We are pleased to announce the ImproveCareNow Data Management Team, with input from the Parent Working Group and Patient Advisory Council, has prepared and released the 2019 ImproveCareNow Annual Data Report. This report aims to present a brief summary of the patient data captured in the ICN Registry - a disease-specific, enhanced health registry that has been built by and for the ICN Network.

“We would like to thank the wonderful members of the ImproveCareNow community who help make the ICN Registry possible, including ICN team members who collect and enter a large amount of high-quality clinical data, the Data Management Team that maintains the registry, answers questions and assembles data to make reports such as this one possible, and patients and families who allow us to include their data in the registry. Together, these many contributions enable us to continuously improve health and outcomes for all pediatric patients with inflammatory bowel disease.”

Steve Steiner, Co-Physician Leader, ICN Data Management Team

Click to download the report

Members of the ICN Community can expect to receive an updated Data Report from ImproveCareNow, with data and insights from the previous complete calendar year, annually going forward. The Data Management Team is open to receiving feedback on this report so it may be improved in subsequent years. If you have comments after reading this report, please contact us.


About ImproveCareNow

ImproveCareNow is a Learning Health Network dedicated to transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (Inflammatory Bowel Disease or IBD) by building a sustainable collaborative chronic care network. We are enabling patients, families, clinicians and researchers to work together in a learning health care system to accelerate innovation, discovery and the application of new knowledge. We invite everyone interested in getting kids with IBD better right now to join us!

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