We believe that many of the most innovative and potentially high-impact ideas for improving pediatric IBD care are likely to come from those living with the condition daily. Because of this, ImproveCareNow has launched the ImproveCareNow Patient and Parent Innovation Fund. The awardees for the pilot year of this program have now been announced!

Made possible with support from the David R. Clare and Margaret C. Clare Foundation, the ImproveCareNow Patient and Parent Innovation Fund will provide financial and network resources to two innovative projects in this, its inaugural year. The 2017 Awardees are:

MassGeneral Hospital for Children

Jill Horan, Dan Horan, Em Horan, Nicole Steeves & Mike Steeves

Clinical Partners: Judy Burrows, LMSW; Jess Kaplan, MD; Christopher Moran, MD; Esther Israel, MD

This project aims to increase the number of participants enrolled in MassGeneral Hospital for Children’s Inflammatory Bowel Disease Patient & Parent Advisory Team engagement group and formalize the group model to serve as an example of how to create and grow these programs across the ImproveCareNow Network. The project will culminate in a manual providing instructions on how to create these programs at other ImproveCareNow centers and potentially, data describing the relationship between these groups and patient/family quality of life outcome measures that could be leveraged to help secure funding to support new programs and sustain existing ones.

Stanford Children’s Health

Mary McGowan, Candace Kelley & Mary Jo McCarthy

Clinical Partners: Megan Christofferson; Jennifer Burgis, MD; Rachel Bensen, MD, MPH; Kaylie Nguyen, NP; Anava Wren, PhD; KT Park, MD, MS

This project will pilot test hosting and video recording a cooking class that demonstrates to care center participants how to cook healthy meals for patients with IBD as an educational and local community-building activity. The goal is to build self-management skills and foster community for patients with IBD through an eventual series of interactive events and to provide a model for other ImproveCareNow centers that wish to use similar events to build local community.


Congratulations to these parent and patient awardees. We look forward to learning from you and to sharing the impact of your work with the ImproveCareNow community!



About the ImproveCareNow Parent & Patient Innovation Fund

Parent & Patient Innovation Fund projects were selected for award based on their proposed projects’ alignment with the ImproveCareNow community’s mission to transform the health, care and costs for all children and adolescents with Crohn’s disease and ulcerative colitis, as well as their potential to enhance and expand participation in the ICN community, giving more patients, parents, and others the opportunity to become part of this Learning Health System. In addition to funding, both awarded projects will receive clinician or improvement expert mentoring, project management support, and ongoing feedback from Network leaders and faculty. Read more about the Innovation Fund here.

About ImproveCareNow

ImproveCareNow is a Learning Health Network dedicated to transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (Inflammatory Bowel Disease or IBD) by building a sustainable collaborative chronic care network. We are enabling patients, families, clinicians and researchers to work together in a learning health care system to accelerate innovation, discovery and the application of new knowledge. We invite everyone interested in getting kids with IBD better right now to join us!

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