High Body Mass Index and Response to Anti-Tumor Necrosis Factor Therapy in Pediatric Crohn’s Disease
Ebach, Dawn R. MD; Jester, Traci W. MD, RD; Galanko, Joseph A. PhD; Firestine, Ann M. MS; Ammoury, Rana MD; Cabrera, Jose MD; Bass, Julie MD; Minar, Phillip MD; Olano, Kelly BA, BS; Margolis, Peter MD, PhD; Sandberg, Kelly MD, MSc; Linnville, Tiffany M. MD; Kaplan, Jess MD; Pitch, Lisa MA; Steiner, Steven J. MD; Bass, Dorsey MD; Moses, Jonathan MD; Adler, Jeremy MD; Gulati, Ajay S. MD; Wali, Prateek MD; Pashankar, Dinesh MD; Ivanova, Anastasia PhD; Herfarth, Hans MD, PhD; Wohl, David A. MD; Benkov, Keith J. MD; Strople, Jennifer MD, MS; Sullivan, Jillian MD, MSc; Tung, Jeanne MD; Molle-Rios, Zorela MD; Saeed, Shehzad A. MD; Bousvaros, Athos MD, MPH, FACG; Kappelman, Michael D. MD, MPH, FACG.
March 2024
Comparison of Paediatric Patients and Young Adults with Moderately to Severely Active Crohn’s Disease Treated with Ustekinumab in the REALITI Real-World Evidence Effectiveness Study
S Steiner, S Shehzad, J Adler, R B Colletti, R Strauss, J Heile, O Adedokun, A Sheahan, R Zhang, K H Lo, L Kim, Y Xiao, S Volger
January 2024
Comparison of all paediatric patients and young adults with Crohn’s Disease treated with ustekinumab in the REALITI Real-World Evidence Effectiveness Study
S Shehzad, S Steiner, J Adler, R B Colletti, R Strauss, J Heile, O Adedokun, A Sheahan, R Zhang, K H Lo, L Kim, Y Xiao, S Volger
January 2024
The Effect of Ustekinumab on Mucosal Inflammation in Paediatric Crohn’s Disease: The REALITI Real-World Evidence Effectiveness Study
J Adler, S Steiner, S Saeed, R Colletti, R Strauss, B Godwin, A Sheahan, R Zhang, L Kim, Y Xiao, S Volger
January 2024
Surveying outcomes of service user experience on the effects of emotional well-being and schooling in paediatric IBD (PIBD) patients in a tertiary PIBD centre
C Lashley, R Buckingham, B Huggett, T Sawney, S Chadokufa, F Kiparissi, A Elzein
January 2024
Surveying outcomes of service user experience on the effects of the transition process in paediatric IBD (PIBD) patients in a tertiary PIBD centre
R Buckingham, S Chadokufa, C Lashley, B Huggett, T Sawney, F Kiparissi, A Elzien Catherine Lashley Sibongile Chadokufa Bonita Huggett Terry Sawney Fevronia Kiparissi Aya Elzein
January 2024
A-LiNK: Prospective Outcomes of Pediatric Autoimmune Liver Disease in a Learning Health Network.
Amy Taylor, Cyd Castro-Rojas, Mosab Alquraish, Sakil Kulkarni, Janis Stoll, Mary Ayers, Zachariah Shalginewicz, Katelyn Saarela, Shehzad Saeed, Alexander Miethke, James Squires
Assessing Acceptance Among Young People with Inflammatory Bowel Disease: Development of the Inflammatory Bowel Disease Acceptance Questionnaire for Adolescents and Young Adults.
Anava Wren, Nicole Neiman, Rachel Bensen, Ann Ming Yeh, Laurie Keefer
Impact of Immunomodulator Withdrawal From Anti-TNF Therapy in Pediatric Patients with Crohn's Disease.
Anita Sharma, Jana Creps, Lauren Manning, Michaella Baker, Sabina Ali, Jonathan Moses, Brad Pasternak, David Suskind, Charles Samson, Jess Kaplan, Jeremy Adler
Exploring Health Mindset in Adolescents and Young Adults with Inflammatory Bowel Disease: Relationship Between Health Mindset and Psychosocial Outcomes.
Claudia Mueller, Nicole Neiman, Rachel Bensen, Ann Ming Yeh, Anava Wren
Effect of Proactive Therapeutic Drug Monitoring on Discontinuation of Anti-TNF Medications For Pediatric Patients with Crohn's Disease.
Jonathan Moses, Sabina Ali, Brad Pasternak, David Suskind, Charles Samson, Jess Kaplan, Jeremy Adler
Aminosalicylate Use in Pediatric Patients with Crohn's Disease.
Perseus Patel, Jess Kaplan, Jonathan Moses, Brad Pasternak, Charles Samson, David Suskind, Sabina Ali, Jeremy Adler
Therapeutic Drug Monitoring Practices, Barriers and Attitudes Among a Nationwide Learning Health System for IBD.
