Session Descriptions & Handouts

Refer to the following list of options as you decide which breakout sessions to attend at the ImproveCareNow Fall 2024 Community Conference. Consult with colleagues attending from your center (including parent and patient partners) to maximize your team’s exposure to these sessions—plan to divide and conquer! Please contact [email protected] with any questions about these sessions.

⭐ Important note: ImproveCareNow uses the ICN Hub to share many handouts and resources. Many of the links below will work best if you are already signed in to your ICN Hub account. If you have not signed into your ICN Hub account since May 2024, you will need to reset your password. 

Jump to Friday

Thursday, September 26

7:15 am Pre-Conference Breakfast: Nestlé Health Science Satellite Symposium 

Diets in Therapeutic Armamentarium Approaches for Pediatric IBD: Where Do We Stand, Where Do We Go?

Science and Practice of Nutritional Intervention in Crohn’s Disease - David, Suskind, MD

  1. Exploring dietary strategies as part of the therapeutic toolbox for managing pediatric IBD, including evidenced-based approaches, advancements in Crohn's Disease Exclusion Diet (CDED), and the impact of the intestinal microbiome in Crohn’s Disease.

9:15 am State of the Network & Executive Director Address

References

11:00 am Community Proposed Breakout I

Data, QI, & Technology: Improving Complete Visit Bundle Measures

  1. Define the ICN Bundles and discuss the importance of the bundle measures to understanding the work at your centers
  2. Demonstrate successful QI interventions and best practices at ICN centers to improve bundle rates
  3. Present challenges and discuss methods to overcome barriers to achieve high bundle rates

Equity: Improving Access to Pediatric IBD Care with Telemedicine

  1. Describe the unique telemedicine model at WVU Children’s, including the setting, process, and services available
  2. Describe how WVU Children’s delivers IBD care at telemedicine sites, including the consent process, incorporating pre-visit planning, use of population management to track pediatric patients with IBD, and incorporating nutrition (dietitian) care
  3. Examine patient demographics for patients receiving IBD care at telemedicine sites
  4. Evaluate how a telemedicine hub and spoke clinic model can increase access to subspecialty care for chronic disease to address gaps in care and decrease health disparities

Engagement & Community Building: ICN Community Co-Production of an IBD and AILD (Autoimmune Liver Disease) Caregiver Coping Toolkit 

  1. Announcing a first-of-its-kind resource for clinical dissemination across the networks (ICN and A-LiNK)
  2. Detailing the QI co-production development process to enable other groups to co-produce IBD and AILD patient and caregiver resources that are needed by the IBD and AILD communities
  3. Describing the format and content of the toolkit itself to raise the networks’ awareness and elicit discussion to disseminate this resource.

12:25 pm Nestlé Health Science Lunch

Practical Tips for Dietary Management in IBD - Submit your questions!

  1. Engage with our nutrition experts from the Nestle Symposium for a Q&A on CDED and Practical Tips for Dietary Management in IBD

1:40 pm Community Proposed Breakout II

Clinical: Physical Activity Programming to Improve Quality of Life in Children and Young Adults with IBD

  1. Raise awareness of physical activity in the context of pediatric IBD
  2. Discuss our model for promoting physical activity, and its receptivity and efficacy
  3. Share findings from relationships between physical activity and quality of life
  • Access Handouts & Resources on the ICN Hub. Handouts include a "Get Active" Pamphlet, Monthly Logs, Smart Goal worksheet, among other helpful resources!

Data, QI, & Technology: Induction Proactive Anti-TNF Therapeutic Drug Monitoring (TDM) in Pediatric Inflammatory Bowel Disease

  1. This study aimed to evaluate the advantage of proactive therapeutic drug monitoring at treatment induction in achieving remission and in patients care

Psychosocial: Understanding Medical Traumatic Stress: Perspectives from Patients, Providers, and Parents

  1. Understanding the patient experience of medical traumatic stress
    • Attendees will gain insight into definitions of medical traumatic stress and patient/family experiences of medical traumatic stress, including the types of experiences that lead to medical traumatic stress, medical traumatic stress symptoms, and the impact it has on patient/family lives.
  2. Learning how parents and families can support patients
    • Attendees will learn approaches to supporting patients through potentially traumatic medical experiences and helping patients who are experiencing symptoms of medical traumatic stress.
  3. Understanding some future strategies for providers and healthcare systems to mitigate medical traumatic stress
    • Attendees will explore strategies for providers to advocate for and support patients experiencing medical traumatic stress.

