Current Research Opportunities:

Examination of the perceived impact, utility, and effectiveness of a shared decision-making tool for surgery in pediatric Inflammatory Bowel Disease

Friday, September 30, 2022 at 12:00 PM through October 09, 2024

The goal of this study is to understand the past experiences of patients, parents, and doctors who have used or viewed ICN’s "Should I have IBD Surgery?" shared decision-making tool (IBD Surgery Shared Decision-Making Toolkit - ImproveCareNow). The virtual patient tool was created to help families and patients identify their concerns, preferences and resources when considering IBD surgery. The tool provides doctors with suggestions on how to incorporate the tool into the patient’s plan of care. Using this tool gives patients and families the opportunity to involve their doctors and care teams in shared decision-making (SDM).

The research team hopes that this study will provide an understanding of the impact, usefulness, and effectiveness of this tool for providers and for pediatric IBD patients considering surgery.

Click here if you are a provider or advanced practice practitioner

Click here if you are a patient or parent


PI: Kelly Sandberg, MD, MSc

Assessing Attitudes, Access, Barriers, and Facilitators to Multidisciplinary Care in Pediatric Inflammatory Bowel Disease

Thursday, March 28, 2024 at 06:00 PM through June 26, 2024

The below Research Opportunity is open to Healthcare Professionals at ImproveCareNow Care Centers in the United States, and is a Research Committee Approved study. 


We would like to invite you to participate in a research study that involves completing a brief online survey. This invitation is being sent to all pediatric GI medical providers at ICN centers in the United States. We would like to the explore the availability and facilitation of multidisciplinary pediatric IBD care across the United States. Understanding disparities in access could help to identify areas for improvement and improve care moving forward.

You can fill out the survey by clicking on the link below. On the first page of the survey, you will find an information sheet with more information on the study. By continuing to fill out the survey, you will give consent to participate in our research study.

Thank you for participating in our study!

Nicole Davidson, MD 

Hilary Michel, MD 

Jennifer Dotson, MD 

Jennie David, PhD 

SHINE-2 Study

Monday, May 20, 2024 at 06:00 PM through November 16, 2024

What is the SHINE-2 study?

Ulcerative colitis (often referred to as “UC”) is a chronic condition that may recur at various times over a lifetime and requires long-term medical care. UC causes inflammation in the lining of the colon (also called the “large intestine”). The main symptoms of UC are pain and recurring diarrhea (loose, watery stools with more movement of the bowel), which may contain blood and/or mucus.

Children with UC may experience emotional, physical, and social difficulties because of this condition. The effects can be experienced by the whole family. There is a need to provide more effective medical therapy for children with UC.

The SHINE-2 clinical research study (also called a “clinical trial”) is looking to see if an investigational medication works in children who are 2–17 years of age and diagnosed with UC. This study will also look at how safe the investigational medication (referred to as the “study drug”) is and how it acts in the body.

If your child takes part, they will be in the SHINE-2 study for about 1.5 years.

Learn more at the SHINE-2 Study website

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