ImproveCareNow Fall 2025 Community Conference

General Info, Hotel, Wi-Fi & Floor Plans

Hotel Information

Hyatt Regency Grand Cypress Hotel
1 Grand Cypress Blvd, Orlando, FL 32836

Wi-Fi

Network: ImproveCareNow

Password: ICNCC2025

Floor Plan & Resort Map

ICN Hub

⭐ Important note: ImproveCareNow network participants use the ICN Hub to collaborate and share files. Many of the links shared will work best if you are already signed in to your ICN Hub account. Presentations from the Fall Community Conference will be posted on the Hub after the event.

Join the ICN Hub.

Registration closed Monday, September 15 at 5 p.m. ET

Conference Justification Letter

To support clinicians in making the case for local funding to participate in the Community Conference, we have created a Conference Justification Letter.  Please consider customizing this template, should you need to request funding from senior leadership at your care center.

Agenda

🌟Download the Agenda

Plan Your Day

Wednesday, September 17: Networking

Parent/Family Advisory Council (PFAC) & All Provider Sip and Connect
Welcome Reception/Community Engagement Fair

Thursday, September 18: Pre-Conference & Lunch

Pre-Conference Breakfast: Nestlé Health Science Symposium
Nestlé Health Science Lunch

Thursday, September 18: Community Conference

Clinical/Research Plenary: Very-Early Onset Inflammatory Bowel Disease within the ImproveCareNow Learning Health System and in Clinical Practice

Friday, September 19: Community Conference

Clinical Plenary: Dietary Therapy in Crohn’s Disease: Past, Present, Future
Clinical/Engagement Plenary: Seeing the Whole Patient: Understanding Avoidant/Restrictive Food Intake Disorder (ARFID) in IBD and Its Impact on Health Outcomes

Learner Objectives

Apply best practices demonstrated through ImproveCareNow quality improvement, research, clinical practice, and community engagement skills to accelerate improvement in outcomes.
Develop connections and relationships with clinicians, patients, parents, and trusted partners to work together in new ways for the benefit of the IBD community.
Describe strategies to optimize workflows and leverage technology advancements to enhance clinical experience and improve outcomes.
Examine the latest research, emerging innovations, and ICN best practices to realize our strategic priorities.

Session Descriptions & Handouts

Refer to the following list of options as you decide which breakout sessions to attend at the ImproveCareNow Fall 2025 Community Conference. Consult with colleagues attending from your center (including parent and patient partners) to maximize your team’s exposure to these sessions—plan to divide and conquer! Please contact [email protected] with any questions about these sessions.

⭐ Important note: ImproveCareNow uses the ICN Hub to share many handouts and resources. Many of the links below will work best if you are already signed in to your ICN Hub account.

Jump to Friday

Thursday, September 18

7:15 am Pre-Conference Breakfast: Nestlé Health Science Satellite Symposium

Progresses in Dietary Therapy for Crohn’s Disease

Lindsey Albenberg: Crohn's Disease Exclusion Diet: Evidence-Based Approaches and Evolving Insights

Discuss dietary therapy, the origins of the CDED diet, and original pediatric trials
Describe new studies and what we can extrapolate from recent studies as well as adult trials
Analyze modifications to CDED, including safe modifications for dietary preferences and cultural patterns/location, novel ways to use the CDED therapy, and making the link between optimal nutrition and improvement.

David Suskind: The Microbiome-Diet Axis in Crohn’s Disease: Unlocking Gut Health Through Nutrition

Decode the microbiome – Understand how gut microbes drive inflammation and shape Crohn’s disease
Map diet to microbes – See how foods and dietary patterns alter the gut ecosystem and immune responses
Turn science into therapy – Learn how insights from the microbiome-diet axis can guide nutrition strategies for better gut health

10:00 am Pathway to Mastery Advancement and Outcomes

Pathway to Mastery Is Not a One-Way Street: Navigating Staffing Transitions and
Sustaining ICN Engagement

Communicate how staffing transitions affect ICN participation for a center
Strategies for transitioning staff into roles / leaning on the ICN community for support
Redefine what success looks like at your center / nurture your champion

11:00 am Community Proposed Breakout I

Clinical: Prevention: The Next Frontier for Improvement

Objectives coming soon!

Engagement: Past as Prologue: A Journey Through Co-Production in ICN with Early PAC Leaders

Explore how the ICN Network supports individuals in dual roles (personal and professional experience with IBD) and our unique perspectives gained from the experience of “growing up inside” ICN.
Examine the value, accessibility, and impact of co-produced resources within the ICN Network.
Identify current gaps and future opportunities for growth within the ICN Network as it relates to co-produced resources, including leveraging the process and outcomes of co-production to reduce health equity gaps

Access resources shared during this session (like the Ostomy Toolkit) on the ImproveCareNow Website, including the Ostomy Toolkit & Surgery Shared Decision Making Toolkit.

