Sustainable generation of patient‐led resources in a learning health system
Published February 12, 2021
David, J, Berenblum Tobi, C, Kennedy, S, et al. Sustainable generation of patient‐led resources in a learning health system. Learn Health Sys. 2021;e10260. https://doi.org/10.1002/lrh2.10260
This paper, written by patients and providers from ICN, reviews current ICN data on PAC‐generated resources, including creation processes and download statistics.
Clinical Practice Survey of Repeat Endoscopy in Pediatric Inflammatory Bowel Disease in North America
Published February 24, 2021
Moses J, Sandberg K, Winberry G, Riera D, DeLozier S, Gupta SK, Reilly N, Park KT, Picoraro J. Clinical Practice Survey of Repeat Endoscopy in Pediatric Inflammatory Bowel Disease in North America. J Pediatr Gastroenterol Nutr. 2021 Feb 24. doi: 10.1097/MPG.0000000000003100. Epub ahead of print. PMID: 33633082.
Endoscopic remission has become a standard treatment target in inflammatory bowel disease (IBD). It is unclear how widely this practice has been adopted amongst pediatric gastroenterology providers. This study determines the frequency of repeat endoscopy in pediatric IBD and evaluates for predictive baseline characteristics of providers.
Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System
Published May 3, 2021
, , , , . Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System. Learn Health Sys. 2021; 1– 7. https://doi.org/10.1002/lrh2.10268
We describe efforts in ImproveCareNow, a CLHS improving outcomes in pediatric inflammatory bowel disease (IBD), to increase the number of patients and families creating and accessing IKK, and the challenges faced in that process.
Reduced Systemic Corticosteroid Use among Pediatric Patients with Inflammatory Bowel Disease in a Large Learning Health System
Published May 25, 2021
Kandavel, Prashanthi*; Eder, Sally J.†; Adler, Jeremy*,† and the ImproveCareNow Network Pediatric IBD Learning Health System Reduced Systemic Corticosteroid Use among Pediatric Patients with Inflammatory Bowel Disease in a Large Learning Health System, Journal of Pediatric Gastroenterology and Nutrition: May 25, 2021 - Volume - Issue - doi: 10.1097/MPG.0000000000003182https://doi.org/10.1093/ibd/izab154
Assessing the Prevalence of and Risk Factors for Disordered Eating Attitudes and Behaviors in Adolescents With Inflammatory Bowel Disease
Published June 9, 2021
Jennie G David, PhD, Douglas Chute, PhD, Bonney Reed, PhD, Shehzad Saeed, MD, David DeMatteo, JD, PhD, Orhan Atay, MD, Michele Maddux, PhD, Brian Daly, PhD, Assessing the Prevalence of and Risk Factors for Disordered Eating Attitudes and Behaviors in Adolescents With Inflammatory Bowel Disease, Inflammatory Bowel Diseases, 2021;, izab154, https://doi.org/10.1093/ibd/izab154
A science of collaborative learning health systems
Published June 1, 2021
, , . A science of collaborative learning health systems. Learn Health Sys. 2021; 5( 3):e10278. https://doi.org/10.1002/lrh2.10278
Use of Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric Measures As Clinical Trial Endpoints: Experience From a Multi-Center Pragmatic Trial in Children With Crohn's Disease
Published November 2, 2021
Miller TL, Schuchard J, Carle AC, Forrest CB, Kappelman MD; COMBINE Study Group. Use of Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric Measures As Clinical Trial Endpoints: Experience From a Multi-Center Pragmatic Trial in Children With Crohn's Disease. J Pediatr. 2021 Nov 2:S0022-3476(21)01053-2. doi: 10.1016/j.jpeds.2021.10.053. Epub ahead of print. PMID: 34740588.