Research Opportunities

The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).

The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.

Click here if you are a provider or advanced practice practitioner

Click here if you are a patient or parent

PI: Kelly Sandberg, MD, MSc

Young Women with IBD: Share your experiences with birth control and reproductive health. 

We are studying how having IBD impacts young women’s birth control choices and preferences.

You may be able to participate if you:

• Have Inflammatory Bowel Disease
• Are between the ages of 18 to 30
• Are a woman
• Use or previously used contraception or are thinking about starting to use
  contraception

You will complete a 5-minute survey about your medical and
reproductive health history. You will participate in a 60-minute one-on-one
confidential interview with a clinical researcher (remote or in-person).

You will receive a $35 gift card for your participation.

See the flyer below for more information or to download as a PDF to share.  

This study will explore the experiences of teens aged 13-17 living with ulcerative colitis and Crohn’s disease in the US. For this study, teens will be asked to complete two (2) online surveys – one immediately after joining the study and a second survey 6 months later. Survey questions will focus on social life, family, school, symptoms, and the challenges of living with IBD. 

In addition, they may be invited to use a mobile app, the SMART-IBD app, to log their IBD medications and symptoms for one (1) week after joining the study. Choosing to use this mobile app is an optional part of the study; teens can decline this part of the study and can still participate in this study.

Learn more about this study

Contact Caeli Malloy if interested in participating!