Ruben Colman, Jennifer Dotson, Kelly Sandberg, Shehzad Saeed, Peter Margolis, Jasbir Dhaliwal
Effects of Pre-Existing Atopy on Biologic Use Patterns in Crohn's Disease.
Archana Anandakrishnan, Jeremy Adler, Sabina Ali , Jess Kaplan, Jonathan Moses, Charles Samson, David Suskind, Brad Pasternak
High Out of Pocket Costs for Infliximab Infusions are Associated with Disease Activity in Pediatric Inflammatory Bowel Disease.
Christopher Moran, Jill Horan, Molly McGoldrick, Esther Israel
A Mixed Methods Exploration of Diversity, Equity, and Inclusion (DEI) Care Processes Within a Pediatric IBD Learning Health Network.
Parakala, Mahalakshmi; Kim, Sandra; David, Jennie; Pitch, Lisa
Using a Real Time Dashboard to Support Population Health in Inflammatory Bowel Disease.
Robert Lloyd, Leenoy Zaarur, Briana Procopio, Lisa McMahon, Christina Rodriguez, Vinay Vaidya, McCalley Steve, Pierina Ortiz, Ashish Patel, Jamie Smith, Brad Pasternak
Multidisciplinary Management, Anti-TNF Therapy, and Clinical Outcomes of Internally Penetrating Crohn's Disease Complication in Pediatrics: Interim Analyses of a Multicenter Retrospective Cohort.
Brad Constant, Janet Okraku-Mantey, Kelly Kachelries, Sudha Anupindi, Jing Huang, Robert Baldassano, Frank Scott, Edwin de Zoeten, Ryan Morrow, Sabina Ali, Becca Trombler, Brad Pasternak, Amanda Kuehn, Jacob Kurowski, Jessica Barry, Jeremy Adler, Ibrahim Tarabishy, Whitney Sunseri, Erin Crawford, Jennifer Dotson, Shervin Rabizadeh, David Ziring, Jeannie Huang, Rusvelda Cruz, Cary Sauer, Lindsey Albenberg
Understanding Pediatric GI Providers' Perceptions of and Engagement with Psychosocial Providers in Pediatric IBD Care
Jennie David, Ellen Sejkora, Hilary Michel, Laura Mackner
Multicenter Evaluation of Patterns of and Reasons for Biologic Medication Discontinuation Among Children with Crohn's Disease
Jeremy Adler, Jana Creps, Dianne Singer, Michaella Baker, Sabina Ali, Archana Anandakrishnan, Madeline Ford, Joanne Ginley, Jess Kaplan, Jonathan Moses, Charles Samson, David Suskind, Becca Trombler, Brad Pasternak
Disparities in Height at the Time of Inflammatory Bowel Disease Diagnosis
Joann Samalik, Jeremy Adler
Autoimmune Liver Disease Network for Kids (A-LiNK): Building a Learning Health Network within ImproveCareNow
Amy Taylor, James Squires, Cyd Castro Rojas, Shehzad Saeed, Kristin Howe, Mary Bauer, Lauren McClain, Mallory Moor, Jane Weyer, Christine Browner, Nicole Weyer, Fionna Kopp, Alexander Weymann, Sakil Kulkarni, Emily Perito, Heli Bhatt, Gillian Noel, Evelyn Hsu, Katelyn Saarela, Nitika Gupta, Leina Alrabadi, Mary Ayers, Mosab Alquraish, Saeed Mohammad, Peter Margolis, Alexander Miethke
Comparative Effectiveness of Ustekinumab Versus Vedolizumab in Tumor Necrosis Factor Inhibitor-Exposed Pediatric Patients with Ulcerative Colitis
Perseus Patel, Balu Bhasuran, Sofia Verstraete, Melvin Heyman, Atul Butte, Vivek Rudrapatna
Factors Impacting Pediatric Gastroenterologists Approach to Biosimilar Utilization in Inflammatory Bowel Disease Care
Ross Maltz, Madeline McClinchie, Brendan Boyle, Megan McNicol, Grant Morris, Erin Crawford, Jonathan Moses, Sandra Kim
Feasibility of Using Real-World Data from the ImproveCareNow Registry to Examine the Efficacy of Ustekinumab for Pediatric Crohn's Disease
Steven Steiner, Richard Strauss, Richard Colletti, Eileen King, Shiran Chen, Kelly Olano, Robert Baldassano, Stanley Cohen, Michael Kappelman, Shehzad Saeed, Yiting Wang, Sheri Volger
Changing Use of Biologic Medications and Associated Outcomes for Pediatric Inflammatory Bowel Disease
Jeremy Adler, MD
Predictors of Treatment Completion in Online Mindfulness-Based Interventions for Well-Being
French, N. J., Stromberg, A. R., Albury E. A., Stephan, N. J., George, N., Shannon, A. P., Yu, C., Rabideau, D. J., Pitch, L., Lunn, M. R., Obedin-Maliver, J., Sylvia, L. G., & Nierenberg, A. A.
