Sustainable generation of patient‐led resources in a learning health system

Published February 12, 2021

David, J, Berenblum Tobi, C, Kennedy, S, et al. Sustainable generation of patient‐led resources in a learning health system. Learn Health Sys. 2021;e10260. https://doi.org/10.1002/lrh2.10260

This paper, written by patients and providers from ICN, reviews current ICN data on PAC‐generated resources, including creation processes and download statistics.

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Clinical Practice Survey of Repeat Endoscopy in Pediatric Inflammatory Bowel Disease in North America

Published February 24, 2021

Moses J, Sandberg K, Winberry G, Riera D, DeLozier S, Gupta SK, Reilly N, Park KT, Picoraro J. Clinical Practice Survey of Repeat Endoscopy in Pediatric Inflammatory Bowel Disease in North America. J Pediatr Gastroenterol Nutr. 2021 Feb 24. doi: 10.1097/MPG.0000000000003100. Epub ahead of print. PMID: 33633082.

Endoscopic remission has become a standard treatment target in inflammatory bowel disease (IBD). It is unclear how widely this practice has been adopted amongst pediatric gastroenterology providers. This study determines the frequency of repeat endoscopy in pediatric IBD and evaluates for predictive baseline characteristics of providers.

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Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System

Published May 3, 2021

Keck, CHartley, DMHavens, MMargolis, PASeid, MGetting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health SystemLearn Health Sys20211– 7. https://doi.org/10.1002/lrh2.10268

We describe efforts in ImproveCareNow, a CLHS improving outcomes in pediatric inflammatory bowel disease (IBD), to increase the number of patients and families creating and accessing IKK, and the challenges faced in that process.

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