Define VEO-IBD
- Discuss the prevalence of VEO-IBD in ICN
- Review unique features of VEO-IBD
- Identify “red flags” requiring further evaluation
- Discuss individualized evaluation of VEO-IBD
- Suggest a standardized approach to VEO-IBD
Engagement: Patient Centered Care: Cultivating Safe and Successful Patient-Provider Relationships
- Discuss ways to foster safe and transparent patient-provider relationships
- Utilizing language to support productive discussions with patients about symptoms, treatment plans, and quality-of-life goals
- Learn how to empower patients to lead their healthcare team
Psychosocial: A Complex Relationship with Body, Weight and Food: Body Image and Disordered Eating Behaviors in
Pediatric IBD
Research: Development and Integration of a Precision Infliximab Dosing Dashboard within the Electronic Medical Record
Diversity, Equity, and Inclusion (DEI): Barriers to Care
- Identify and recognize some of the barriers to care and how they can address patient concerns in receiving appropriate
care. - Work with patients in overcoming some of the external challenges that affect their