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Episode 32 of the imPACt podcast - What Patients Need From Providers with SWAP

We are excited to welcome back former PAC co-chair, Dr. Jennie David (now a licensed pediatric IBD psychologist) as a host for this episode of imPACt. During episode 32 we talk about whole person care in IBD and get to ask a psychologist, social worker, and medical provider (nurse practitioner) how they came to work in pediatric IBD and how they learned about the mental health components of IBD.

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IGNITE - My friend...IBD

What if your closest friend had a habit of interrupting your plans and not listening when you begged them to stop? You might might wish to end that friendship. But, as Mahalakshmi points out in her #IgniteTalk, which she shared at both our in-person and our virtual community conference this fall, when "friend" is really a metaphor for IBD there isn't really a choice. 

Be inspired by Mahalakshmi's #IgniteTalk 🔥 

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IGNITE - IBD is a marathon AND a sprint

Inspiring, honest and motivational. Those were the words used to describe IBD parent, Ildiko's #IgniteTalk. In it she reminded us all of the critically important and unique perspective that parents and caregivers of young people with IBD bring to the discussion. She asked us to remember that while we collaborate on the big challenges that IBD presents, there are also small things we can do to make a difference right now (like watching our language). And she issued a call to action for us to work together to make truly meaningful progress in outcomes for kids with IBD and also to really believe that radical, transformative progress is possible.

Be inspired by Ildiko's #IgniteTalk 🔥

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Professor NiMBAL is helping IBD patients and their families get better care

David Suskind, MD is an IBD clinician and researcher, as well as physician leader of ImproveCareNow at Seattle Children's Hospital. At our Fall 2022 Community Conference, Dr. Suskind shared the Professor NiMBAL comic, which presents important information about Crohn's disease and ulcerative colitis in a way that is easy to digest and feels less scary. Read more about how the comic came to be as Dr. Suskind answers our Challenge, Choice, Outcome interview questions.

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Episode 30 of the imPACt podcast - High School, College, Grad School & IBD

Join Vanessa, Hannah and Fionna for their conversation about IBD during different stages of schooling. Between the three, they have lived experiences with both Crohn's disease and ulcerative colitis, with being diagnosed at different life stages (during early education and in high school) and with balancing high school, college and grad school with IBD.

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Join Us - Fall 2022 *VIRTUAL* Community Conference

We are hosting a Fall 2022 Virtual Community Conference as a way for us to connect, share information and updates, and learn from each other. This event is online, and is free & open to all who want to attend. We are keeping it brief (90 minutes), conveniently timed (6:30-8pm ET/3:30-5pm PT) and flexible - making it easy for you to drop in for some or all of the event. Our content is all intentionally focused toward patients and caregivers living with IBD. So, please join us (and invite someone you care for to join us) for #ICNVCC on November 9 from 6:30-8pm ET/3:30-5pm PT. 

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Parent reflections on our Fall 2022 Community Conference

Jane Weyer is a member of the ImproveCareNow Parent/Family Advisory Council and also an A-LiNK Connections Parent Co-Lead. She joined us at our Community Conference this September to reconnect with colleagues, friends and ICN family in person for the first time since 2019. Jane shared her own heartfelt reflection, as well as sentiments from PFAC members, about their time together in Dallas.

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iVHOODIES - An Update on The IV Sweatshirt

The iVHOODIE provides IV access in either arm for children and adults.

Thank you for following our story! Since our last blog, Ella (who is now 15!) and I (Emily) have completed our planned iVHOODIE donation to Yale Children’s Hospital through the generous ImproveCareNow Innovation Fund grant we received in 2019. When we set out to create a sweatshirt that was comfortable and provided IV access to both arms for people receiving infusions, during the height of a global pandemic, we could barely imagine producing a successful prototype let alone delivering 55 iVHOODIES - but here we are! With support from ICN and Yale we have accomplished our goal! We are forever grateful to ICN for helping us to achieve this and kickstart the future of iVHOODIES! 

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