Engage with the Patient Advisory Council and Parent/Family Advisory Council for Research

Interested in involving patients or parents in your study as advisors or co-investigators? Would you like to have a consultation on your study proposal’s engagement plan? Engagement can help a study be more patient-centered, trustworthy and ultimately lead to wider dissemination of results to the broader IBD community. Complete the form to connect with an engagement group and learn more about engagement opportunities.

Learn more about the PAC/PFAC.


Parents and patients can be involved in a variety of ways throughout the design and implementation of a study.  Our Research Co-Production Guide offers ideas about how you can involve parents and patients in your study, and provides examples of past research coproduction in the ImproveCareNow network.

Download the Research Co-Production Guide presentation.

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