Purpose: To determine whether race is associated with delay in diagnosis, patterns of follow-up care, trust in the healthcare system, and key outcomes including use of biologics, steroids, hospitalization and surgery.
We will also test whether socioeconomic status, frequency of follow-up and trust in the healthcare system confound or mediate associations between race and IBD outcomes.
Primary Outcome: Each outcome is selected to understand differences in treatment patterns that are likely to impact the course of IBD, are major events that signify a change in disease course, and/or have been associated with significant adverse outcomes. The following outcomes will be compared between the study groups. They are broken into two categories of outcomes: medication treatment patterns and clinical outcomes.
Funding Source: Centers for Disease Control and Prevention (2018)
Study Period: FY 2019 - FY 2023
Recruitment Status: No longer recruiting participants
Contact: Jen Savas