Handouts

3:00 pm Role Specific Sessions

Join your colleagues to discuss updates to current projects, celebrate successes, troubleshoot any challenges and identify new opportunities to improve outcomes for families.

Coordinators

  1. Identify networking partners from care centers with similar technology, challenges, and/or goals for improvement
  2. Discuss best practices and strategies to overcome barriers
  3. Illustrate opportunities for improvement
  4. Apply QI tools to current foundational processes

Dietitians

Physicians, Advanced Practice Providers, Nurses: Hitting the JAKpot: Acute Severe Ulcerative Colitis (ASUC)

Patient Advisory Council (PAC) 

Parent/Family Advisory Council (PFAC)

Social Work and Psychosocial Professionals (SWAP)

4:15 pm Clinical Plenary

Precision Medicine and Its Future in Pediatric IBD

  1. To apply personalized treatment approaches in IBD 
  2. To identify the factors most impacting treatment effect 
  3. To differentiate the prevention strategies in IBD 

Friday, September 27

8:10 am Engagement & Community Building Plenary

IBD RISE (Resilience, Information, Support and Empowerment): Lessons from a Patient-Led Peer Support Intervention for Youth with IBD

  1. Understand patient perspectives of the role and scope of peer support interventions for youth with IBD
  2. Consider strategies for using a community-based participatory research (CBPR) approach to build partnerships with a Patient Advisory Board throughout the entirety of the research process, from development and recruitment to implementation and analysis
  3. Share the structure, content, and activities of the 6-month pilot of IBD RISE program that was co-created with the PAB and implemented for youth with IBD ages ten to eighteen at an ICN site
  4. Recognize barriers and facilitators (challenges and recommendations) to the creation and implementation of peer support interventions
  5. Highlight youth participant, caregiver, and young adult mentor perspectives of the IBD RISE program and consider how similar benefits may be achieved through the development of a peer support program at other ICN centers nationally

Resources

IBD Rise Resources - Google Doc

Sign up for IBD Rise emails

9:40 am Community Proposed Breakout III

Clinical: Integrative Medicine for Pediatric IBD

  1. Define Integrative Health and its use in pediatric GI conditions/IBD
  2. Understand the role of various IH therapies in pediatric IBD
  3. Describe available resources for patients and providers

Data, Quality Improvement, & Technology: QI Focused Approach to Increase Consent, Enrollment and Registration

  1. Understand role of QI tools in improving patient enrollment and consent process
  2. Learn strategies to navigate barriers encountered in enrollment and consent

Engagement & Community Building: All Teach, All Learn: Planning for Equitable Patient Engagement

  1. Understand the importance of being intentional about recruiting and engaging patient partners
  2. Understand which factors determine what engagement looks like in a Learning Health Network
  3. Learn research-based strategies for recruitment and engagement
  4. Design an evidence-based engagement plan at their center that can be implemented after the conference

10:55 am Pathway to Mastery Learning Labs

Not sure which Learning Lab your care center is in? You can review the list here:  

ICN Network participants can find their Learning Lab groups on the ICN Hub. If you haven't logged in to your account since May 2024 when the Hub was upgraded, you will need to reset your password.

If you are not currently a part of your Learning Lab Hub group, you will need to request to join by navigating to Network -> Private Groups, and then requesting to join your Learning Lab Hub group.

  • Foundations Pathway
    • Foundations Learning Lab Group
  • Remission Pathway
    • Pre-Visit Planning and Population Management Learning Lab Group
  • Sustained Remission Pathway
    • Clinical Standardization/Personalized Care Learning Lab Group

12:35 pm Research Plenary

 REALITI-Results from the Ustekinumab Real-World Effectiveness Study

  1. Discuss the results from the REALITI Real-World Effectiveness Study of Ustekinumab in pediatric patients with Crohn's disease
  2. Discuss the benefits and challenges of using a large database for real-world effectiveness research
  3. Discuss how real-world effectiveness data can be used for regulatory submission to obtain potentially faster approval for medication use in pediatric patients
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