QI & Data/Technology: How to Create a Basic Dashboard Using Microsoft Excel

Discuss how to arrange data for visualization at-a-glance
Construct charts in Excel - Bring your laptop to follow along!
Learn ways to use pivot tables and GETPIVOTDATA to automatically update charts
Create a dashboard from data

12:25 pm Nestlé Health Science Lunch

Please submit any questions for the session presenters

1:30 pm Community Proposed Breakout II

Clinical & Data/Technology:

From Troughs to Triumph: Therapeutic Drug Monitoring for Pediatric Patients with IBD Starting Adalimumab

Explain the importance of post induction Therapeutic Drug Monitoring (TDM) after starting adalimumab
Describe the quality improvement tools that can be used to reduce variation in care around TDM for adalimumab
Describe the interventions used to increase the rate of post-induction TDM for adalimumab

Leveraging the Electronic Medical Record to Streamline Therapeutic Drug Monitoring (TDM)

Demonstrate how an Electronic Health Record (EHR) can be utilized to streamline Therapeutic Drug Monitoring (TDM) during the maintenance phase
Assess types of interventions identified through a structured TDM review process
Analyze the clinical impact of routine TDM reviews in the maintenance phase of biologic therapy

Equity: Equity in Every Encounter: Social Drivers of Health (SDoH) Screening That Works

Define Social Drivers of Health (SDOH)and understand how SDOH impact chronic disease management and outcomes
Understand the current state of SDOH screening in the ICN Network by highlighting reliable processes at different ICN care centers.
Compare the various SDOH screening tools available to providers to assess for at risk SDOH in their patient population
Identify and discuss common barriers and solutions for SDOH screening through small-group discussion

Resources:

SDOH Screener Comparison - log-in to The Hub first if hyperlink doesn't immediately work

Clinical & QI: Coordinated in Care, Driven by Purpose: Orchestrating Quality Improvement Tools to Advance Outcomes in Pediatric Inflammatory Bowel Disease Care

Understand application of Quality Improvement tools (PDSA, KDD, sFMEA, Run Charts) in real-world pediatric IBD settings and learn how to adapt tools based on team capacity, patient needs, and evolving center priorities
Improve care coordination through effective pre-visit planning (PVP) and communication strategies and enhance data capture, reduce variability, and increase documentation credibility
Promote a flexible, replicable model that can be used by other centers during organizational or clinical transition

3:10 pm Role Specific Sessions

Join your colleagues to discuss updates to current projects, celebrate successes, troubleshoot any challenges and identify new opportunities to improve outcomes for families.

Coordinators

Register for Registry Refresh: Enhancements for Better Outcomes on Wednesday September 24, 2025 at 1 p.m. ET to learn more about the Population Management Reports

Dietitians

Physicians, Advanced Practice Providers, Nurses, Pharmacists: Improving Access to IBD Medications: Mastering the Process

Fill out the Medication Authorization Process Survey
Prior Authorization Letters & Appeals Templates & Examples:
- Log-in to the ICN Hub to use the hyperlinks below or
- Navigate to the folder: Network Files--> Letter Templates--> All Things Prior Authorizations

Patient Advisory Council

Fill out the Patient / Parent Community Conference Reflections survey.

Parent/Family Advisory Council (PFAC)

Fill out the Patient / Parent Community Conference Reflections survey.

Social Work and Psychosocial Professionals (SWAP)

4:25 pm Clinical/Research Plenary: Very-Early Onset Inflammatory Bowel Disease within the ImproveCareNow Learning Health System and in Clinical Practice

Understand the Very-Early Onset Inflammatory Bowel Disease (VEO-IBD) population within ICN
Review of literature informing biologic use and treatment strategies in VEO-IBD
Provide practical guidance regarding care of VEO-IBD in clinical practice
Provide a parent/caregiver perspective on the challenges associated with the diagnosis and treatment of VEO-IBD

Friday, September 19

8:10 am Clinical Plenary

Dietary Therapy in Crohn’s Disease: Past, Present, Future

Understand the role of Exclusive and Partial Enteral Nutrition (EEN/PEN) in Crohn’s disease management
Evaluate the impact of food additives and dietary components on gut health and inflammation
Explore emerging therapeutic diets and the concept of precision nutrition in IBD

9:40 am Community Proposed Breakout III

Clinical & Research: COMBINE-ing Efforts: Advancing Crohn's Disease Care with Implementation Science

Summarize the major findings from the COMBINE study including current trends in combination therapy in pediatric IBD and plans for implementation
Understand key principles of implementation science to support adoption of pediatric IBD study findings

Psychosocial: Navigating the Pitfalls of Implementing Depression Screenings in a Resource-Limited Practice

Present current limitations relating to depression screening and interventions for IBD patients in a facility without psychological or social services
Gain insight from patients and their families regarding existing psychological care and resources available in the outpatient pediatric gastroenterology setting
Collaborate with external stakeholders, considering current practices of other resource-limited or resource-rich facilities, to optimize depression screening and implementation practices

Clinical & Engagement: IBDream Team: Adding a Pharmacist to Your Lineup

Describe the complexity of medication therapy challenges for pediatric IBD patients
Describe the role of IBD pharmacist reviewing new prescriptions
Discuss pharmacist-led medication education with families
Review pharmacy intervention for access to IBD medications
Explore plausible logistics to integrate pharmacy into your IBD team

10:55 am Pathway to Mastery Learning Labs

Not sure which Learning Lab your care center is in? You can review the list here: 

Pathway to Mastery - Care Center List

ICN Network participants can find their Learning Lab groups on the ICN Hub.