Diagnosis Changes in Pediatric IBD: Data From The ImproveCareNow Registry
Kelly Sandberg, Harold Duarte, Adrienne Stolfi, Shehzad Saeed, DIAGNOSIS CHANGES IN PEDIATRIC IBD: DATA FROM THE IMPROVECARENOW REGISTRY, Inflammatory Bowel Diseases, Volume 27, Issue Supplement_1, January 2021, Pages S42–S43, https://doi.org/10.1093/ibd/izaa347.104
Self-Compassion in Adolescents and Young Adults with Inflammatory Bowel Disease: Relationship of Self-Compassion to Psychological and Physical Outcomes
Nicole Neiman, Ann Ming Yeh, Rachel Bensen, Elvi Sanjines, Anava Wren, SELF-COMPASSION IN ADOLESCENTS AND YOUNG ADULTS WITH INFLAMMATORY BOWEL DISEASE: RELATIONSHIP OF SELF-COMPASSION TO PSYCHOLOGICAL AND PHYSICAL OUTCOMES, Gastroenterology, Volume 160, Issue 3, Supplement, 2021, Pages S74-S75, ISSN 0016-5085, https://doi.org/10.1053/j.gastro.2021.01.181.
African American Race is Associated with Lower Health Literacy Among Caregivers of Children with Inflammatory Bowel Disease
Tiffany Linville, Emmala Waduge, Jeremy Adler, Sabina Ali, Rana Ammoury, Colleen Brensinger, Jose Cabrera, Ryan Cox, J. del Rosario, Jill Dorsey, Jennifer Dotson, Matthew Egberg, Mel Hyman, Tracy Jester, Subra Kugathasan, Ian Leibowitz, Maureen Mccauley, Zarela Molle Rios, Yuliya Rekhtman, Chip Samson, Kelly Sandberg, Jen Savas, Shehzad Saeed, Jennifer Strople, Jeanne Tung, Sofia Verstraete, James Lewis, Michael Kappelman
Risk Factors Associated with Severe Colitis and Colectomy in Pediatric Ulcerative Colitis: Results from the ImproveCareNow Network
Karine Amirikian, Jaeun Choi, Xianhong Xie, Mimi Kim, Gitit Tomer
Provider Practices in Management of Obesity in Patients with Pediatric Inflammatory Bowel Disease
Namrata Patel, Sofia Verstraete, Jennifer Burgis, Carly Isman, Luis Rodriguez, Emily Stekol, Sabina Ali
Approaching Obesity in Pediatric Inflammatory Bowel Disease: A Quality Improvement Initiative
Namrata Patel, Sabina Ali, Jennifer Burgis, Emily Stekol, Carly Isman, Luis Rodriguez, Sofia Verstraete
Depression screening in a pediatric IBD center
Talmadge C, Lewis G, Gold B, Gomez S, Reed B, Dykes D. Depression screening in a pediatric IBD center. 2020 Crohn’s & Colitis Congress, Austin, TX 2020.
Treatment Patterns of Newly Diagnosed Pediatric Ulcerative Colitis and Crohn’s Disease Patients in the ImproveCareNow Registry
Colletti, Richard. NASPGHAN 2020.
Personalized Research On Diet in Ulcerative Colitis and Crohn’s Disease (PRODUCE): A Series of N-of-1 Trials Comparing the Effectiveness of Two Diets
Kaplan, Heather. NASPGHAN 2020.
Phenotypic Presentation of Pediatric IBD in Asian American Children From The ImproveCareNow (ICN) Registry
Patel, Ashish. NASPGHAN 2020.
