The Advocacy task force works on various projects that serve to raise awareness and support for kids with IBD. These projects often make changes to patient care and patient support.
Some Past Projects:
Ostomy Toolkit: PAC members assembled a compilation of resources for patients with ostomies. Each member who contributed had some kind of experience with an ostomy which made for a valuable perspective. This resource includes things like: what to wear; playing sports with an ostomy; and choosing the right type of bag for you.
Body Image Toolkit: PAC members assembled stories and comments about members’ experiences with Body Image and IBD. Topics include NG Tubes, weight gain/loss and scars.
IBD Storybook: PAC members wrote about their lives with IBD in this resource. Perfect for newly diagnosed patients, the IBD Storybook helps IBD patients identify with other patients encountering similar obstacles.