If you are not currently a part of your Learning Lab Hub group, you will need to request to join by navigating to Network -> Private Groups, and then requesting to join your Learning Lab Hub group.

Foundations Pathway
- Foundations Learning Lab Group
Remission Pathway
- Pre-Visit Planning and Population Management Learning Lab Group
Sustained Remission Pathway
- Clinical Standardization/Personalized Care Learning Lab Group

12:35 pm Research Plenary

Clinical/Engagement Plenary: Seeing the Whole Patient: Understanding Avoidant/Restrictive Food Intake Disorder (ARFID) in IBD and Its Impact on Health Outcomes

Define Avoidant Restrictive Food Intake Disorder (ARFID) and its relevance to children with Inflammatory Bowel Disease (IBD)
Recognize the prevalence and clinical significance of ARFID among youth with IBD
Gain insight into the lived experiences of youth with IBD and ARFID and how ARFID influences psychosocial functioning and quality of life
Understand key psychosocial outcomes and dietary patterns that are associated with ARFID in pediatric IBD populations
Identify strategies for early screening and multidisciplinary intervention to address ARFID in pediatric IBD care settings

Back to ICNCC25F Event Page

Conference Evaluation

Submit the ICNCC25F Conference Evaluation

Evaluations are due October 19, 2025

CME, CNE, IPCE & CEUs

All Attendees

Tell us what you think! Please submit your Conference Evaluation. The deadline to submit feedback is October 19, 2025.

After the Fall 2025 Community Conference, we will share the Conference Evaluation with all attendees. If you are seeking CME, CNE, IPCE, or MOC Part II credit, please see the steps below. If you have any questions or concerns, please email [email protected].

Claiming Continuing Education Credit

Requirements for claiming CME/CNE/IPCE Credit:

Register and attend the Fall 2025 Community Conference
Attend the Community Conference
Submit your Attestation Form to the CCHMC Cloud

⭐ Your Attestation Form must be submitted by 10/19/2025 to receive any form of credit ⭐

CME/CNE/IPCE Credit Hours:

Please review the Education Handout if you are planning to claim education credit. The following credits can be awarded:

10.75 credit hours can be awarded for AMA PRA Category 1 Credit(s)™
10.75 credit hours for Continuing Nursing Education (CNE) contact hours
10.75 credits for Interprofessional Continuing Education (IPCE) credits
6.00 Social Workers CEU points

Social Worker CEU Credit

Requirements for Earning up to 6 CEU credits:

Attend the approved sessions eligible for CEU credit at the Community Conference. The approved sessions are denoted with 💙 on the agenda.
Complete the sign-in sheet and select the sessions that you attended
Complete the general conference evaluation and Attestation Form on the CCHMC Cloud
Complete the unique session evaluation and provide responses for sessions that are attended by September 26, 2025 via a digital survey that will be emailed to you from Linda Demosthenes (CCHMC) after the event.

Conference Supporters

Pre-Work

Pathway to Mastery Learning Lab Breakouts

❗Some files are on the ICN Hub. If you do not have an ICN Hub account, you can register here.

Not sure which Learning Lab your care center is in? You can review the list here: 

Pathway to Mastery - Care Center List

If your care center is in the Foundations Learning Lab

As pre-work for the upcoming ICN Community Conference, please complete this Center Self-Assessment. We are asking each person on your team to complete the assessment. This tool will be used to guide learning lab time, measure center-level outcomes, advance QI skills & projects, and develop ICN network activities. We will use this information to tailor content at our Community Conference and in 2026 Learning Labs to best meet your needs.

If your care center is in the Pre-Visit Planning and Population Management Learning Lab

As pre-work for the upcoming ICN Community Conference, please complete this Center Self-Assessment. We are asking each person on your team to complete the assessment. This tool will be used to guide learning lab time, measure center-level outcomes, advance QI skills & projects, and develop ICN network activities needed to conduct reliable Pre-Visit Planning and Population Management. We will use this information to tailor content at our Community Conference and in 2026 Learning Labs to best meet your needs.

If your care center is in the Clinical Standardization/Personalized Care Learning Lab

There will be no pre-work for this learning lab at this year's community Conference.

Role Specific Breakouts

Physicians, Advanced Practice Providers, Nurses, Pharmacists: Improving Access to IBD Medications: Mastering the Process

Please work with your clinical team to complete the following questions regarding the medication prior authorization process at your care center. Only one response per center is needed. Your responses will be shared with the presentation team to help shape the role-specific session—Improving Access to IBD Medications: Mastering the Process—for Physicians, APPs, Nurses, and Pharmacists at the ImproveCareNow Fall 2025 Community Conference.

Fill out the Medication Authorization Process Survey