Trajectory, risk factors, and impact of abdominal pain during the first year after pediatric IBD diagnosis: Results from the ImproveCareNow Network
Murphy L, Gashi K, Kawamura J, Zhou C, Lynch D, Suskind D, Palermo T. Trajectory, risk factors, and impact of abdominal pain during the first year after pediatric IBD diagnosis: Results from the ImproveCareNow Network. NASPGHAN Annual Meeting, Chicago, IL 2019
Reduction in corticosteroid usage among pediatric patients with inflammatory bowel disease in a large learning health system
Kandavel P, Adler J, Meister S. Reduction in corticosteroid usage among pediatric patients with inflammatory bowel disease in a large learning health system. NASPGHAN Annual Meeting, Chicago, IL 2019
Insurance status but not race determines sustained remission in pediatric IBD
Doan S, Jofriet A, Scott O, Riswan A, Venkateswaran S, Somineni H, Niklinska-Schirtz B, Talmadge C, Fritzen C, Dinser M, Dykes D, Gold B, Sauer C, Kugathasan S, Schoen B. Insurance status but not race determines sustained remission in pediatric IBD. NASPGHAN Annual Meeting, Chicago, IL 2019
Anemia prevalence in pediatrics IBD: Still persisted after 1 year
Malik P, Kim M, Puopolo G, Thompson J, Tomer G. Anemia prevalence in pediatrics IBD: Still persisted after 1 year. NASPGHAN Annual Meeting, Chicago, IL 2019
Hospitalizations in children with inflammatory bowel disease
Alper A, Algara M, Phatak U, Pashankar D. Hospitalizations in children with inflammatory bowel disease. NASPGHAN Annual Meeting, Chicago, IL 2019
Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice
Steiner S, Liu C, King E, Israel E, Pasternak B, Schaefer M, Chen S, Pratt J, Lazar A, Bereswill M, Robinson A, Colletti R. Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice. 13th Congress of European Crohn's and Colitis Organization, Vienna, February 2018
Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure
Gupta N, King E, Liu C, Sylvester F, Lee D, Boyle B, Trauernicht A, Chen S, Pratt J, Colletti R. Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure. 13th Congress of European Crohn's and Colitis Organization, Vienna, February 2018
Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort. 13th Congress of European Crohn's and Colitis Organization, Vienna, February 2018
Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort. 13th Congress of European Crohn's and Colitis Organization, Vienna, February 2018
Treatment of pediatric Crohn's disease patients with early perianal complications
Adler J, Gadepalli S, Zacur G, Jarboe M, Dombkowski K. Treatment of pediatric Crohn's disease patients with early perianal complications. 2018 Crohn's & Colitis Congress, Las Vegas 2018
Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice
Steiner S, Liu C, King E, Israel E, Pasternak B, Schaefer M, Chen S, Pratt J, Lazar A, Bereswill M, Robinson A, Colletti R. Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice. ESPGHAN 51st Annual Meeting, Geneva 2018
Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure
Gupta N, King E, Liu C, Sylvester F, Lee D, Boyle B, Trauernicht A, Chen S, Pratt J, Colletti R. Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure. ESPGHAN 51st Annual Meeting, Geneva 2018
Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort. ESPGHAN 51st Annual Meeting, Geneva 2018
Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort. ESPGHAN 51st Annual Meeting, Geneva 2018
Looking the truth in the eye-benchmarking cares and outcomes against the world's largest paediatric IBD registry
Hensel K, Cunion D, Gasparetto M, Brennan M, Folan A, Lee C, Torrente F, Zilbauer M, Heuschkel R. Looking the truth in the eye-benchmarking cares and outcomes against the world's largest paediatric IBD registry. ESPGHAN 51st Annual Meeting, Geneva 2018
Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice
Steiner S, Liu C, King E, Israel E, Pasternak B, Schaefer M, Chen S, Pratt J, Lazar A, Bereswill M, Robinson A, Colletti R. Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice. Digestive Diseases Week 2018, Washington, DC 2018
Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure
Gupta N, King E, Liu C, Sylvester F, Lee D, Boyle B, Trauernicht A, Chen S, Pratt J, Colletti R. Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure. Digestive Diseases Week 2018, Washington, DC 2018
Uveitis in a multicenter pediatric inflammatory bowel disease population: results from the Improvecarenow Network
Schaefer M, Nelson A, Sanchez R. Uveitis in a multicenter pediatric inflammatory bowel disease population: results from the Improvecarenow Network. Digestive Diseases Week 2018, Washington, DC 2018
Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice
Steiner S, Liu C, King E, Israel E, Pasternak B, Schaefer M, Chen S, Pratt J, Lazar A, Bereswill M, Robinson A, Colletti R, ImproveCareNow Network. Evaluation of adalimumab effectiveness in paediatric patients with Ulcerative Colitis in clinical practice. Digestive Diseases Week 2018, Washington, DC 2018
Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Patterns of use and durability of initial and sequential biological agents in a large paediatric inflammatory bowel disease observational cohort. Digestive Diseases Week 2018, Washington, DC 2018
Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort
Kaplan J, Liu C, King E, Bass J, Patel A, Tomer G, Tung J, Pratt J, Chen S, Lissoos T, Colletti R. Factors associated with discontinuation of initial and subsequent tumour necrosis factor inhibitors in a large paediatric inflammatory bowel disease observational cohort. Digestive Diseases Week 2018, Washington, DC 2018
Looking the truth in the eye-benchmarking cares and outcomes against the world's largest paediatric IBD registry
Hensel K, Cunion D, Gasparetto M, Brennan M, Folan A, Lee C, Torrente F, Zilbauer M, Heuschkel R. Looking the truth in the eye-benchmarking cares and outcomes against the world's largest paediatric IBD registry. ESPGHAN 51st Annual Meeting, Geneva 2018
Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure
Gupta N, King E, Liu C, Sylvester F, Lee D, Boyle B, Trauernicht A, Chen S, Pratt J, Colletti R. Continued statural growth in older adolescents and young adults with Crohn's disease and ulcerative colitis beyond the time of expected growth plate closure. NASPGHAN Annual Meeting, Hollywood, FL 2018
Use of cannabis and opiates by adolescents and young adults with inflammatory bowel disease
Hoffenberg E, Murphy B, Mikulich-Gilbertson S, McWilliams S, Hoffenberg A, Hopfer C. Use of cannabis and opiates by adolescents and young adults with inflammatory bowel disease. NASPGHAN Annual Meeting, Hollywood, FL 2018
Outcomes in pediatric IBD patients not receiving immunological therapies
Benkov KJ, Serphos D. Outcomes in pediatric IBD patients not receiving immunological therapies. NASPGHAN Annual Meeting, Hollywood, FL 2018
Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice
Steiner S, King E, Park KT, Pashankar D, Shashidhar H, Sudel B, Eichner S, Chen S, Pratt J, Colletti R. Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice. ESPGHAN 50th Annual Meeting, Prague, May 2017
Successful use of the ImproveCareNow (ICN) quality improvement tool: Our 7-year outcomes and achievements
Chadokufa S, Acton N, Sider S, Sheppard R, Wearon R, Shah N, Knaflez D, Kiparissi F. Successful use of the ImproveCareNow (ICN) quality improvement tool: Our 7-year outcomes and achievements. 4th Annual International Symposium on Pediatric Inflammatory Bowel Disease, Barcelona, September 2017
Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice
Steiner S, King E, Park KT, Pashankar D, Shashidhar H, Sudel B, Eichner S, Chen S, Pratt J, Colletti R. Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice. 4th International Symposium on Pediatric Inflammatory Bowel Disease, Barcelona, September 2017
Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice
Steiner S, King E, Park KT, Pashankar D, Shashidhar H, Sudel B, Eichner S, Chen S, Pratt J, Colletti R. Evaluation of adalimumab effectiveness in anti-tumor necrosis factor-naïve pediatric patients with Crohn's disease in clinical practice. 12th Congress of European Crohn’s and Colitis Organization, Barcelona, September 2017
Outcomes from patient pre-visit planning (PVP) in Pediatric Inflammatory Bowel Disease (PIBD) using the ImproveCareNow (ICN) tool
Chadokufa S, Wearon R. Outcomes from patient pre-visit planning (PVP) in Pediatric Inflammatory Bowel Disease (PIBD) using the ImproveCareNow (ICN) tool. 4th Annual International Symposium on Pediatric Inflammatory Bowel Disease, Barcelona, September 2017
Why and how adolescents and young adults with inflammatory bowel disease use cannabis
Hoffenberg E, Murphy B, Mikulich-Gilbertson S, McWilliams S, Hoffenberg A, Hopfer C. Why and how adolescents and young adults with inflammatory bowel disease use cannabis. NASPGHAN Annual Meeting, Las Vegas, November 2017
The use of concomitant immunomodulators with adalimumab therapy in pediatric Crohn’s disease
Benkov K, Russell G, Samson C, Steiner S, King EC, Pratt J, Eichner S, Colletti RB and the ImproveCareNow Network. The use of concomitant immunomodulators with adalimumab therapy in pediatric Crohn’s disease. 11th Congress of European Crohn’s and Colitis Organization Congress, Amsterdam, March 2016
The use of concomitant immunomodulators with adalimumab therapy in pediatric Crohn's disease
Benkov JK, Russell GH, Samson C, Steiner S, King E, Pratt J, Eichner S, Colletti RB. The use of concomitant immunomodulators with adalimumab therapy in pediatric Crohn's disease. ESPGHAN 49th Annual Meeting, Athens, Greece, May 2016
Efficacy and safety of co-therapy of biologics and methotrexate in a pediatric inflammatory bowel disease (pIBD) cohort: a single centre experience
Lozinsky A, Kiparissi F, Huggett B, Chadokufa S, Sider S, Acton N, Baycheva M, Shah N. Efficacy and safety of co-therapy of biologics and methotrexate in a pediatric inflammatory bowel disease (pIBD) cohort: a single centre experience. World Congress of Pediatric Gastroenterology, Hepatology and Nutrition, Montreal, October 2016
