Overall Study Question: Does increased engagement in a learning health network result in increased production and sharing of patient-oriented resources?

Specific Aims:

Aim 1: Measure resource production across learning health networks. Quantify and characterize the number/type of patient-oriented resources shared within ImproveCareNow (ICN) and Cystic Fibrosis Learning Network (CFLN) including blog posts, toolkits, pre-visit planning, etc.
Aim 2: Determine the relationship between the number of contributors and owners in the network and the number and type of resources produced. Describe the relationship between the number of patient/family contributors/owners and the number/complexity of patient-oriented resources produced.
Aim 3: Explore network factors that influence the rate of resource production. Interview ICN and CFLN stakeholders and perform qualitative data analysis to identify the themes related to network engagement and resource production.

Study Period: April 2022-April 2023

Contact: Maureen Dunn, MD

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