ImproveCareNow tracks measures of care for young patients with Crohn’s disease and ulcerative colitis in our network. Recently, we reported a shift in our prednisone-free clinical remission measure from 80.3% to 81.5%. This improvement means 248 additional ICN patients have achieved prednisone-free clinical remission. Analysis by ICN's data team determined that 41 care centers contributed to this shift with documented improved results in this measure.

Prednisone-free remission is an important measure to capture for signs of improvement among ICN's patient population, because it means that fewer patients are exposed to steroids that can have long term effects on the health and well-being of children.

Over the last 15-20 years, the Pediatric GI community has made a lot of progress in the treatment and management of children with IBD, especially since the approval of biologic therapies like Infliximab and Adalimumab. It has always been our goal to minimize steroid exposure of children with IBD with the network publishing the reduced usage of steroids.1 We are happy to see this reduced exposure results in the network's shift in prednisone-free remission rate, which translates into fewer children on steroids.  

Shehzad SaeedMD, FAAP, AGAFClinical Director, ImproveCareNow 

ImproveCareNow congratulates all of our network centers and teams for this fantastic accomplishment as we continue to work to reach our goals to transform the health, care, and costs for all children & adolescents with IBD.  

Related Links

1 Kandavel, Prashanthi; Eder, Sally J.; Adler, Jeremy. Reduced Systemic Corticosteroid Use among Pediatric Patients With Inflammatory Bowel Disease in a Large Learning Health System. Journal of Pediatric Gastroenterology and Nutrition 73(3):p 345-351, September 2021. | DOI: 10.1097/MPG.0000000000003182

About ImproveCareNow

ImproveCareNow is a Learning Health Network dedicated to transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (Inflammatory Bowel Disease or IBD) by building a sustainable collaborative chronic care network. We are enabling patients, families, clinicians and researchers to work together in a learning health care system to accelerate innovation, discovery and the application of new knowledge. We invite everyone interested in getting kids with IBD better right now to join us.

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