8 Supporting Your Child

🔗 Links for Caregiver Coping Resource Section 8 - Supporting Your Child

8a - Talking About Emotions and Coping with Your Child

• American Psychological Association (APA)’s Magination Press publishes some excellent children’s books about all types of emotions and life experiences, including medical conditions
• ImproveCareNow’s Finding a Mental Health Professional resource
• brief videos of former Patient Advisory Council members from ImproveCareNow talking about why it’s important to talk about their feelings

8b - Seeking Peer Support for Your Child

• Crohn's & Colitis Foundation educational and advocacy events
• Crohn’s & Colitis Foundation’s Camp Oasis (a 1-week camp for patients with IBD)
• ImproveCareNow’s Patient Advisory Council (PAC)
• Crohn’s & Colitis Foundation’s Power of Two program
• Autoimmune Liver Disease Network's A-LiNK Connections (AILD)

8c - Checking in with Your Child - When to Push and When Not To Push

• ImproveCareNow’s Finding a Mental Health Professional resource

8d - Supporting a Healthy Body Image and Food Relationship

• Body Image Toolkit from ImproveCareNow
• Crohn’s & Colitis Foundation’s Diet and Nutrition page
• dietary resources through ImproveCareNow
• Nutritional Therapy for IBD
• Finding a Mental Health Professional resource

8e - Advocating for Your Child In and Out of the Medical Setting

• this resource from Courageous Parents Network for when you notice having a different approach than your child's team
• A resource from Courageous Parents Network about navigating the hospital
• Accommodations toolkit from ImproveCareNow
• Accommodations resource from the Crohn’s & Colitis Foundation
• Crohn’s & Colitis Foundation for what schools should know about IBD
• The A-LiNK Manual (this is an excellent and lengthy resource) under the Tools and Resources section
• Autoimmune Hepatitis Association
• PSC Partners Seeking A Cure

8f - Teaching Developmentally Appropriate Self-Advocacy Skills

• one hour webinar from the Crohn’s & Colitis Foundation on transitioning with IBD and strategies for teenagers and young adults