David Wohl (parent of a child with Crohn's disease) and Mike Kappelman (pediatric gastroenterologist at UNC Children's), in collaboration with the Crohn’s & Colitis Foundation, ImproveCareNow, and NASPGHAN, have developed a slide set and pre-recorded webinar to help patients & families understand more about the purpose and process of clinical research, including clinical trials. The aim is to provide education to patients and families, and increase awareness about clinical research so that when they are approached and asked to participate in a clinical research project they can have an idea of what may be involved. Care teams can choose to incorporate the slides or webinar recording into local educational programs (i.e. an IBD education day), or share the resources with patients and families directly when discussing clinical trials. We hope these Clinical Research 101 resources are useful to patients, families, and IBD care teams.
Clinical Research 101: Patients and Clinicians Gearing up to Discover Together – View Presentation
Understanding the Importance of Pediatric Clinical Trials - Parent Guide
Nicole Learns about Clinical Trials – Patient Guide
