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Please use this mobile-friendly agenda for easier navigation from your phone at the conference. To reference which sessions have educational credit, review the PDF agenda here. 

To reference the Wednesday Shared Decision-Making agenda, review the PDF agenda here.

Educational Gap

Inflammatory bowel disease (IBD) affects 80,000+ children and adolescents in the United States. Healthcare teams providing care to these children and adolescents need access to and training on quality improvement (QI) tools and methods. This enables them to reduce unintended variation in care and improve clinical processes and outcomes. They also need face-to-face contact with parents and patients to share ideas on how best to create meaningful partnerships. Improved QI, research, and community engagement skills give these interdisciplinary teams the opportunity to standardize care, improve clinical processes and patient outcomes.

Objectives

• Apply best practices demonstrated through ImproveCareNow quality improvement, research, clinical practice, and community engagement skills to accelerate improvement in outcomes.  
• Generate connections and relationships with clinicians, patients, parents, and trusted partners to work together in new ways for the benefit of the IBD community.
• Define the latest research and emerging innovations that build upon our strategic priorities and positively impact our community.

Jump to Friday

*No Education Credit available

Thursday

7:00 - 8:00 a.m. - Ambassador 3

Community Breakfast*

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8:00 - 8:15 a.m. - Ambassador 1-2

Welcome to the Community Conference*

Kendra Wiegand

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8:15 - 9:00 a.m.  - Ambassador 1-2

State of the Network

Becky Johnson Rescola, Shehzad Saeed

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9 - 9:15 a.m.  - Ambassador 1-2

Pathway to Mastery Advancement and Outcomes

Tiffany Linville, Sharon Perry 

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9:15 - 9:30 a.m. - Ambassador 1-2

Patient Ignite Talk 

Autumn Erwin; Moderator: Jennie David-Rodgers

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9:30 - 9:40 a.m. - Break*

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9:40 - 10:40 a.m. - Ambassador 1-2

Clinical Plenary

Health Maintenance in Pediatric Inflammatory Bowel Disease: Vaccination, Cancer Prevention, and Beyond

Freddy Caldera; Moderator: Dan O'Connell 

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10:40 - 10:45 a.m. - Ambassador 1-2

Breakout Session Logistics*

Kendra Wiegand

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10:45 - 11:05 a.m. - Break/Transition*

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11:05 a.m. - 12:05 p.m. - Learn Do Share: Community Proposed Breakout I (3 Options)

🔗Review Session Descriptions

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Breakout Option 1

11:05 a.m. - 12:05 p.m. - Cabot

Clinical: Advancing Intestinal Ultrasound for Pediatric IBD Disease Monitoring

11:05 a.m. - 12:05 p.m. - Richard

Engagement/Equity: Navigating the Maze: Health Literacy & Real-World Solutions

11:05 a.m. - 12:05 p.m. - Cadillac

QI & Data/Technology: Beyond the Dashboard: Making Reliability the Engine of Quality Improvement

12:05 - 12:15 p.m. - Transition*

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12:15 - 1:15 p.m. 

Community Lunch* - Salon 3

Exhibitors* - Ambassador Foyer

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1:15 - 2:25 p.m. - Break/Transition*

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1:25 - 2:25 p.m. - Learn Do Share: Community Proposed Breakout II (4 Options)

🔗Review Session Descriptions

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Breakout Option 1

1:25 - 2:25 p.m. - Cabot

Clinical: Vaccine Dilemmas in Pediatric IBD: Real-World Cases and Clinical Decision-Making

Freddy Caldera; Moderator: Dan O'Connell

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Breakout Option 2

1:25 - 2:25 p.m. - Cadillac

Psychosocial/Equity: Red Flags and Real Decisions: Navigating Medical Neglect, Ethics, and Child Protective Services in Pediatric IBD

Heidi Frederick, Charlotte Rensberger, Leah Wimberly

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Breakout Option 3

1:25 - 2:25 p.m. - Brule

Psychosocial/Research: Positive Psychological Factors and Pain in Pediatric Inflammatory Bowel Disease: Exploring the Potential Protective Role of Mindfulness, Acceptance, and Quality of Life