Prevention of perianal disease among pediatric patients with Crohn's disease in a pediatric inflammatory bowel disease quality improvement collaborative
Adler J, Dong S, Dombkowski K. Prevention of perianal disease among pediatric patients with Crohn's disease in a pediatric inflammatory bowel disease quality improvement collaborative. World Congress of Pediatric Gastroenterology, Hepatology and Nutrition, Montreal, October 2016
Providing timely and reliable care: a quality improvement initiative to improve follow-up visit rates in IBD patients
Prendaj E, Thomas S, Tomer G. Providing timely and reliable care: a quality improvement initiative to improve follow-up visit rates in IBD patients. World Congress of Pediatric Gastroenterology, Hepatology and Nutrition, Montreal, October 2016
Implementing transition of care and transfer of care systems in pediatric IBD
Schaefer M, Tung J, Maddux M, Kim S. Implementing transition of care and transfer of care systems in pediatric IBD. Advances in IBD, Orlando, December 2016
Data on surgery in paediatric IBD (pIBD) over a 4-year period using the ImproveCareNow (ICN) collaboration data base
S Sider, S Chadokufa, B Huggett, N Shah, M Elawad, F Kiparissi. Data on surgery in paediatric IBD (pIBD) over a 4-year period using the ImproveCareNow (ICN) collaboration data base. 10th Congress of European Crohn's and Colitis Organization, Barcelona, Spain, February 2015
Improvement of patient's disease activity in paediatric inflammatory bowel disease (pIBD) after adoption of ImproveCareNow (ICN) quality improvement (QI) tool
B Huggett, S Chadokufa, S Sider, T Sawney, N Shah, M Elawad, F Kiparissi . Improvement of patient's disease activity in paediatric inflammatory bowel disease (pIBD) after adoption of ImproveCareNow (ICN) quality improvement (QI) tool. 10th Congress of European Crohn's and Colitis Organization, Barcelona, Spain, February 2015
Achieving remission in paediatric inflammatory bowel disease (pIBD): Data on mono- vs. combination therapy using the ImproveCareNow (ICN) data base
S Chadokufa, B Huggett, S Sider, N Shah, M Elawad, F Kiparissi. Achieving remission in paediatric inflammatory bowel disease (pIBD): Data on mono- vs. combination therapy using the ImproveCareNow (ICN) data base. 10th Congress of European Crohn's and Colitis Organization, Barcelona, Spain, February 2015
Identifying fistulizing Crohn's disease in a national pediatric inflammatory bowel disease quality improvement collaborative registry
Adler J, Dong S, Dombkowski K. Identifying fistulizing Crohn's disease in a national pediatric inflammatory bowel disease quality improvement collaborative registry. Poster presentation, Digestive Diseases Week, Washington DC, May 2015
Racial differences in initial presentation and early treatment of pediatric Crohn's disease - preliminary results from the ImproveCareNow Network
Dotson J, Cho M, Bricker J, Kappelman M, Chisolm D, Tomer G, Crandall W. Racial differences in initial presentation and early treatment of pediatric Crohn's disease - preliminary results from the ImproveCareNow Network. Oral presentation, Digestive Diseases Week, Washington DC, May 2015
Extent of disease in ulcerative colitis in a pediatric inflammatory bowel disease learning health network
Adler J, Grossman A, Israel EJ, Kim S, Saeed SA, Pratt JM, Collins J, Colletti RB, ImproveCareNow Network. Extent of disease in ulcerative colitis in a pediatric inflammatory bowel disease learning health network. Poster presentation at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Washington DC, October 2015
Feasibility of a mobile personalized learning system for assessing daily IBD symptoms and quality of life
Adler J, Saeed S, Thakkar S, Eslick I, Margolis P, Provost L, Kaplan H. Feasibility of a mobile personalized learning system for assessing daily IBD symptoms and quality of life. Poster presentation, Advances in IBD, Orlando, December 2015
Racial Differences in Initial Presentation, Early Treatment, and 1-Year Outcomes of Pediatric Crohn's Disease: Results from the ImproveCareNow Network
Dotson J, Cho M, Bricker J, Kappelman M, Chisolm D, Tomer G, Crandall W. Racial Differences in Initial Presentation, Early Treatment, and 1-Year Outcomes of Pediatric Crohn's Disease: Results from the ImproveCareNow Network. Poster presentation, Advances in IBD, Orlando, December 2015
A continuous state of beta: designing and implementing a learning exchange for chronic care
McLinden D, Myers SK. A continuous state of beta: designing and implementing a learning exchange for chronic care. Academy of Healthcare Improvement, March 2014
Healthier together: using a multimedia communication campaign and improvement science to build patient engagement in a learning health system
Opipari L, Margolis PA, Nocito S, Morgan P, Seid M. Healthier together: using a multimedia communication campaign and improvement science to build patient engagement in a learning health system. Academy of Healthcare Improvement, March 2014
