Upcoming Opportunities:

Evaluation of the Experience of Patients with Inflammatory Bowel Diseases (IBD) with Switching of Infusion Locations

Wednesday, April 27, 2022 at 06:00 PM through October 24, 2022

The purpose of this study is to evaluate the experience of patients with Inflammatory Bowel Diseases (IBD) following their switch from one infusion site to another using an online survey. Based on their experience, we will assess the need for intervention to improve the switch of infusion sites.

Learn more about how to participate in this survey.


An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Health Care Professional Survey

Saturday, October 01, 2022 at 12:00 PM through February 02, 2023

Health Care Professional Survey

Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.

This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.  

Health care professionals (including GIs, APN/NP/PAs, nurses, psychologists, social workers, and dietitians) who care for pediatric IBD patients are eligible to participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes long to complete. There is no follow-up to this study.

Health care professionals can learn more and complete the survey by clicking the blue link below: 

Complete Survey


An Exploration of How Health Care Professionals Assess and Support Sleep and Fatigue in a Pediatric IBD Population: Patient Survey

Saturday, October 01, 2022 at 12:00 PM through January 31, 2023

Pediatric IBD Patient Survey

Pediatric patients with IBD can have challenges with fatigue (feeling tired a lot of the time) and difficulties with sleep. While fatigue and sleep are known to be important factors in supporting optimal psychosocial and medical outcomes in pediatric IBD, it is unknown how these topics are talked about in IBD care with patients.

This study hopes to understand 1) the current ways that health care professionals (HCPs) are talking about and helping with fatigue and sleep in pediatric IBD, and 2) the self-reported experience of fatigue and sleep in pediatric patients with IBD.  

Patients who have been diagnosed with IBD and are between 8 to 17 years old can participate. Participants can complete a one-time secure, online survey that is estimated to take 10-20 minutes to finish. There is no follow-up to this study.

Patients can learn more and complete the survey by clicking the blue link below: 

Complete Survey


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