Refer to the following list of options as you decide which breakout sessions to attend at the ImproveCareNow Fall 2023 Community Conference. Consult with colleagues attending from your center (including parent and patient partners) to maximize your team’s exposure to these sessions—plan to divide and conquer! Please contact [email protected] with any questions about these sessions.
Thursday, October 26
10:00 am Clinical Plenary
The Value of Observational Research in IBD
- To understand the advantages and disadvantages of an observational research design
- To review pivotal observational studies in IBD and how these can be applied in practice
11:15 am Community Proposed Breakout Session I
Clinical: Novel Therapeutics in IBD
- To review the data on novel therapeutics in adult IBD (and how this could potentially apply in pediatrics)
- To understand practical strategies for monitoring on novel therapeutic agents
- To understand positioning of therapies in IBD
Data/Technology: Registry 201: Focus on Measures and Using Data to Inform Improvement Strategy
- Encourage precise measurement and improvement in outcomes by highlighting new Outcomes Registry features and reports
- Review operational definitions and inclusion/exclusion criteria
- Demonstrate using data quality tools
- Handouts - Funnel Plot Template
Engagement/Psychosocial: Coping with Flares and Chronic Pain
- Provide insight from patients about managing IBD flares day to day, with a specific focus on managing pain
- Discuss the possible biological basis and types of pain including chronic pain during remission and how providers can support patients who experience it
- Discuss the emotional toll of flares/chronic pain on patients and IBD families
- Provide insights on how family members and providers can support patients
1:45 pm Community Proposed Breakout Session II
Clinical: Ostomy Care and Troubleshooting
Objectives
- Types of ostomies and why they might be needed, address confusing nomenclature
- General facts and myths about ostomies and what you can do (swim, playing sports, etc)
- Patient stories
- Troubleshooting and thinking about closure/revision
Resources
Clinical: Week 6 TDM: Utilizing QI Methodology to Standardize Early Identification of Subtherapeutic Levels and Optimize Dosing During Induction
- Describe the strong association between week 6 trough levels and therapeutic levels during the maintenance phase with the approach for dose adjustments
- Describe the QI approach for modifying proactive TDM for infliximab and vedolizumab to capture drug levels at week 6
- Provide practical ways to track TDM within EPIC and share implementation learnings, methods for staff education and provider buy in, set backs and misses
Diversity, Equity, and Inclusion: Our Health Equity Story Through the Data Quality Lens
- Provide historical perspective on ImproveCareNow’s Diversity Equity and Inclusion (DEI) and Social Determinants (SDOH) of Health work
- Discuss the importance of quality data as we analyze our current state acknowledging discrepancies with our sense of urgency
- Overview of Social Determinants of Health
3:00 pm Role Specific Breakouts
Join your colleagues to discuss updates to current projects, celebrate successes, troubleshoot any challenges and identify new opportunities to contribute to the community.
Coordinators
- Coordinators will become familiar with sFMEAs while working in small groups to map a coordinator focused ICN process.
- These groups will brainstorm existing and potential barriers; then design interventions to address these barriers as they create an sFMEA and share insights for their coordinator driven ICN process.
Resources
Dietitians
Physicians, Advanced Practice Providers, Nurses: Developing Depression Screening Model Care Guidelines
Patient Advisory Council (PAC)
- Fill out the Patient / Parent Community Conference Reflections survey.
Parent/Family Advisory Council (PFAC)
- Fill out the Patient / Parent Community Conference Reflections survey.
Social Work and Psychosocial Professionals (SWAP)
Friday, October 27
8:10 am Research Plenary
COMBINE Results: What does it mean for practice?
Objectives
- To summarize the important, relevant practical findings of COMBINE
- To summarize the questions raised by COMBINE that make it challenging to follow the recommendations lock, stock, and barrel
- To summarize ICN recommendations, including how we will document adherence or non-adherence and details surrounding those, supported by data.
Resources
- ImproveCareNow's COMBINE Considerations Handout
- ICN Research Explained: The COMBINE Trial
- The Full COMBINE Study
9:15 am Community Proposed Breakout Sessions III
Psychosocial: The Transition Care Index- Using QI Methods to Standardize Transition of Care
- Learn about the concept of a care index as a QI tool and its use to standardize transition and transfer of care
- Share learnings, including ways to track progress and improve access to care and patient and provider buy-in
- Highlight steps that other centers can take to implement a transition care index locally
Psychosocial: Helping Patients Help Themselves
- Ensure patients are confident in their preparation and well-prepared for transitions to college and adulthood
- Outline tools providers and caregivers can provide to patients to navigate these transitions with confidence
- Share resources, checklists, etc. that attendees can use to encourage empowerment, understanding and success
Data/Technology: We See You: Improving Your 200-day List
- Review the 200-day list process to increase patient adherence and quality and frequency of care to promote patient health stabilization
Diversity, Equity, and Inclusion: Attitudes, Trust, and Confidence about Clinical Research: Parent/Caregiver Perspectives
- Outline methods that can be introduced in a clinical setting to foster positive messages and research engagement
- Share QI/research strategy, tools and learnings from interventions to evaluate and improve caregivers’ attitudes towards pediatric clinical research
- Discuss strategies to enhance trust between providers and caregivers by confronting negative perceptions about medical research as a method to reduce health disparities.
10:10 am Pathway to Mastery Learning Labs
Foundations
- Registry Jeopardy Q&A - Links to the ICN Hub
Remission
Sustained Remission
11:50 am Psychosocial Plenary
Depression Screening: Impact on Care, Setting Up for Success and Beyond
Objectives
- Identify the importance of depression screening from the perspectives of patients/parents, physicians, the current post-pandemic situation and research
- Identify characteristics for successful screening and solutions/strategies to succeed and describe future screening goals
Resources
- Who do you talk to about IBD - YouTube video
- Depression Screening Toolkit - Link to the modules on the ICN Hub
- Psychosocial Resources - PDF of helpful links & resources to share