Innovation insights from dynamic social network analysis in a digitally-enabled collaborative chronic care network
Provost S, McKean M, Grippa F, Thakkar S, Seid M, McDaniel R, Gloor P, Margolis PA. Innovation insights from dynamic social network analysis in a digitally-enabled collaborative chronic care network. Academy of Healthcare Improvement, March 2014
Section on Hospital Medicine Program "Collaborative Guideline Implementation & Learning"
Margolis PA. Section on Hospital Medicine Program "Collaborative Guideline Implementation & Learning". American Academy of Pediatrics National Conference & Exhibition, San Diego, CA, October 2014
Real-world clinical and comparative effectiveness of infliximab in pediatric Crohn’s disease
Kappelman MD, Bailey LC, Crandall WV, Zhang P, King E, Joffe M, Colletti RB, Forrest, CB and the ImproveCareNow Network. Real-world clinical and comparative effectiveness of infliximab in pediatric Crohn’s disease. Oral presentation, Digestive Diseases Week, Orlando FL, May 2013
Use of the emergency department in pediatric inflammatory bowel disease
Hoffenberg EJ, Fridge J, Leibowitz I, Tsou M, Dykes D, Kappelman M, Colletti R. Use of the emergency department in pediatric inflammatory bowel disease. Poster presentation, North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Chicago, October 2013
Creating the ImproveCareNow Learning Health System
Crandall WV, Margolis PA, Moon T, Colletti RB. Creating the ImproveCareNow Learning Health System. Learning Lab, Institute for Healthcare Improvement Forum, Orlando, December 2013
Feasibility and validity of the pediatric ulcerative colitis activity index in routine clinical practice
Dotson JL, Crandall WV, Zhang P, Forrest CB, Bailey CJ, Colletti RB, Kappelman MD. Feasibility and validity of the pediatric ulcerative colitis activity index in routine clinical practice. Oral presentation, Advances in IBD Conference, Hollywood FL, December 2013
Is there seasonal variation of disease activity in pediatric-onset inflammatory bowel disease?
Burkam J, Kappelman M, King E, Pratt J, Colletti R, Bistrick S, Crandall W. Is there seasonal variation of disease activity in pediatric-onset inflammatory bowel disease? Oral presentation, Digestive Diseases Week, San Diego CA, May 2012
Increased remission in a quality improvement collaborative for pediatric Crohn’s disease
Colletti RB, Crandall W, Kappelman M, Denson L, Duffy L, Grunow J, Kim S, Leibowitz I, Patel A, Schoen B, Milov D, King E, Pratt J, Margolis P, and the ImproveCareNow Collaborative. Increased remission in a quality improvement collaborative for pediatric Crohn’s disease. Poster presentation at the International Forum on Quality and Safety in Healthcare, Amsterdam, The Netherlands, April 2011
Are there gender differences in the clinical outcomes of pediatric inflammatory bowel disease?
Lee G, Kappelman MD, Boyle B, Colletti RB, King E, Pratt J, Crandall W. Are there gender differences in the clinical outcomes of pediatric inflammatory bowel disease? Oral presentation, Digestive Diseases Week, Chicago IL, May 2011
Improved outcomes in a quality improvement collaborative for pediatric ulcerative colitis
Crandall W, Kappelman M, Colletti RB, Denson L, Duffy L, Grunow J, Kim S, Leibowitz I, Patel A, Schoen B, Tomer G, Milov D, Cohen S, Margolis P, and the ImproveCareNow Collaborative (formerly PIBDNet). Improved outcomes in a quality improvement collaborative for pediatric ulcerative colitis. Oral presentation, Digestive Diseases Week, New Orleans, May 2010
Towards growing a COIN in a medical research community
Gloor PA, Grippa F, Margolis P, Seid M, Colletti R, Borgert A, Dellal G. Towards growing a COIN in a medical research community. Collaborative Innovation Conference, Savannah GA, September 2010
Quality Improvement in Pediatric Inflammatory Bowel Disease
Margolis PA, Kappelman MD, Crandall WV, Baron HI, Morgan P, Duffy L, Colletti RB. Quality Improvement in Pediatric Inflammatory Bowel Disease. Oral symposium presentations, Postgraduate Course, North American Society for Pediatric Gastroenterology Hepatology and Nutrition, New Orleans, October 2010
Increased remission in a quality improvement collaborative for pediatric Crohn disease
Crandall W, Kappelman M, Colletti RB, Denson L, Duffy L, Grunow J, Kim S, Leibowitz I, Patel A, Schoen B, Tomer G, Milov D, Cohen S, Margolis P, and the ImproveCareNow Collaborative (formerly PIBDNet). Increased remission in a quality improvement collaborative for pediatric Crohn disease. Poster presentation, North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, National Harbor, MD, November 2009
A rapid pediatric Crohn's disease activity index for quality improvement and observational research