Hannah Boyd, Ashley Dunn, Shira Futornick, Anava Wren

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Breakout Option 4

1:25 - 2:25 p.m. - Richard

Engagement: IBD Across Generations

Isabella Grabrovaz, Kate Harrow, Jim Jacobson, Caroline Spaulding, Jeron Speaks

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2:25 - 2:35 p.m. - Break/Transition*

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2:35 - 3:35 p.m. - Role Specific Breakouts (6 Options)

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2:35 - 3:35 p.m. - Cadillac

Option 1

Coordinators

Serena Ames, Becky Johnson Rescola, Ella Mootz, Karan Mudaliar, Roger Odom, Sharon Perry, Michael Seid, Kim Shelly, Alicia Tironi, Ryan Waduge

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2:35 - 3:35 p.m. - Richard

Option 2

Dietitians

Shannon Paseka; Moderator: Chanel Lessing

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2:35 - 3:35 p.m. - Marquette A

Option 3

Patient Advisory Council (PAC)

Justin Hwang, Elizabeth McDermott

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2:35 - 3:35 p.m. - Marquette B

Option 4

Parent/Family Advisory Council (PFAC)

Maria Lester, Maria Tribble

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2:35 - 3:35 p.m. - Cabot

Option 5

Physicians, Advanced Practice Providers, Nurses, Pharmacists: Closing Care Gaps with Model Care Guidelines

Brendan Boyle, Nathan Fleishman, Magen Phillips, Tina Zhang 

🔗 Session Resources

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2:35-3:35 p.m. - Joliet

Option 6

Social Work and Psychosocial Professionals (SWAP)

Jennie David-Rodgers, Leah Wimberly

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3:35 - 3:55 p.m. - Break/Exhibitors*

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3:55 - 4:55 p.m. - Ambassador 1-2 (all sessions in this room)

Engagement Plenary

Moderator: Becky Johnson Rescola

Creating Better Care Together: Models and Lessons Learned for Patient and Family Partnership in IBD Care

Beyond the Patient Role: Integrating Adolescent Patient Partners in Pediatric IBD Care

Ashley Becker, Siera Lindo

Encouraging Patient Voice for IBD Education: A Scalable Model for IBD Engagement

Audrianna Sparks, Chelly Dykes, Samantha Hefner

10 Years of Co-Production... Lessons Learned

Jill Horan, Esther Israel

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4:55 - 5 p.m. - Ambassador 1-2

Day 1 Closing: Announcements and Next Steps*

Kendra Wiegand

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6:30 - 8:30 p.m. - 42 Degrees North

Social Reception

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Friday

Friday

7:00 - 8:00 a.m. - Ambassador 3

Community Breakfast*

Coordinator Breakfast*

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7:15 - 7:45 a.m. - Ambassador  Foyer

Exhibitors*

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8:00 - 8:10 a.m. - Ambassador 1-2

Welcome*

Kendra Wiegand

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8:10 - 8:20 a.m. - Ambassador 1-2

Parent Ignite Talk 

Leah Maggs

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8:20 - 9:20 a.m. - Ambassador 1-2

Clinical/Research Plenary

COMBINE in Action: Insights from Our Implementation Pilot

Esther Israel, Beth McDonough, Molly McGoldrick, Mallory Moor, Joanna Niklinska-Schirtz, Caitlin Williams

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9:20 - 9:25 a.m. - Ambassador 1-2

Breakout Session Logistics*

Kendra Wiegand

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9:25 - 9:40 a.m. - Transition*

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9:40 - 10:40 a.m. - Learn Do Share: Community Proposed Breakout III (3 Options)

🔗Review Session Descriptions

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Breakout Option 1

9:40 -10:40 a.m. - Cadillac

Engagement/Psychosocial: Running on Empty: How Patient and Caregiver Burnout Impacts Pediatric IBD Care