Kappelman, M, Goudie, A. Crandall, W, Larry, E, Fairbrother, G, Margolis, P, Leibowitz, I, Duffy, L, Milov, D, Kim, S, Schoen, B, Cohen, S, Patel, A, Grunow, J, Colletti, R, and the ImproveCareNow Collaborative (formerly PIBDNet). A rapid pediatric Crohn's disease activity index for quality improvement and observational research. Poster presentation, North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, National Harbor, MD, November 2009
Improved outcomes in a quality improvement collaborative for pediatric Crohn disease
Crandall W, Kappelman M, Colletti RB, Denson L, Duffy L, Grunow J, Kim S, Leibowitz I, Patel A, Schoen B, Tomer G, Milov D, Cohen S, Margolis P, and the ImproveCareNow Collaborative (formerly PIBDNet). Improved outcomes in a quality improvement collaborative for pediatric Crohn disease. Oral presentation, Advances in IBD Conference, Hollywood, FL, December 2009
Improving care of pediatric inflammatory bowel disease: preliminary results of a multicenter improvement collaborative
Kappelman MD, Cohen SA, Crandall W, Duffy L, Gold BD, Grunow J, Kim SC, Leibowitz I, Margolis PA, Mehta DI, Milov DE, Moyer MS, Myers S, Patel AS, Schoen B, Sudel B, Bornstein JA, Colletti RB. Improving care of pediatric inflammatory bowel disease: preliminary results of a multicenter improvement collaborative. Poster presentation at the Pediatric Academic Societies Annual Meeting, Honolulu HI, May 2008
Accelerating improvement in the management of pediatric inflammatory bowel disease
Kappelman MD, Cohen SA, Crandall W, Duffy LF, Gold BD, Grunow J, Kim SC, Leibowitz I, Margolis P, Mehta DI, Milov DE, Moyer MS, Myers SK, Patel AS, Schoen BT, Sudel B, Colletti RB. Accelerating improvement in the management of pediatric inflammatory bowel disease. Poster presentation at Digestive Diseases Week, San Diego CA, May 2008
Growth failure in a pediatric inflammatory bowel disease registry (PIBDNet) with specific association to disease phenotypeGrowth failure in a pediatric inflammatory bowel disease registry (PIBDNet) with specific association to disease phenotype
Patel AS, Kim S, Kappelman M, Colletti R, Cohen S, Grunow J, Crandall W, Duffy L, Gold B, Leibowitz I, Margolis P, Mehta D, Milov D, Moyer S, Myers S, Schoen B, Sudel B, Bornstein J. Growth failure in a pediatric inflammatory bowel disease registry (PIBDNet) with specific association to disease phenotype. Poster presentation at the 3rd World Congress of Pediatric Gastroenterology, Hepatology and Nutrition, Iguassu Falls, Brazil, August 2008
The quality of care in pediatric inflammatory bowel disease: does the chronic care model work?
Kappelman M, Margolis P, Moyer M, Cohen S, Gold B, Crandall W, Patel A, Mehta D, Milov D, Grunow J, Leibowitz I, Colletti R. The quality of care in pediatric inflammatory bowel disease: does the chronic care model work? Poster presentation, North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Salt Lake City, Utah, October 2007
Variation in initial 6-mercaptopurine dosage in pediatric Crohn's disease
Colletti RB, Baldassano RN, Milov DE, Margolis PA, PIBDNet –the Pediatric IBD Network for Research and Improvement. Variation in initial 6-mercaptopurine dosage in pediatric Crohn's disease. Poster presentation, Digestive Diseases Week, Los Angeles, CA, May 2006
Predictors of outcome of treatment of pediatric Crohn’s disease with 6-mercaptopurine or azathioprine
Colletti RB, Baldassano RN, Milov DE, for PIBDNet—the Pediatric IBD Network for Research and Improvement. Predictors of outcome of treatment of pediatric Crohn’s disease with 6-mercaptopurine or azathioprine. Poster presentation at the First International Symposium on Pediatric Inflammatory Bowel Disease, Rome, Italy, November 2006
Initial dosage of 6-mercaptopurine in pediatric Crohn’s disease: a study of variation in care
Colletti RB, Baldassano RN, Milov DE, for PIBDNet—the Pediatric IBD Network for Research and Improvement. Initial dosage of 6-mercaptopurine in pediatric Crohn’s disease: a study of variation in care. Poster presentation at the First International Symposium on Pediatric Inflammatory Bowel Disease, Rome, Italy, November 2006
PIBDNet—the Pediatric IBD Network for Research Improvement: First steps towards a great leap
Colletti RB. PIBDNet—the Pediatric IBD Network for Research Improvement: First steps towards a great leap. Plenary session presentation at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Salt Lake City, UT, October 2005
Variation in initial evaluation and treatment of pediatric Crohn disease
Colletti R, Baldassano R, Milov D, Margolis P, for PIBDNet—the Pediatric IBD Network for Research and Improvement. Variation in initial evaluation and treatment of pediatric Crohn disease. Poster presentation at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Salt Lake City, UT, October 2005
Variation in initial 6-mercaptopurine dosage in Crohn disease
Baldassano R, Colletti R, Milov D, Margolis P, for PIBDNet—the Pediatric IBD Network for Research and Improvement. Variation in initial 6-mercaptopurine dosage in Crohn disease. Poster presentation at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Meeting, Salt Lake City, UT, October 2005